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Rheumatoid Arthritis
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Posted 3/17/2010 4:12 PM (GMT 0)
Hi

I guess I skipped the rules-  I'm sorry.

I am now introducing myself.

I have had RA for 2+ years. I had a veru severe onset that happened over night and rendered me  an invalid for 3 months. A change in RD and a megadose of prednisone added to my MTX turned me back around.

I have done relatively well ever since. My onset was so bad I have trouble complaining about anything anymore.

Yet RA depresses me and makes me feel crazy.

I just don't feel "good". My aches and pains are migratory always symmetrical but here this hr. and gone the next to somewhere else or if I'm not moving maybe no where. My hands and feet/ankle "discomfort" is ever present for the most part.

I'm sero negative for RF and often my Sed/Crp is normal but I don't feel "good". it makes me feel like maybe it's all in my head!

I am taking the max dose of MTX and just started Humira (3 shots so far).

I want to feel pre RA. Does anyone attain that?

Posted 3/17/2010 9:16 PM (GMT 0)

Welcome wearyRAsufferer to HW and the RA forumsmilewinkgrin

You didnt skip any rules:-) 

I take MTX and Humira and am currently weaning myself off pred.

Im not sure about feeling pre RA, I think some days are better than others. It would be nice though to wake up and not have anything hurtsmilewinkgrin

Maybe when the Humira kicks in for you, that might get you to feeling pre RA - fingers crossed for you!

I would like to hear if anyone has attained this as well, I look forward to any other replies you get on this subject.

Hope the Humira kicks in for you soon.

Let us know how you progress.

Take care

Jo

Posted 3/23/2010 1:59 PM (GMT 0)
I read your introduction and it could have been written by me!

All my test are also negetive. My sed rate is "wonderful" Doc told me if she did not phsically see how swollen I as she never would guess becuase my rate was normal low!

I have tried so may drugs.. Max dosage on Methotrexate not successful
Predisone gave relief but can not stay on forever. My eye pressures went sky high but after being off prednisone a month I was retested and ok. Plaquenal and enbrel no luck ...
Just started Humira having some inital success, and hopeful for the first time in almost a year ..

RA depresses me and makes me think I am crazy too.....My husband tries to be supportive but he does not really understand,and I think he thinks I exxagerating my pain. I suffer in silence because no one really wants to hear about it. I dread when people say "good mornin" or "how are you"..because it is not a good morning....no morning is good anymore! and they really do not want to know how I am ----so I smile and say fine, or nothing at all.
Posted 3/23/2010 11:46 PM (GMT 0)
Sydney Jo-Well so far I haven't run into anyone that feels pre RA but then again they are probably out enjoying life- not looking for support on a health board right?
Sometimes I wonder if I focus too much on the RA. I belong to several forums. Maybe if I just stayed away I would forget . But I don't think so because as soon as I wake up in the morning and go to throw the covers back my wrists and hands say RA here- good morning-I'll be your constant companion today. Arrrggghhhh! I hate RA. Get lost! I just seem to think about it all the time. Yet I wonder if I wasn't diagnosed would I blame everything on RA and feel cheated like I do now or would I just push it aside and say no time for this... carry on. Before RA I don't ever remember being sick or having aches and pains. Then it came over me in a single night. Took me out at the knees. It didn't keep me down- I was able to bounce back with the right meds so I can live a highly functional life. But it's just not the same. I resent that my elbows hurt just because of the natural swing gait. I get tired so easily...
So very tired- I hear you! Are you still on the max dose of MTX with the Humira? My doctor has been pushing the Humira since onset but I was too scared. Both of the side effects and having to self inject. Well- I got tired of feeling less then I think I can so I finally got up the nerve but so far- nothing. I guess I have to give it a little more time.
Posted 3/24/2010 4:01 AM (GMT 0)
 

Remember SydneyJo when I had questions when I reached getting to 20mg of Methatrexate because I threw up 2 Fridays after taking my Thursday dose. I thought I'd never feel better and had a hard time coming to terms with it. Well I now feel pre RA (I was diagnosed  and started medicines in October 2009)  So there is hope!!  I still lurk on the board here but not as often. As wearyRAsufferer said I am out having a good time!

I wish it for all of you and sure hope mine continues.

Mtx, 2 1/2 mg prednisone and folic acid is all i take and my numbers came down to normal

 I shouldn't say this in case it's'bad luck' to 'brag' and next week I am back in the hole Uuurrrrggg!

Posted 3/24/2010 1:19 PM (GMT 0)
RA took me off Methotrexate as she said if it was going to work it would have by now and I was on Max. dose.
I am only on humira right now. She wanted to put me back on predisone but i refused. It makes me wirey and My eye pressure was sky high. So for now it is just humira.... Only had my first injection last week due for anther next week, The swolling is I'd say 90% gone.. Looks so strange to see I do still have ankle bones!! ha!~ I can wear my rings for first time in months. HAve very little pain last week or so-- but today my elbows are achy any my left ankle is sore.. ....
I am a teacher and I had a student comment that I am walking faster!! ( no limping) Hurrha!!

as far as the injection I was petrified.. and am the biggest baby..but it really is not bad.....it is pen prick not really injected.. If I can do it......you can too!

HAPPY WEDNESDAY TO ALL.......
Posted 3/24/2010 5:46 PM (GMT 0)
yay!  Word from someone who feels pre RA! Thanks faith- that's great news- may it last for you forever!

too tired- maybe a combo of the MTX and Humira is what you need-MTX alone has not done it for me either.  Of course so far the Humira/MTX combo is not working either....but I have not given it enough time.

Posted 3/24/2010 10:44 PM (GMT 0)

Wow keep the faith, Im glad you feel pre-RA it's nice to know it can be achieved.

I would have to say the Humira/MTX combo has made me feel less pain, but I have days were I feel rotten too.

Im glad you keep posting keep the faith, you can inspire all of ussmilewinkgrin

Jo

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