Good Moanin' HealingWell V53

Moanin Everyone,

Thanks for letting me vent last week and for the kind replies.  i guess my family Doctor has always been pretty disengaged.  I'm not sure what the doctor situation is in the States but we have a major shortage over here in Ontario, many many without a PCP.

I shouldn't complain though, my Rheumy isn't bad.  I never asked this before but  do many of you guys still work.  I think that if I felt well enough to go back it would help.  I had an OT come over from the Arthritis Association of Canada a few weeks ago and when I asked her about any patients she had on disability she said not many were. Wondering what % are able to work.  I am currently on LTD through my employer.  I've got to wonder though, how long will they hold my position? 

I've worked all my life and am only 41. I know that right now I could not work and still function.  Any input??  I really don't find much of a change in my condition, if truth be told, and its been almost a year since DX.  I take all my meds on time, but i still have a lot of inflammation in the fingers, wrists, elbows and shoulders.  Now when I lift my arm I have a large pop, not just occasionally, but all the time.  The pain is just as bad some days, but I think I am just building up a tolerance to the pain.

Anyway, my Rheumy's office called 2 weeks ago and I have to go for an MRI on my spine.  I have to have this done in 2 phases.  One is tomorrow at 7:45pm and the next is on Wednesday at 8:45pm.   He didn't even tell me why he was doing this.  I trieds to get a hold of the office again but no call back yet.

Sorry about the big ramble, I actually had a good weekend.  My DTR had a basketball tourney near Toronto so we were gone all weekend.  It almost kills me (the lack of sleep)  but it is so worth it to get away.

Will post soon

Raven

moanin everyone. it monday! ugh....... a big storm headed this way too - i cant wait til spring is in the air!

welcome back morticia, sorry your not feelig well again....... hopefully better days are ahead? soon! : )

raven, ah the work question is so individual because we all have different jobs with different expectations on our bodies....... i know it is my love for my job that keeps me going when i feel like
i am sacraficing quality of life, work, and family. but i keep on truckin' cuz my job does not strain my body physically beyond its limits..... if it did - i would have to look at other options and possibly
stay home..... ? fortunately i dont hav RA of the jaw cuz i mainly talk lol : P

fyi jody emailed and her house has the flu bug so all are not feeling their best......

have a great trip ducky. owhhh the thread police will be away! lol

joan thanks for the song! how was the soup? and phone call?

m23 hablo espanol? me no hablo espanol. i am certain you are way past that in college.... lol when i took it my name was lindita, it meant little linda something no one would call me now lol that was in like 11the grade? lol

well i have to do a presentation to the aging network - bear too bad your not attending?!- i meant for work not personal aging.... teehee
my presentation is how does vision loss effect the elderly population...... for me a no brainer! hey bear get me on the washington agenda and we can present together? lol
well gotta go..... hugs yally

Raven,
I still work but only because I am self employed so no one can complain if the stiffness lasts so long in the morning that I come in late, or if I have three doctors appointments in one month...
My job primarily requires that I watch other people work and tell them what they could do better so I talk and write a lot.
Occassionally though I have to physically manage someones behavior or push wheel chairs- the people I contract with do not know that this is almost impossible for me and I do not have medical clearance to do it.
Sj

Moanin everyone,

Thanks for the replies, I guess I feel guilty for not working, even though I know I could not tolerate very much right now.  I guess i get peed-off because I think if my pain were better controlled I could probably work part time.  I am doing some volunteer work at the school and enjoy it.  It is such a snow-ball effect for me.  I am exhausted from the RA and nerve pain but cannot sleep because the pain keeps me up.  I can only sleep 2-3 hours at a time if that.  the nerve pain right now feels like my right foot is on fire and that flames are shooting out of my toes.  I'm sure as many of you know, when the pain gets this bad, nothing can take it away.

Enough complaining for today.  I had the first MRI last night.  It was on my c spine.  The radiologist then sent me for more x-rays (not sure why)  i have the last MRI on Wednesday night.

I am a little confused as to why I have to go for these MRI's because I don't have all that much back pain. My pain is mainly in the joints and nerve pain.  I guess time will tell.

My oldest son is going to the UAW- Dodge 400 in Las Vegas for his 23rd birthday.  I guess thats all the news I have for now.

Chow for now

Raven

flip flop weather!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! omg dont even say that to me!!!!!!!!!!!!!!!!!!!!!!!!! gotta go shovel the half foot of snow before i go ugh!!!!!!!!!!!!!!!!! flip flops! cruel very cruel : P

muy frio en la casa, y tu?
camama- " No, me no frio. me flip flop!" lol

queridos amigos...como estan? Estoy bueno hoy...tenia un dolor en mi cabeza, un dietente que horrible! Fue al doctor y ahorita no tengo dolor. Hay muchos problemos con mi grammatica pero tengo este en anglais tambien.

Raven, tell that creepy doctor to put in a shift for you! Don't let them get to you!!!

Sorry to cause such a stir!  

Heee heee....Raven, I believe it's Mom2-3 that is taking a Spanish course. That's how it all started.

I am completely clueless when it comes to French other than Miss Piggy saying "Moi?"

I've lived in California almost 3/4 of my life (wow!) and in San Diego about 1/2 my life (double WOW!) - so learning Spanish was the more practical choice, at least learning some basics, which even that is becoming almost nil from lack of use.

***

Hey everyone.. we're back! It was beautiful and relaxing.. and I really didn't want to come back.. but we had to.. :( poo.. I just got done going through all the posts.. sheesh, you guys were busy!

Anyways - great to be back.. gonna check some more posts.. be back soon..

moanin everyone. didnt mean to tip the cart with my spanish lessons. i actually speak fluent german. lol but i wont go there on my posts i promise. i am first generation american my family came from europe.
joan you definetly could tutor m23 if she needs any? you seem to have it down, but i am a strong believer in english is the language of these united states, sorry..... but i hate when i have to press one for my countries language. - enough said on that- besides there is no 3 for german?

mom my house is cold cuz it is single digits here everyday and huby does not want a 500 dollar or higher fuel bill to heat the house this month so i am freezing. but the sun is rising earlier everyday so i know that sun is getting closer to me! and i do see a sun which is good news too! but it is painfully cold the last few days highs in the single digits. ok all of you in the warm climates smile and enjoy your heat....... why do i live here! lol

well my eldest flies home today for her break so my house will be buzzing again with both girls. i look forward to her coming - just not the extra work..... but she is soooooooo worth it, they both are.

well it is over a week of prednisone and i am doing much better. not great but better. my hips and shoulders are no longer screaming at the top of their joints to me, just nagging me is all.

tgif! gotta go been having a ton of long distance cases so gotta go through my speed traps again as i did yesterday..... hopefully no light shows today..... take care everyone "Auf Wiederschauen!"

moan moan moan moan mo moan mo

tee hee.. Morticia.. We sure did! We couldn't figure out why we were so tired every night.. then we realized it's 'cause we were spending like 2 - 3 hours in the jacuzzi.. ha! We'd go out for a bit.. then get in the jacuzzi.. shower, nap.. get back in the jacuzzi.. funny stuff..

It was.. it was just wonderful.. :)