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First Dose of MTX

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Posted 5/21/2011 4:04 AM (GMT 0)
I took my five pills of MTX tonight for the first time.  I expected t feel tired and or sick, but I don't feel either.  I hope it stays this way.  Is it possible to not get sick or feel tired while taking MTX?  I have read so many accounts of MTX making people sick, that I was really worried.  So far, so good! yeah
Posted 5/21/2011 4:19 AM (GMT 0)
Vannie, wanted to send well wishes in that I hope you do good on
the MTX, please keep us posted, I'll be watching to see how
you do...well wishes....
Posted 5/21/2011 1:24 PM (GMT 0)
Thanks so much!  Still doing well this morning.  I hope it stays this way, and I hope it works!  Plaquenil worked well for me for six months, but then I developed an adverse reaction.  My doc thinks I will do better with MTX.  I will keep you posted!

Blessings,

V

Posted 5/22/2011 5:55 AM (GMT 0)
Hi Vannie Sounds Good Hope it keeps going for you i was same with Plaquinil i ended up in Hospital with severe Stevens Johnsons Reaction . you may be on the right dose to suit you of MTX what dose are you on also are you on Folic acid as well?

i did find my first 2 dosed of MTX were fine then Yuck so Dropped Dose Down then up then Down etc then more Folic Acid and after some Months seem to have hit the right amount so not sick But i take Maxalon (it is for Nausea) for the 2 days after MTX. Good Luck

 

Posted 5/22/2011 12:08 PM (GMT 0)
Hi, BadDay,

I take five tablets of MTX once a week. I took it Friday night after dinner, and I haven't had an sick feeling. I was tired yesterday and didn't do much of anything. My doc didn't prescribe folic acid. I see her in June. I will ask about that.

Thank you for your comment.

V
Posted 5/22/2011 11:48 PM (GMT 0)
Good luck with your next dose and I hope you won't get sick...
Continued well wishes
Posted 5/23/2011 2:31 AM (GMT 0)
Vannie- MTX never gave me a problem and hope you experience the same. Maybe a little fatigue but not enough to keep me from doing what needed to get done. Never felt sick- not once.
Posted 5/23/2011 4:11 PM (GMT 0)
Hi Vanni,

That is great to hear about the MTX! I hope it continues to go well for you, and you don't have the dreaded side effects! Keep drinking plenty of water. For the folic acid,  you don't need a prescription, you can find folic acid in the vitamin section of any grocery store/health food store.

Posted 5/24/2011 5:36 PM (GMT 0)
speaking of folic acid, what is the best OTC brand? Any suggestions
Posted 5/25/2011 12:27 AM (GMT 0)
I am glad you wrote about this topic, sorry you had to go to the mtx. I am thinking this will also be my fate when I see the doc on Thursday. I have been on plaquenil for almost 5 months. Still having joint pain. Ready for it to go away.

Vannie, did the doc say how soon the mtx would take to work for you? Hope you continue to have good luck!!! I'll post on Thursday on what my doc says.
Posted 5/25/2011 4:52 PM (GMT 0)
My Rheumie started me on 3 for 2 months and then 5... I have been taking 5 a week for 6 weeks and I'm stopping this week. I did well with the three, still had pain and swelling (etc) but after two weeks on the five - just a few minutes in the sun and I get bumps on my body - some itch, some don't, nothing will heal. I scratched a bug bite months ago on the 3 tabs - it's still a wound - my face is covered in lumps (which are zits that don't go away and you can't pop without tremendous bleeding (and non-healing) plus I'm 39 so zits have not been a problem ever before. I have no desire to do any of the things I would normally do. I hate this drug. It has stopped a lot of pain, but I'm not myself at all. I already did Plaquenil, it only worked for 6 months.... I hope you have better luck. I take my metho at night and usually throw up in my sleep (which wakes me up) 3-4 times a week. I can't sleep well anymore(even if I'm not throwing up), although I have meds for that - they can't counteract the methotrexate. I'm stopping it - there has to be something better for me - everyone is different and I wish you the best of luck... I'll post the "new" drug that my doc tries or let you know if he is mad that I'm finished with this treatment (can't call - he's on vacation). sad
Posted 5/25/2011 6:19 PM (GMT 0)
Tired...
I have very very similar issues on MTX. I have been off of it for two weeks and I am still having the issues with the bumps on my face and chest. I had the vomiting in such a bad way, including in my sleep. My husband bought me a wedge to sleep with on my back, because he was looking for anything to help avoid vomiting in my sleep and the heartburn it would cause. In addition to the fact that he didnt like to wake up at night to change the sheets. That was the least of his worries, of course, but still pretty annoying. I was on the MTX for nearly a year and (not exaggerating) it never helped me one bit!! I asked numerous times to be taken off of it with no avail. Finally, after my doctor disappeared, I saw a new doctor who diagnosed me with AS with a Rh variant, basically meaning that I have AS and it is being tossed around that I may have RA too. I was changed to Humira every week and taken off of the MTX! My husband baked me a cake to celebrate. Thats how bad it was for me. I begin the 'every week' of the Humira next week. Next week being my first non off week. I have my fingers crossed...and toes and even my nose hairs are crossed...that this helps. I find that witch hazel rubbed on the bumps helps a lot, in addition to washing the area with a gental facial cleanser.

Please know that everyone is different. The meds that Tired and I are on could have played a part in the way we were effected. I dont want to scare you Vannie, but this is the truth of how it effected me.

Tip: Do not take Pepto Bismal for upset stomach as long as you are taking MTX. According to my Pharmacist, this is one of the many items that can increase toxicity of MTX dramatically and can cause serious issues. I am glad I checked with him first.

I wish you, Vannie, and all on MTX better results and less side effects than I had. The only comfortable thing about the MTX is the knowledge of how it would effect me. I am now in a position to figure this out all over again with every week on Humira, but Ill take that any day over MTX.
Posted 5/30/2011 5:06 PM (GMT 0)
I had my first dose of MTX this past Friday, took it right before bed and so far so good, no side effects. I hope it stays that way.
My Rheumy wanted to start me on the mtx first before anything else, also has me on folic acid.

Hope you continue to do well on the mtx Vannie.
Posted 5/30/2011 9:15 PM (GMT 0)
I am taking five pills once a week, and I see the doc again the third week of June, I think. Plaquenil helped me, but I couldn't tolerate it. My doc said three to six months on the MTX to help...I hope it is sooner than that!
Posted 5/31/2011 4:39 AM (GMT 0)
Just my 2 cents on the bumps and zitty things. Are those from sun exposure? I try to cover up and/or wear sunblock to avoid blistering while taking MTX. Would that help you? I am not at all one to burn, I tend to tan really dark, so I feel bizarre wearing sunblock just to be in my car for a half hour or an hour. But it seems to work.

Also, I have not felt nauseous on MTX. I just wanted to say that in case other people new to the drug are worried. It apparently is OK for some people.

High heat and sunny days do seem to bother me though. Three-quarters of the year it is cold and rainy or snowy here, so I don't have a lot of experience with sun and methotrexate -- I've only been taking it about a year, and I got way off schedule in the past month, so I'm not even at an optimal level. I kind of dread summer.

-- MK
Posted 5/31/2011 3:26 PM (GMT 0)
I went down south this weekend to visit my relatives on the sunniest and hottest days. :(
It was a 4 1/2 hr ride one way. Went down on Saturday morning and came back Sunday evening.
I felt bad the whole time down there. When I got back my ankles were huge and I hurt all over. I'm still recovering from ride. :(
Posted 5/31/2011 11:24 PM (GMT 0)
Joy,

ugh! feel better!

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