any ideas

hi just a quick one

all my bloods have dropped due to medication i guess, which is a good thing but i am still experiencing lots of pain
and swelling in my knees, elbows, shoulders, one leg/foot and back.
i was just wondering if anyone else has been i this position cause i think my rheumy looked at me like i was lieing
even tho she see the swelling and that i can't fully extend my elbow and my knees are so swollen.



thanks for reading

I'm there too.  I don't have the swelling either- and when i do by the time I can get in (weeks later) the swelling has gone down and I look like I made it up. 

My rheumy called the pain w/o inflammation, centralized sensitization.  I had never heard of it before. Anyway, he says that he sees a lot of clients who have pain well after the inflammation is under control.  I would like to know if your rheumy will treat it with anything, because mine pretty much told me that the pain and fatigue left after the swelling and blood tests are normal is just part of the condition that I will have to learn to live with.

I should take pain meds to take the edge off, but not to try to drown it out because the effect will eventually wear away and I will only end up addicted to it.  He started talking about a "chronic pain syndrome" where you throw more and more pain meds at the pain that eventually it doesn't work.  (Ever see the show HOUSE?  Think his vicodin addiction.)

I would like to get better news than that, and I am working on getting a 2nd opinion on the whole "can't treat that pain" thing.

I'm on the plaquenil and predisone. Although the bone scan came back with severe elevation and lupus and ra test, along with crp levels elevated..I guess not enough for him. He temp. gave me pain meds and no dx. I am double jointed ,as well as someone else on here was saying i dont know if it makes a difference but I can feel the swelling and stiffness even when he says in my knuckles he cant. Last time he was kinda talking to himself saying we may just have to go on symptoms of immobility on knees and stiffness with hands along with difference with the meds to get dx...but like i said he really was just in the room kind of talking to himself when i asked what he said for me to take the new doses of meds and we needed to see if they would help. Now stiffness has started to get worse again. Ughh this sucks, huh?