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Ugh..work again? Just have to vent..sorry!

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Rheumatoid Arthritis
Exhausted and in pain, keep letting the house and other stuff go by the wayside.What do you do/suggest?
Get up and move even though your tired - 0.0% - 0 votes
Fake it til you make it - 0.0% - 0 votes
Get back in the game and stop waiting - 0.0% - 0 votes
It's ok to feel lousy sometimes - 50.0% - 2 votes
You can have a day or two but after that you have to pull yourself up and get out there - 50.0% - 2 votes
Unsure, but sending hugs anyways - 0.0% - 0 votes
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Posted 8/4/2010 12:46 AM (GMT 0)
eyes  I start the new school year tommorrow, so my physically taxing job for the summer just ended. Mentally and emotionally, along with physically I am not ready for this year. I needed a break, I had two days. What did I do? Nothing. I feel bad about that. I wanted to get the house in order, spend time with the kids,etc. I just didn't have the energy. My joints , and down my arms with the shooting and sharp stinging pain just enveloped me all last week. That's no excuse and I feel like i made it one.

I have my rhuemy app. on August 20(with the new one) and the new pr. is Aug. 23. I hope and pray they can help me. My husband said the other night that he is sad because I've gone downhill so far in the last year. He said he misses the vibriant, carefree, run around and still do more person I was. He just looked so sad. It made me feel bad, and guilty. cry   just want some energy back, and to lose some of the pain. I know I probably won't be pain free, ever, just like most of you. I just want some of my life back. I sound like broken record everytime i get on here, I know. I'm sorry for that. I guess even though I dread going back tomm. I know I will either be taxed to the point of exhaustion, or have no strength to come to the key board to vent. WOW..even more of a pity party than I ever meant to go to. nono Thanks for letting me vent. Heather

In need of HUGS sent my way. :-)

Posted 8/4/2010 1:27 AM (GMT 0)
HUGS being sent your way.

I really hope that things get better for you and I trully believe that they will. The right doctor and the right meds can go so far in getting you your life back.
Posted 8/4/2010 2:18 AM (GMT 0)
sjkly,
Thank you. I'm crossing my fingers that these will be the right Dr.'s to at least get me on the right track. Gentle hugs sent back to you. Heather
Posted 8/5/2010 12:45 AM (GMT 0)
Hugs being sent your way!! for today and tomorrow!!  Best of luck
Posted 8/5/2010 12:47 AM (GMT 0)
Take it easy Heather, we all go through flares and it sounds like you're in the middle of one. The tiredness can be so debilitating on its own never mind the pain.
I've been suffering from a sort of flatness since my last major fare in April, so I can no longer keep going to bed or doing nothing. Like you I am back at work and I'm finding it hard. I went to my GP and she refered me to a grief councellor to help me cope with the loss of my old self! I can't say its helping yet but its interesting.
She also refered me for hydrotherapy. This has been extremily good. Gentle exercising under water has increased my stamina, I feel fitter and stronger. My OT told me to change tasks alot so I'm not over using any particular joints.
I'm doing visualisation and relaxation techniques to try and take my mind off the pain at night or while I'm walking, sort of try and take my mind of it. My sister suggested looking up rather than down when I'm outside, look out at the world.

Talk to your doctor about upping your pain meds, pain can be exhausting, but make sure you talk of all your symptoms when you next see your doctor and don't give yourself a hard time. Don't feel guilty you've got a horrible disease, Pace yourself and go to bed when its all too much. I often come home from work and go to bed for a rest before I can cope with homework, dinner etc. My kids have had to adjust, my last flare was massive and none of us want to go back there.

Hope some of this helps, as you can see I'm trying to empower myself, learn more about RA and the treatments, to see whether it helps me cope.
Take your husband with you to the next apptment he needs to be informed about RA too .

