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Does anyone remember what a pain free day feels like?

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Posted 2/25/2011 9:31 PM (GMT 0)
cry I know I sure don't. I try to remember back to those days but they seem so far away. Almost like that memory belongs to someone else. Between working 50 plus hours a week and raising my 5 kids solo during the week, sometimes I just want to throw my arms up and say i give..but it would hurt to much. It doesn't help that all of my staff are elderly and push themselves as hard as they can, I still have to make up their work as well as mine.
I just want to vent my pain this week for a minute: so sorry in advance shocked My knees are burning, off and on all day. If I stand , bend , lay down, whatever. My left hand joints have started hurting more than they ever had before i started the predisone and plaquenil. My neck feels like it is so stiff, almost like I slept wrong. I keep getting a twingy headache. My left side elbow is a nagging ache. The balls of my feet feel like they are going to explode, and I'm still dealing with the torn rotator cuff and my lovely physical therapy.
tongue
I go to my Rhuemy on the 7th to see how the meds are helping. My stiffness is not as bad but well that's it shakehead
So now that I've ranted and raved smilewinkgrin do any of you remember what a pain free day feels like? maybe it triger mine.
Posted 2/25/2011 10:37 PM (GMT 0)
Nope, and don't like reliving my past either it was not good.
wish I could've offered you up more hope...
((((((((((((((((((((((((mama6)))))))))))))))))))))))))))))))
healing hugz for a low pain day soon...
Posted 2/25/2011 11:26 PM (GMT 0)
chartreux,
That's ok. It's not like my post was full of hope. Just complaints. I am so tired of hurting and being tired. I really have tried to stop dwelling in it and just smiling through it. Looks as though I'm not doing such a great job with that.
I'm sorry your past wasn't good and causes you distress just thinking of it. I too hope you have a pain free day. Here's to all of us sharing in that.
Heather
Posted 2/26/2011 12:26 AM (GMT 0)
Hi Heather,

A pain-free day - what a distant memory eyes   Maybe a painfree hour or two and then I dont realise I felt good till I feel sore again turn

Vent away on here anytime Heather - after all we are all kindred spirits wink

Take care

Jo 

Posted 2/26/2011 12:30 AM (GMT 0)
I agree Jo we are all kindred spirits unfort. I would have liked to have met such great people under different circumstances.
Boy do I know how to vent..but I'm glad you all are here to hear me.
thanks, Heather shocked
Posted 2/26/2011 12:38 AM (GMT 0)
yeah  I know what you mean about being able to vent yeah

I have to bite my tongue everytime someone asks ' how are you' - I could go on for an hour about how I really am yeah

Jo

Posted 2/26/2011 1:14 AM (GMT 0)
Wow Jo,
My Symese twin. Sometimes I feel like I need a stamp on my forehead that says don't bother asking, you'll just regret it smilewinkgrin Well I guess keeping it in does nothing but make us feel worse, so vent away, right? Heather turn
Posted 2/26/2011 2:41 AM (GMT 0)
At our church there is a very elderly (in his late 80's) pastor emeritus who has had cancer and heart problems. I am not sure how he manages to get to church (his wife still drives). But he said something funny last week. Smiling he said to me, "When people ask how I am, I tell them "Dont ask and I wont have to tell". It doesnt seem funny as I write it now, but it was said with humor.

I am so glad that this forum is a place where you can vent and get support.

It's funny that when so many people ask how I am doing (they know I have been having problems for the past 6-7 weeks), my reaction is to say "Fine", but of course I am not fine! I dont really want to get into it with most of them, so I say, "a little better".

Not sure how you are managing to work 50 hours and raise 5 kids!
Posted 2/26/2011 3:57 AM (GMT 0)
Songwriter,
I appreciate that humor. smilewinkgrin I found it funny!!
You know, the same as most of you, I keep working because I have to. I'm 36 and I like working, and working hard. I always wanted a big family(truly I wanted 8 kids..uhhh what the heck was I thinking?) My husband works nights and I work days so our kids don't have to be in daycare, with strangers. It is painful most everyday, and I want to cry at least 20 x a day but no-one else is going to do it for me, so I do it. My staff, for the most part, is elderly and if they get out their and put away 60# cases I figure I darn well better. I don't know though, more and more, I find it difficult/impossible to do. So for now I bide my time and hope for the medicine that will make it easier.
I find that I tell people I'm ok. Anymore though most of the staff at my school tend to read my face. At least that's what they say, and most say oh you don't look good today. I wish I could hide it better. It gets trying doesn't it. Especially when you don't have any answers. Hang in there. Thanks for the chuckle!! Heather turn
Posted 2/26/2011 4:31 AM (GMT 0)
Hi mama6, so now I am curious. You have to put away 60# cases? At a school???? And your staff is mostly elderly? What kind of work are you doing? Maybe I should not ask as I will find it hard to believe that you manage to do it with all of your pain.

Nice to hear you are able to work out the daycare between you and hubby. It was always a problem for me and I only had 3 children.

