Not new....but been away

CrohnsMom

Regular Member

Joined : Mar 2003

Posts : 57

Posted 6/1/2009 10:51 AM (GMT 0)

Hi. I am not new to HealingWell. People here helped me through my daughters fight with Crohns. She has grown up and married and now I can work on me. I have RA, Lupus and Fibro. My main fight now is depression. I have been alergic to almost every med I have tried. I am losing more days every month. Symtoms were in my upper body for years and I could splint or sling and go about my way. For the last year at least joints in my legs, hips, ankles, etc are now bad too. Today will be day 3 with no walking. My husband says he understands but I know he really doesn't. He must think he has the most boring, lazy, complaining wife. We have been together for 20 years. I can feel depression pulling me down. I try not to let it but the fight is getting harder. I guess I could use some advise. I have a great Reumy. We continue to try different drugs. Not his fault my body is stupid Thanks for listening.

Rhonda

golitho

Veteran Member

Joined : Sep 2008

Posts : 1670

Posted 6/3/2009 4:24 AM (GMT 0)

Hi Rhonda, welcome back to HW. What a lot for you to deal with. I get overwhelmed with the cross over conditions we all seem to suffer from but not being able to walk sounds very major. Can you try the new biologics with lupus? They have made a huge difference to so many of us here with RA type symptoms? Nearly all the meds have horrible side effects but I'm on humira and apart from local itching don't seem to suffer from any other side effect. If you can't take anti depressants have you tried alternatives? St. John's wort I read about on the depression site, although some said it was useless!!! Depression is the pits. Also the site for chronic pain is very good for moaning on, so many people there who are fairly housebound with pain. I use it too. But please moan away thats what we're here for, great place to get out all the frustrations of these dreaded conditions...welcome again, golitho.

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