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DS couldn't hardly get out of bed, lots of pain all over and could not lift his glass this morning

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Rheumatoid Arthritis
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Posted 11/8/2010 4:18 PM (GMT 0)
day 4 of treatment for my 12 year old....

well today was a rough day, DS couldn't hardly get out of bed, lots of pain all over and could not lift his glass this morning.  I had to give him a smaller glass.  I don't know if it could be a side effect of the medicine of if RA is overdrive.  However, he has never had any problems like this before.  He started  Azulfidine (sulfazine) on Friday morning.  I am very frustrated this morning.  Angry, with no one to be angry at, sad, heartbroken.  I have been a Christain for 35 years.  I love my Lord and Savior, but today I am very unhappy with HIM.  I had a beautiful, happy, easy going, energetic son.  He is deteriating before my eyes and there is nothing I can do about it. IT is not fair.  Oh, I know life isn't fair.  I get it.  But enough is enough.  we lost my wonderful mother in law in her 50's after a 10 battle with breast cancer.  I had a miscarry at 17 weeks.  I have a beautiful teanage daughter(6 ft 1in), who has the kindest, most generous heart, but we almost lost her in junior high to an eating disorder.  Thank heavens she has been recovered for 4 years.  I have Chron's disease and we have spent countless $ on medical the last five years.  What I want to know is will I ever again have a relative worry free year?  How is my disease supposed to heal with the unbelievable, never ending stress. 

Posted 11/8/2010 6:39 PM (GMT 0)
So sorry you are watching your son struggle with this disease and you are struggling with your faith. It is very hard as a mom to watch your children hurt. Just think how hard it was for God to watch his only son suffer as a mortal. Watch him be spat upon and crucified and he could not intervene at the time.

I was in the place your son is now- not being able to lift a glass. I could not even lift a tissue. I had severe pain cycles that lasted 12 hrs. off the charts- no relief - not even with oxycontin. My RA was out of control.

I too questioned why God?  I then came to think that maybe by going through this pain I was becoming more like Jesus himself. That I was able to suffer so I would know exactly what suffering is and then to be able to go on and help others who sufferer - understanding exactly where they are coming from. I prayed that God would heal me- at least a little because I could not serve him in the condition that I was in and He did.  "heard" him say not only will I heal you a little but I will heal you 10 fold. It did not happen at once but I did feel a warmth go thru my entire body when I "heard" Him. One day an appt. opened up at a Rheumatologists who I was on a waiting list for a 2nd opinion for. I went and he increased my prednisone to 40 mgs. a day. OVERNIGHT I was a NEW woman- no lie. It flipped a switch and triggered my body to shut off that super immune system reaction I was having. I was on it at that dose for a few months with MTX and then it was a long slow taper off the prednisone. I'm still on the MTX of course.

I will pray for your son that he will be able to endure what he is going through until the right med combo for him is found. I will pray for your strength to watch and help him the best that you can. I will pray that you can continue to have faith.

All the best to you!

Posted 11/10/2010 3:03 AM (GMT 0)
Spirited, sorry to hear about your son. This has got to be so tough for you to see everyday. Please surrender to God. As the previous posting states, have faith in God. He cures all and hears us all. I was diagnosed with pre leukemia in April, 2010 and I was getting ready to get allogeneic transplantation. All the process was taking place, I pray and pray and surrender all to God and when I went back in August and was getting ready to have this done, my bone marrow came back normal. My bone marrow had increased the bloood levels and I did not need to have this done. This was a true miracle. One day my world was upside down and the next God gave me a 2nd chance to appreciate life and live life. I do have other health problems, but compared to preleukemia they are bareable. I am a breast cancer survivor, and I have fibromyalgia.
Hope this gives you some relief. Have faith. God Bless and God Bless your precious son. We are hear to support you in anyway we can. Feel free to keep us posted.

Regards,
Simplistic007
Posted 11/10/2010 3:27 PM (GMT 0)
Thanks everyone for the repsonses:)  Yesterday was much better.  I am not angry anymore, maybe slightly frustrated but I have a long list of blessing to be thankful for.  I have a loving husband, three beautiful kids, inspite of the health issues.  We finally have a diagnosis so there is a name to treat.  So far DS is tolerating the medicine.  And I appear to be doing well on imuran.  So today I am counting my blessing, each you take care and once again thanks so much for your support:)  wish us luck we go to Mayo today to get DS's cast off and xrays to see if the surgery took and then we start physical therapy rolleyes
Posted 11/10/2010 8:02 PM (GMT 0)
Sometimes going to see a pain management psychologist can help, it gives you time to vent
as well as on here. There will be good days, sometimes though you just have to take one day at a time
and just do the best you can. sounds like your doing a terrific job... my daughter's first dorm room co roomate
had RA and doing well..Anything is possible...Please keep your faith...Look forward to the good days.
Hope this helps...
(((((((((((((((((((((((((((((((((((((((((Spirited))))))))))))))))))))))))))))))))))))))))))))
healing Hugz and hopes for low pain days being sent your ways...
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