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Rheumatoid Arthritis
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Posted 5/7/2008 4:51 AM (GMT 0)
hey guys !!!!! sorry but i dont get computer time anymore! seems everyone in the house is always on this thing and here i am at a midnight slot! lol

well i think i comprehended all the threads but sorry if i get mixed up that happens a lot to me!

first jody whoohoo "good liver!" soo happy to hear you are normal! lol no pbj yet lol well i know you will paint it soon........ sorry you were so sick!!!! i would have sent the chicken soup if i knew!
i slept again all day saturday! becoming a habit i think but i am dead tired after all the drugs i take. rhuemmy told me to take folic with my leucovorin lol just like m23 told sj! your my rhuemmy m23? lol
of course i have yet to do it?! lol but i am taking my mtx and enbrel regularly and do notice a major difference in my ROM and pain levels. i have fingers again and they almost look human!

duck you hanging in there with all the work garbage? i am thinking of you toots and hope all will be for the good in the long run?

bear we must have been both typing at the asame time last last posts and didnt know it...... we could have had a rendezvous ;0

camama i didnt get the invite to come this weekend????? i am not sick! lol i often think how it wasnt til i came back from ca that i met you online and i was so close staying in ranchos bernardos that if we had know each other we could have met ....... and i will probablynever get out that way again so it makes me sad...... so close and yet so farrrrrrrrr.... my eyes adored you ... oh i neverlaid a hand on you my eyes adored you.... froma a million miles away ..... sorry it is late and the brain went to music mode........ lol

joan where the heck are you!!!!!!!!!!!! you too busy to write us here and make us smile? of course i am never here to read your post to smile lol oh i am getting punchy now! ........ plus i keep waking at 4 am so if that happens tonight is going to be a non sleeper ...........

sj i agree i hate taking all the meds and i often say enough is enough ........ hence i d/c my pred on my own and still are thinking about the added folic......

well i best get some rest..... dont know when i will get to this machine again! hubby leaves for italy this weekend....... i am stuck here!!!!!! going to Milan so her best bring home a great i am sorry you couldnt go gift!

did i also mention my youngest is going to india this summer????? mumbai and chenai and i am certain i spelled those wrong..... any ways where am i going????? hmmmm well there is boo in ok or jody in fla or ducks retirement in the carolinas mama in ca erin in jersey.... what is in jersey????? maybe surprise bear in the new den? m23 and sj where are you all from again??? the closest i probaby will get to is joan? umm or if raven travels this way again?????? we could meet? so yep i am going nowhere fast! veranda beach! mylife....... hugs to all yals thanks for the babble
Posted 5/7/2008 1:44 PM (GMT 0)
Yally, I love you girl, you are so full of energy when you post :-) Having a down day? read a post from yally :-) I'm in Colorado..people love to come here, and visit the beautiful mountains. If you are feeling puney like Sj, the leucovorin works really well...I don't take it now, but the MTX really through me for a loop at first and it would be 10am and I would still be in bed! It felt like I was wading in quick sand..so I wonder if that is what poor Sj, is going through? it can be pretty miserable, you just have no energy! eventually you adjust to the toxic stuff eyes and I don't take it anymore, just regular folic acid.

Wow! your family will be taking some amazing trips, I'm so jealous!!! Milan? why are you not going my dear?? get that passport if you don't already have one and hop on the plane with hubby! Is he going for his job? What a fabulous place to go and India as well :-)

My son is rafting in Moab right now, that is the extent of his travels for the year, but its still a fun opportunity to get away for the week with his school.  I've never been rafting, and I think it would be an awesome thing to do!

