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I've been on remicade for years . But here is the thing about remission ... I know in my case and we all are unique no two are a like but in my case in rf- so it hides in my blood and my last fancy new blood test said I'm in remission ... Then why do I still hurt ? Because I'd like for my hands and feet and knees to be told hey stop it your in remission. My doc says the pain is coming from past damage ... You mean damage remicade was supposed to stop?
It frustrating and it's frustrating for rhumys also because they specialize in a branch if medicine where no two are a like where text book isn't as text book as they would like. Sometimes it takes years of trying differnt combo of meds and then just a hint of luck but remission isn't impossable but it may be hidden at the end of the rainbow ! Healing thoughts.

Thanks for feedback...feel like the Remicade is what will do me in before the RA... Going in every 5 weeks now and waiting for months for new hair to come back Wonder if my hair stopped growing all together,seems like it has. The thinning on one side is so bad even if I cut it it would be the same only short and thin...ewwwwwww! I want my life back!!!!
Much love to all...

Some of your answers make me laugh...with this much pain I have to say thank you for that. We should do this more offen... So sick about talking pain so let's laugh alittle now and then.
Much love to all...

Well thank you but me inspirational?? If you would have seen me the other day...I was in bed all day crying with a flare up,yes crying like that helps! The bed felt like small rocks,even my toe's and bottom of my feet were swollen. Not kidding you could see the bones/joints in my toes popping up through my skin,unreal!! I thought the next day REALLY??!!! Today I feel fine this is such a strange disease like a nat that you keep hitting thinking you kill it and some how it's back still flying around you. They say vision yourself happy,healthy and positive when all along these visions your yelling OUCHIE!!!!!! Now that's vision...

So very sorry about your husband CL...so hard. Well had my infusion and back back again April 1st said that's April fools day! Asked if they would make my infusion mix in colors and can I have stickers?? Throw in some pop rocks with that in my IV Having bad dreams this time not sure why but scary one's must be all the things on my mind. Anyway I hope after this next round I feel better then today, which today isn't bad at all. Wish we could send emails to each other and have long talks with people,would love that. Hope everyone is feeling as well as can be...

Much love to all...