Not surprised that you cannot hide what your face is saying. I used to teach student nurses and one of the things I emphacized was "looking at the patient" not just listening to what they were saying.
Posted 2/26/2011 6:54 PM (GMT 0)
Mama6 I sure give you the credit for managing this pain and doing all the things you currently do. Raising 5 children is not an easy task but God Bless U for having them and being there for them no matter how you feel. I do remember my pain free days. I reminisce all the time. I remember when I was a career woman, a full-time college student, and raised a child alll by myself. I was like wonder woman and can conquer anything. Today, I am only 44 yrs. old in extreme pain and for the past 3 1/2 yrs. my health detioriated greatly. It all started 3 yrs. ago when I was dx. w/ breast cancer. Then after this, my health between FM and RA have worsen. I have had FM since 2000 but always managed as I get older it has worsen. Now I am not longer working and no longer that wonder woman I use to be, but besides all of the health problems I have had, I am still thankful to God for giving life and giving me the strength to still manage my health. Hang in there and vent anytime you want. That is why we are here for. Keep your strength, hope and faith. God Bless and feel better.
Simplistic007
Posted 2/26/2011 7:38 PM (GMT 0)
Songwriter,
Well we ar required to be able to lift 120#. When I was hired in I was 27 and all the OA and RA crap hadn't really hit so I felt like it was no big deal. I work for the biggest inner city school district in Indiana. I am a Foodservice manager. Fancy way of saying I manage a klitchen. We have only 600 kids at the moment but 350 of them eat breakfast and most of the 600 eat lunch. We make everything onsite except our daily chef salads which are brought in. I manage a staff of 5. My oldest just turned 79, then ones 76, and then 70. I had another 75 year old who was my cook and retired last year. I do have two younger but one only works early mornings because she is a sheriff at the jail in the evening so she is not there for our deliveries. So that leaves my fruit girl who is one year younger than me. She already has to contend with the fruit deliveries and prep over 1500 serving of fruit a day. (yes we encourage..and our kids take fruit and fresh veggies), I am short a clerk and cashier so i do both as well as my job. It is tough. It keeps me busy. I love the kids, my staff, and the staff at the school. It is why i keep returning, besides i need a pay check. But I am getting to a point of questioning why i do it every day. My mom says she doesn't know how much longer i will be able to do it. I don't either. Don't worry about asking me questions as you see i can talk.

Simplistic...I am so sorry to hear about your breast cancer. My mom was just dx in Novemeber. In fact we flew back out to California when she was being dx. It is hard..and i am the one just watching it. She has FM and Lupus and was beaten by a patient at the mental health facility she used to work for but nothing has kicked her but like the breast cancer. You are still a wonder woman..even more so. What you have had to endure and you still get up every day and continue to fight. You are amazing!! Don't you ever forget that!!Thank you guys for being there for me. Heather
Posted 2/26/2011 8:23 PM (GMT 0)
Hello Mama n all who read this. I pray sometimes for just a reprieve 4 a day. Its been a good 2 yrs since i had a pain free day. was active worked ovrtime kids superwoman i thought. Hav addisons gout dystonia arthritis fybromy anemia anx panic dep no stomach nerve damage n list goes on. Drugs n vibrating body mat help. Hope 4 miracle gives us all that 1 day. HUGS!
Posted 2/26/2011 8:52 PM (GMT 0)
BluAngel,
I'm so sorry to hear what you have had to endure. Sometimes i think if i can remember the good days that some how i can get back to something normal. But i think that is all just wishful thinking. I have to hold some type of hope or i think i would just give up. Hang in there. I know that's easier said than done. Take care. Heather
Posted 2/26/2011 10:45 PM (GMT 0)
Oh mama6, how do you do it all???? I wondered if maybe you were in food service when you mentioned having to lift. Too bad the 70+ workers do not retire. I am 63 myself and retired. I would not be working a job where I had to lift or someone had to do the lifting for me. I know you like your staff, but it doesnt seem fair. So nice that you are serving fresh fruit and veggies. My grandkids do not eat enough of either of them. My sister makes an interesting chicken salad that we dubbed crunchky chicken. She takes an onion, a cpl of carrots, and a cpl of celery stalks, dices them up and then adds the mix to chicken and mayo (in any proportion, i.e. 1/4 or 1/3 or even 1/2). It is actually kind of tasty, crunchy and they get some fresh veggies!
Posted 2/26/2011 11:00 PM (GMT 0)
Songwriter,
Yes sometimes I wish some of them would retire, but they are like family to me so I want them to stay too. It doesn't end up really being fair for me or even for them. I get what our requirements are but all of them have been their at least 30 years so they agreed to that back when it wasn't an issue. It is hard work, we used to have utility people that at least would help with it, but in a cost saving measure our school district eliminated that position.
That salad sounds wonderful. I might try it tomorrow for lunch, minus the mayo. Because of the predisone I have gained weight and i can't have the mayo but a fat free ranch or just a little olive oil and vinegar might work. I let you know which one I decide.Take care.
Heather smilewinkgrin
Posted 2/27/2011 12:06 AM (GMT 0)
mama6, thank you so much for your support. Your mother is right nothing has kicked my butt emotionally, mentally more than beating breast cancer. This is a tough road to cross but we some how manage. Thank you and have a great evening. Feel better and keep doing the amazing job you already do. xxoo
Simplistic007
Posted 2/27/2011 12:09 AM (GMT 0)
Hey guyz. I take trigger point injections and hav had botox. Found accupuncture helpful too. I keep trying drs and keep looking 4 new answers. Breathing candles music prayer mantras. Actually BC powder helps me some. Taking meds on empty stomach WITH CARBONATION helps meds work better sometimes. I believe there r answers out there. Get 100 opinions if needed. I BELIEVE WE CAN IF WE JUST DONT STOP. Hugggz.
Posted 2/27/2011 12:25 AM (GMT 0)
i am probably Quoting Wrong so don't hold me to it but i think the Dalai Lama said of pain embrase it if we didn't think it bad we could just work with it don't brand it as bad or good just there, - something like that! i have tried feel the pain not as bad and sometimes it sort of melds into the background - sometimes that is !same with meditation but to do both you need to be in a positive mind frame and latley i have been far from that, as for pain free days yes i too try Not to remember them its like a Lost friend don't dwell on it try to live in the Now.  