Sj,

I share your enough is enough...at bedtime my daughter watches me get out all of my pills and I feel like a geriatric, and she says sheesh mom, you have a ton of pills, and I do!! when I look at the small pile, it seems ridiculous even if some are vitamins.  The leucovorin is only taken once per week, the day after, but I know it is still adding yet another pill sad I think what put me over the edge was adding shots of Enbrel.  If everything would just WORK it would be great but none of it seems to work and just get rid of the pain entirely and I think to myself, all of these pills PLUS shots and I still hurt, and I still don't have the energy I did before.. Its not really possible to find a maintenance program for RA!  The only medication that does that is prednisone :) Gosh I miss it *sigh* sad Okay didn't mean to go off on such a tangent!

Happy Hump Day Everybody

 

Posted 5/7/2008 5:34 PM (GMT 0)

eyes   eyes hi everybody I am still alive and kicking though very tired.  i find that it is just about enough for me to make my medical appointments, cook, shop, housekeep and do wash, iron, keep car up and do some exercise.  my knee has improved but not 100% so i am waiting for the rest of the improvement to happen.  have been reading for the book club, sending out poetry and feel very busy though it is not a lot. am swimming four times a week which is good.  also go to a pot luck dinner once a month and have lunch and play scrabble once a week.

yally...sorry i do not have any cats or any animals as i have the darn old allergies.  i do love cats especially as they are so beautifully graceful and love dogs and birds too.  i don't know where the stone ridge area is.  ravena where i live is south of albany, right next to the hudson river. 

will be doing an aarp thing this week and hope the darn old knee gets better!  the prices here are unreal...gas and food pretty sky high so i am staying close to home.

i like the tens unit very much and it is helping with the old shingles mess.

   

Posted 5/7/2008 10:56 PM (GMT 0)
Okay so its wedensday so at 10:00 am I take my customary wedensday morning call from my rhuemy. My labs just came back and the anemia is worse not better so more med changes. Iron goes up to twice a day and no more sulindac. (How are you supposed to get rid of the anemia when you have to feed the vampires every week-we upped it again)
(my rhuemy told me when I started the mtx that only two percent of people get excessively tired and only two percent have to give up their NSAIDS) Well guess who is the two percent!!!

Joan, I hope your knee continues to improve and you get back to your old self.

Momto3 I know what you mean about all of this stuff working. I am pretty much convinced that if I just stopped taking all of it and only kept the pred I would feel just the same as I do now. Instead I have to keep all of this crud and eventually stop the pred. (No one is writting luevocorin scripts for ME).

Yally, good to hear from you-It sounds like you need to plan a fabulous trip of your own.

I am going to West Virginia to see my niece graduate from high school and have her eighteenth birthday. My nephew turns 16 this year-he is getting a car but he doesn't know it yet.
I hope everyone has a wonderful week.
Sj
Posted 5/8/2008 12:21 AM (GMT 0)
wow i got on again!!!!!! whoohoooo...... and ducky is missing the high post levels! i can hear the police coming........

joan, i am gonna still picture you with cats .... sry but it is my imagination and that is what i have for you..... i think i reference your personalities with peps i have come across over the years and for you joan it is this lovely lady with cats.... with a touch of the comix maxine? lol because you have a great sence of humor!!! i will have to look you up when you i go again....... my aunt and 2 counsins still live there.

m23 colorado.... been there done that! but a long time ago! you see i was a boyscout(kinda?) pre sex change lol.... now that will start a few good rumors!!!! hahaha .... dont ask...... anyway....and i went to philmont and climbed the rocky mountains..... in colorado.... when i was like 14 or something.... do you know where philmont scout camp is??? mt baldy, tooth of time? etc....

sj i am stuck here...... hubby is also going to oklahoma, oklahoma where the sun shines something on the something yadda da da da etc. forgot the words. so boo will have to meet up with hubby and again i will be home! ugh...... cant afford for me to go to. flight is like 550 and with gas prices i dont have tht to spend on travel.......

babyplace sorry my phone died! i am a bad girl i didnt charge the phone......

well i am exhausted - what else is new- but i was up all night watching the kardashians (sp?) til 2 am and got up at 6 - just took off the pool cover in the pouring rain..... so i am fully spent and ready to veg!

