RA and Humira Part II

oops...funny funny, Duck...you mentioned hair.  i've a hair thang.  unrelated to the thyroid thing.

                                                   got my first gray!

since on the prednisone and Imuran...my hair on my head has been thinning....but the steroids are finding a nice place for hair on my chin and neck. ewwwwwww.

i should tell my rheummy if he wants to keep pumping patients up with pred...he should at least supply razers, this crap gets expensive man! shaving my neck? what the *%#*?

ok i'll shut up now.

i actually don't take my Synthroid at all.  too fast of heart beat & hit the floor once.  my doc never brought it up ever again.  in fact, i was never retested with my thyroid since.  i know...i'm not a good patient and not a good example.  but then again...my cholesterol, which i feel is a more important issue than my thyroid, is sky high....yet no one mentioned going on a lipid lowering Rx.  the cholesterol thing has to be metabolic or genetic.  i don't eat meat, no dairy, no junk food....but i produce a lot of cholesterol.  whole family does on father's side.

i don't know...i'll talk about the Synthroid @ next PCP and see if it matters.

the RA and Crohns consume every ounce of energy & the med regime is exhausting.  i hate pills!!!!!!!!!!!!!!!

my heart realy goes out to the newly diagnosed RA people.  it's been 5 years for me officially diagnosed and i tell ya....it doesn't get easier.  you adjust better over time, but it is truly a day by day disease. 

i'm still scared about my future.  working?  i wish.  i hate the idea that i might not be able to.

i really never thought this would happen.  had a WHOLE DIFFERENT picture of what 25 would look like!

hang in there Morticia....every day as it should come.  same to you LeeLee.

You must have your Thyroid taken care of, it can make you extremely ill if its off and you dont take meds for it. With me when im late on my Synthroid etc... i get the following reactions

My neck cramps and stiffens right up

Hair falls out

tired all the time

Mood swings

Headaches

moments of blindness and hearing loss

Cant think straight

An untreated thyroid can lead to brain damage in the long run. Get them to switch u to a differant brand of meds if needed. Thyroid is a major part of the bodys funtions, if you can get it straightened up you might feel a bit better in certain aspects.

Get them to do the blood test girly :) trust me...... you will feel better.

so here's what happenned.  bloodwork came back & yadda yadda yadda....need Synthroid.  was taking the tiny tiny microgram pills.  one morning, like 2 days into treatment, a while after taking it my heart went tachy at over 200 beats per minute..felt like i was going to hit the floor.  next day same thing...and the shakes.  so i attributed it to the synthroid and basically said, ****that!

and honestly, i do know how a low thyroid can make a person feel & what the effects of it are...but i do put it at the bottom of my list.  i mean, being sick for so long....sometimes something comes up and i'm like..."yeah well and?"

like with the chiari malformation i have...i'm supposed to be getting MRIs every 6 months to a year to check for growth etc...and it's been 2 years since last MRI.  i feel, i'm going to get a brain scan to find out what?... it's still there?  and if worse, go to a brain surgeon?

i should open my mouth and inquire about a lipid lowering med for cholesterol cuz mine is very high....but i haven't done that yet either.

i don't know...i just want QUIET time ya know?

i'll throw in a TSH panel @ my next bloodwork & see what my thyroid level is.

i'm sure you can understand a bit where i'm coming from with this.

we've all have things to work on eh?

how's your weekends going?

{{{{{{{{{{{{ hugs }}}}}}}}}}}}}}}

erin

awe Duck....i know you understand.  yeah ya know....the doc never repeated the TSH and thyroid panels ever again.  i mean, fatigue?....well i know i've fatigue from the RA, immunocompromised, CD, and pain, etc... and my hair has thinned, but not "falling out"  i mean sure i shed like a cat! LOL.  and my skin has just begun to go whacky with lesions and patches and dryness.

it's so much to tackle like what you said, just the things that are in your face.  but i've PLENTY of bloodworks in the next weeks & since it's free (thank you Medicaid!)...i can ask the doc to stick in any odds n' ends.

speaking of HUMIRA and RA.  man...my injections are starting to HURT!  i've been shooting in my abdomen since august.  running out of spots?  seems like it's not going in as easy and it's more painful.  and believe me...i give a great shot! this too shall pass i suppose. 

so LeeLee, how are you doing?  things getting better?