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down and hair thining

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Rheumatoid Arthritis
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Posted 3/21/2011 8:11 PM (GMT 0)
hi everyone, hope you all had a good weekend.

just thought i would share how down in the dumps i am, i had a steroid infusion 1 1/2 weeks ago and its like i never had it, so much pain again and hate it. i feel i can't even look after myself and my son needs to be stimulated, i take im to groups but it takes a lot out of me. i feel so depressed and useless, never thought i could be so low.

also my hair at the top of my fringe is thining and started to look like its going, i'm so upset cause other people have noticed it and well my hair is a big thing. (properly every woman is the same)

sorry to be a downer on your monday morning but no one else understands and i hope someone out there does.

thanks
Posted 3/21/2011 11:06 PM (GMT 0)
Hi Dee

I was taken off MTX and put on Arava before Christmas. While its helped with the pain, it's caused all kinds of horrible side effects; one of which is hair loss.

I don't think there would be a woman out there that could say loosing their hair isn't traumatic. I laugh it off most times, but it's not funny when you're in the shower washing your hair and you feel all the hair falling down your body like spiders, nor is it funny to see your bathroom floor carpeted in your hair that you just brushed.

So far my hair loss is not noticeable to the general public (although it's become a bit of a joke in my household due to them finding my hair EVERYWHERE) and I'm hopeful it won't get to that, but it's always at the back of my mind and something I worry about daily.

Of course, as with everyone with this disease, the hairloss is only one aspect that gets me down. This whole disease is one thing after another knocking us for six over and over... and it is depressing.... I understand the "feeling useless" - that is something that I've been struggling with for a long time, and especially lately.

So I do understand, and I'll bet there are tonnes out there that also understand.

Big hugs, Dee.

Mel x
Posted 3/22/2011 1:10 AM (GMT 0)
Hello, I had also experienced some hair loss. I had low Iron so I think it caused that. My iron level is normal now and I can tell that my hair is not falling like it used to. One of my colleagues recommend REGAINE for hair loss as she had huge problem with her hair, now you couldn't believe, she has healthy, long hair. However I didn't use it by myself. Biotin also is recommended for hair and nails so maybe it is worth to help the body with the vitamins too. I hope that it can help a little... Check your vitamin levels. After last injections of steroids in my knees I also felt depressed and down. You are not alone! Take care and stay strong!!!
Posted 3/22/2011 2:03 AM (GMT 0)
Sorry you are feeling so blue- hope your mood lifts soon.

As for the thinning hair...that happened to me when I began MTX. Someone told me they used Biotin with success. I started taking 5-7500 - oh dear now I forget if it's mcgs or mgs...anyway not only did the hair loss stop my hair is more full and beautiful than it has ever been.

I wish you all the best.
Posted 3/22/2011 4:22 AM (GMT 0)
i Know where you are comming from Last week i was posting How Down i was,seems to have improved a little now, so that side of it comes and goes. the hair loss i have from MTX i have a Very noticable patch on fringe and also on top of head , i see weary posted a product called Biotin i haven't heard of it but worth a look. Maby your Rhumy has some ideas.
Posted 3/22/2011 11:06 AM (GMT 0)
hi thanks all for your advice and support.
i think i will get better but just so low that i don't see an end for the tunnel, i know ra will be with me forever but this flare is driving me crazy and nothing as helped yet.
oh well and i will try the biotin thans weary
Posted 3/22/2011 10:33 PM (GMT 0)
dee,
we all get that feeling of sadness with what we are going through. I am so sorry it is your turn to feel that way. I think last week there were at least 3 of us here just from what i read. I don't say that in any way to minimize your pain and what you are going through just to state that we all know where you are coming from, and we are here for you. It is difficult because a lot of people don't understand what it is like to live a day in our shoes. How could they?
How old is your son? Are there people(family, or such) that could maybe take him to the park or something to give you some you time. Then he would be entertained and you could take care of you.
I started MTTX last weekend and already have noticed hair coming out. I plan on buying a blue wig. I figure what the heck. I'm young i don't want to lose my hair, but i also don't want to feel this pain. It's a toss up but your health comes first for you and your son.
Don't doubt yourself you are doing the best job that you can with what you have!! :-) I hope you feel better soon, give yourself a hug from me. take care Heather
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