i love you all and wish we all were a stones throw away...... imagine me as you neighbor lol scarey huh............ my nickname isnt tigger for my lack of energy...... which i now have lol but you all know me as yally so lets keep it that way.. hahaha

hugs ot alll x o x o
Posted 5/8/2008 1:20 AM (GMT 0)
Yally...Never heard of it!! But maybe my husband has since he is the Colorado native..I'm from Kansas actually but have been here going on 8 years now.  It's nice but I still don't see why people just HAVE to come here you know?? It's just a state! I'm sure you would make a fabulous neighbor. :-) I still don't know my neigbors out here in the middle of flippin nowhere! We moved from a larger town (gosh I miss my old neighborhood)  to a small rural area and its the pits let me tell ya! nothing for miles and endless driving, and the smell of cows eyes But thats another story for another time :-)

Joan..thats cute about what Yally said with the kitties..my daughter is an avid lover of cats, and sleeps with two of them on her bed each night..I wonder if she will be a cat lady when she is older :-)

Since Ducky is not here and we have been able to post like crazy, I'm really starting to get concerned..has anyone heard from her?

 

Posted 5/8/2008 2:06 AM (GMT 0)

Hmmmm....Yally was a boy scout.....sex change??????   Our thread just got SO much more interesting!!heehee...  I know you really just hung up on me dear....it's ok...I've heard the old dead battery excuse before,  my kids use that one on me all the time lol.  Did you get the pics I sent you?  So, if you picture Joan like Maxine (whom I LOVE by the way! That stuff is hillarious), you can picture me baking in my kitchen, wearing flip-flops, surrounded by kiddos, chocolate and coffee nearby lol.  Oh..we have two dogs and a cat, too, they're part of our family.  Seriously though, I really do wish we were all a stone's throw away from each other, we'd have so much fun!! Can't think of any neighbors I'd rather have. oh mom, the sweet smell of cows...reminds me of home in Wisconsin...we were surrounded by cow and pig farms...now THAT was pleasant on a hot summer day.. We were out in the boonies too, and I don't think I'd like to go back to that, but even though we left there over 20 years ago, I still miss the people....it's just not the same in the biggger areas, or not here anyway.  Florida is so transient, people just don't connect the same way.  So if anyone wants to plan a trip to the sunny south...just let me know... I LOVE company..and I pray that someday we can meet face to face...  Sj, sorry about the labs...I can imagine how frustrated you must be....I get discouraged and I haven't been at this near as long as you have....i just keep praying something will all the sudden kick in and we'll all feel better...Rose colored glasses perhaps??  Probably, but it is my hope for all of us.. Hate all the meds, but thankful for them at the same time (oops, what happended to my font?? guess I hit a funny button) Sounds wierd, but trying to stay positive....like I said before...going to write a book..How to go from everyday housewife to pharmaceutical junkie in 12 short months....lol.  

well, time for bed....thanks to Yally, I'll probably have some strange dreams....haha!  Goodnight all,

Jody

Posted 5/8/2008 1:50 PM (GMT 0)

Morning everybody,

Jody, I would LOVE to have you next door :-) people are pretty transient here as well since we have several rentals on our block even though it is a new neighborhood, people are always coming and going.  We have a nice couple across the street and hopefully they will stay another year but you just never know.

So I have mentioned that my husband and I will be starting this workout class and yesterday I thought why not get a head start so I won't be so sore? Well....I decided to lift my puney 5lb weights and today I'm so sore I can hardly move sad My entire chest and upper arms HURT! But I must keep going because I don't want to end up like this when I start the class, I can't be puney then tongue I tell my husband this and he starts feeling my upper arms...as if my arm flab is sudenly going to dissapear overnight eyes

Thinking about everyone.

Posted 5/9/2008 10:57 PM (GMT 0)
Is that time again guys.. look for V59
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