     rolleyes rolleyes smhair

Posted 2/27/2011 12:40 AM (GMT 0)
mama6, I have gained weight on the Prednisone too! At first, I was OK, but then the dam seemed to bread and I was hungry all the time. Still trying to get a handle on it. I am already obese! I do not need more weight. And can you image the chipmonk cheeks I now have from the moon face side effect. Lovely! I'm trying to avoid the mirror. At least I am older and can laugh more at (our) appearances than we females seem to be able to do when we are younger. Still I could swear it looks like I am hiding nuts in my cheeks sometimes!

Why is is that the pain just seems to need to travel around my body. Cant my body be happy when one part feels better. Oh, no. That just gives another part the opportunity for center stage!
Posted 2/27/2011 1:18 AM (GMT 0)
SONGWRITER did u send me a reply somewhere? I got an email that you did but i cant find it?
Posted 2/27/2011 2:06 AM (GMT 0)
I usually hang out on the crohn's forum but I saw this topic and it really spoke to me tonight. I am sorry you are having so much pain. I had a colon resection 3 months ago and got over all of that but now my joints are killing me. I went to a rheumatologist and the only thing that is positive are my ana and sed rate. Prednisone works but shot my blood sugar to diabetic levels and I am not going to get another darn disease.
I like the saying "ask me no questions and I'll tell you no lies." I too get tired of whining about my pain and sometimes the only place I can whine about it is here. Thank goodness for this forum and the good folks here,. Sometimes all we can do is pray there will be a cure or a higher power will take the pain away. I hope you get some pain relief soon mama6!!! God bless!
Posted 2/27/2011 2:34 PM (GMT 0)
BluAngel, I am not sure if I sent you a reply. Hmmm. Are you posting in another thread somewhere?
Posted 2/27/2011 6:15 PM (GMT 0)
Hey everyone,
I replied last night but somehow i see I must not have done something..... idea
Songwriter I laughed so hard about the thought of the nuts stored n the cheeks. I sometimes think with my moon face I could light up the sky! Just round and jolly I guess wink . I don't pay as much attention to it as i would have in the past. I am really watching what i eat though. It is so hard. I am going to try that chicken salad here in a few. I am looking forward to it yeah
BluAngel,
I haven't tried any of the injections, yet, but I am newly semi dx. At some point I think i will have to, just to function at work. I'm glad that it works. I have done water aerobics, along with meds and have found it to really help my joints. The only issue is my son has to use my car constantly for college and work so I don't make it there as much as I would like.
BAdDay,
The DAlai Lama is so write. You have to go with what you have. If it's constantly on your mind that's it..you feel it more than ever. I will try and remember that saying when I get to the UGH days.
jeanneac,
Oh my heart goes out to you. So much to have to have gone through. Are your sed rates and ana elevated because of the crohn's or some other auto-immune disease? Sorry, my aunt has crohns and my son was just dx with inflammatory colitis. I am just trying to wrap my head around all the autoimmune factor's and if I passed this down. They think his may be crohn's and have been running several test. Take care and stay strong.
Well we can all hoepfuly not have to try and remember but actually have a pain free day or week, at some point. Hang in there everyone.Heather
Posted 2/27/2011 6:59 PM (GMT 0)
Hey mama6 I'll take your pain on for a whole day and give you a day off, but you gotta figure out how to pass it over!
When I was in school we could get out of study hall and help out in the cafeteria as long as we had good grades. Why not run that by the principal? It could be disguised as an adolescent exercise program with real world experience! I enjoyed the break plus needed the exercise and the luncheon ladies loved us! They would give us a little extra of our favorites when we were getting lunch for a little payback!
When someone asks me how ya doin I always say "hanging in there", they mean well anyhow.
Wish you the best
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