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Rheumatoid Arthritis
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Posted 10/26/2007 6:39 PM (GMT 0)
Hi all,

Just got a call about  my blood tests from last rheumy visit.  They said my vit D levels were too low, and I need to start on a hefty dose of supplements.  Has anyone else had this, and does it have anything to do with RA?  Does the Vit D help us feel any better?

Thanks for info!

Jody

Posted 10/26/2007 7:12 PM (GMT 0)
Hey Jody.. Have you started the supplements yet? Vitamin D deficiency results in impaired bone mineralization, and leads to bone softening diseases, osteomalacia in adults, and possibly contributes to osteoporosis. So this may be why your docs are concerned.. you've got enough going on with arthritis, you don't need anything else happening to your bones! :)
Posted 10/26/2007 8:18 PM (GMT 0)

No, haven't started the supplements yet, have to go and get some from the store.  They want me to supplement up to a total of 2400ius a day between the vit D, plus what's in the mulit and calcium I have at home.  Guess it's another one of those "old lady" things, have to watch these old bones lol!!  Thanks so much, Ducky!

Jody

Posted 10/26/2007 11:27 PM (GMT 0)
Just want to let you know that you should have your PTH and Calcium levels checked before starting Vit. D supplements. The three are all connected to each other and taking supplements of vitamin D can normalize your PTH and Calcium levels. Elevated levels of PTH are caused by hyperparathyroidism and it can cause joint/bonepain.

Try googling hyperparathyroidism for symptoms....
Posted 10/27/2007 7:22 PM (GMT 0)
At the lab where I work, all the Dr's are checking every patients Vit. D leval. Seems to be a pretty huge percentage of pt.s are Vit D defficient. Especially here in the N.W. My Dr has had me on a vit. D supplement for the past 8 months now. Do I feel any different?? I don't know. Still have the old RA, and battleing that, but my bone density is great.

Posted 10/27/2007 11:15 PM (GMT 0)
Hi!
Just wanted to put in my 2 cents. My mother and aunt both have Multiple Sclerosis and both tested very low for Vit D. They are also on major doses of vit. d, I think there is some link between autoimmune disease and low levels of the vitamin. Hope that the Vitamin D makes a difference for you.
good luck!
Melanie
Posted 10/28/2007 12:50 AM (GMT 0)
well mine is wierd.....just like wonderful wierd me...........oooh.....oooh..........hallooooweeeenizzzzzz
comin'

I have severe osteoarthritis and had the shingles this past summer and now came down with vitamin D problem. O well life is hard and then you die.........I'm not afraid to die just as long as I don't have to be there when it happens.........growing old ain't for sissies.........and all that jazz.

Peace On
Posted 10/30/2007 12:14 AM (GMT 0)

Hi everybody,

Thanks for your replies...started the supplements today.Think I remember reading about the low vitamins D levels/Ra link somewhere before.  Just thought it was strange to have low vit D when I live in Florida...all the sunshine and all.  Have had my calcium levels checked, they've never mentioned a problem with them, and I am on thyroid meds, for hypothyroidism  Guess the parathyroids are different?

Take care,

Jody

Posted 10/30/2007 2:41 PM (GMT 0)
Hi babyface...I had hyperparathyroidism and it is cramping (like your period). You become very tired. My unfortunate saga is that I passed out at the hospital...I was brought in the trauma room...given a complete mri brain scan............................the doctors waited too long. I had a wonderful female surgeon and my operation was a success. The parathyroids are located in the neck region and they control calcium. Take care of yourself, from Joan
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