Poststreptococcal reactive arthritis

You need to see a rheumatologist ASAP. If you can't get into one really soon, then your GP should consider putting you on a Medrol pack or prednisopne taper, or then NSAIDs until you can see the rheumy. The intiial flare can be brutual.. I'm so sorry your are having so much pain.

My daughter has recently had a flare up of post-strptoccocal rheumatic arthritis with acute pain for a week. It has been about 5 years since she has had such a disabilitating attack. What is the current treatment for this syndrome. She is awaiting a doctor's appt. scheduled for mid July, the earliest she could get in. She is 46 and first developed this syndrome about 12 or 13 years ago. She was initially placed on long term prednisone and daily prnicillin. Has there been any advances in research or treatment? Thank you so much for any response! sweet.tooth

I developed Reactive Arthritis over a year ago and am still unable to walk.

I would really appreciate to hear anyone's update or experience with this condition.

ReactiveConstellationNE... It sounds like you might know a bit about this. Would you be willing to share what you've learned re: treatment?

Sorry this is so short but my wrists/elbows are also affected and it is painful to type. Thus it's been difficult to research.

THANK YOU to anyone willing to share!!

Hope,

I was diagnosed with reactive arthritis in 2010. Rheumy believes it may have started at least a year or two before that. And the infection that caused it could have been several years before that. Possibly campylobacter.

Anyway -- after a really horrible flare that was all over my body, and some troubling swelling and edema, the medications got everything under control.

My main issue is that I have to try not to overdo things, while also getting enough exercise to keep me healthy. I used to be very active with bicycling, hiking, things like that. Now I have to watch the clock and keep it down to an hour or so of activity or I will "pay" with days of pain.

My main medication is methotrexate (one of the DMARDs) and the anti-inflammatory I take is Relafen (an NSAID).

Hope you get hooked up with the right doctors and drugs.

Good luck,

MK

Hello Hope --

Probably took at least a few months to get things under control. Found out I was allergic to Sulfa and Etodolac, so there were some setbacks. Yes, I have been able to do some hiking and biking. I was out on my bike today. It took me a while to figure out that I had to go really slow and go on flat surfaces, and also I had to buy a different kind of bike. I don't go very often, but I'm glad I can go at all.

Ides' answer reminds me that the rheumy did give a shot of steroids to help the swelling go down -- don't remember what it was -- I had had some other steroid shots by a podiatrist previous to all this, and even had a foot surgery. Only thing that helped was the rheumy. Seems to me I did have to wait a few weeks to get in for an appointment. Now I go back every three months and also get bloodwork every three months.

Hope -- I couldn't really tell you the timeline. I think I did keep a diary of my ailments for a while, but not sure where it went to. It all started with my ankle, and the big blowup, which I really first noticed in my back, came all at once and lasted I don't know, days or weeks. The edema in my feet -- it was like having a bag full of fluids -- that did resolve fairly quickly with the steroid shot.

It took, I don't know, months? to end the swelling in my ankles and knees -- now I don't really have that problem so much. Like I said, there was a problem because I was allergic to a couple of medicines.

I guess it's actually my tendons where I have the problems -- she gives me some $2 word like enthesopathy to describe my symptoms.

I've had an Xray and an MRI on the bad foot, no ultrasound. I was noticing this week that bad foot doesn't hurt so much right now -- the other foot does. I probably need another new pair of shoes.