There you are, hopefully something strikes a chord, but its ok to have down times, comes with the territory of a chronic disease, golitho
Posted 8/5/2010 4:28 AM (GMT 0)
TayIsa, Thanks for the Hugs. Tommorrow will be the real test. I have to re-put my stock away that my delivery driver's dropped off. It will be scattered all over my freezer, walk-in, and storage room. Nothing together, nothing rotated. It will be ok, though. None of my staff comes back til monday, so I can do it at my own pace. smilewinkgrin

turn golitho,

Thank you! Thank you! I think sometimes it's good to feel like you have permission to just have blah days. I forget that sometimes. I let the guilt flood in, and let all of the could of should of's take over. I appreciate the fact that I am not the only one that has days that I just can't do it. I am not so naive or conceited to think I am the only one that has rough days that knock them on their feet, maybe just that I don't seem to be dealing with it as good as I had hoped I would eyes . The one thing I did take from my last Rhuemy was that pool therapy could help. I hate bathing suits. Never got the baby fat off, even though it's been almost 8 years tongue   No time like the present. I'm sure that would make a big difference to how I am feeling.

I guess all in all I'm at the mad point. I don't want to miss out on the important things with the kids, or life in general. I guess that's my choice though.

You gave lots of good advice, Thank you all for the support.

Tommorrow will be a better day. Have a pain free one. Heather yeah

Posted 8/6/2010 4:31 AM (GMT 0)
Some people in the pool wear tshirts and shorts rather than suits. They don't mind.
Don't feel guilty. Its not your fault you have a disease.
Its just life. If we feel guilty you get stressed and stress only makes things worse. So NO Guilt!

Just work around things, accept you can't do it all, you are not the person you once were. You have to keep changing tasks, not overusing any one joint, important to move boxes to your limit. Then take a break, go on a walk, do something else, rest, then go back to the boxes. If we tire ourselves we end up flaring eventually and just making everything worse. You can no longer just push yourself through pain, you'll end up on more prednisone! Believe me, you have to pace yourself, take it easy or you'll regret it.

OK enough of the MOM routine. You can tell I've suffered the consequences of denial! 4 years later and I'm a mess!
Don't go there...golitho
Posted 8/6/2010 7:55 PM (GMT 0)
smilewinkgrin  golitho,

ok I won't let myself feel the guilt. I did overdue yesterday though and my sciatica is acting up. I took it easy today and had the choice to go in and finish the rest of the stock before more comes in monday. I chose to stay home(i never , ever do this), after re-reading your advice, I decided it was for the best. I rested up, and feel somewhat better. Now when my kids come home I feel like I can at least spend the weekend with them before next week's real challenges come. I am happy that I will have this time turn . I know they will be too!! Now Monday when I have the other deliveries, I will have my staff there to help. Then it will be a lot less stress on my body. Thank you, Heather

Posted 8/7/2010 12:20 AM (GMT 0)
I'm so glad you listened to me. I feel happy that you backed off, I wish someone had told me off at an earlier stage! I was so into trying to work through pain and tiredness. I ended up in hospital with a massive flare for 8 days and 3 grams of prednisone later! Now my teeth are baring the brunt of too much prednisone.

One problem always seems to lead to another. We seem a bit like dominoes at times!!! Anyway best wishes, golitho
Posted 8/7/2010 5:27 AM (GMT 0)
idea  Golitho,

 Well I ended up at the er with another herniated disc. I am glad I listened to you though. Not to be all gloom, but if I had gone in today I know it would have been so much worse. Instead I had a good night with the kids, lots of fun. My joint pain wasn't nearly where it usually resides at a 8. I was more like a 5. That is unheard of for me. So even though I way overdid yesterday, I had today. Hope you are doing ok. Take care and Big Gentle Hugs sent your way!!! smilewinkgrin Heather

Posted 8/7/2010 6:56 AM (GMT 0)
nono  My great-grandmother, my grandmother, my father, and now me.  RA has finally reared it's ugly head at me.  My grandmother used to say, "You have to just keep getting up". Boy, oh boy, do I know what she means now. So don't you give up. Get up. And hang on in there.
Posted 8/7/2010 10:03 PM (GMT 0)
cry  Luckisalady,

I am so sorry you have to bear the burden of your family tree. It sucks, is all I can say. I don't have it run so closely in my family. My grandmother either had psoratic arthritis, or RA. She said you can't change it so why worry about it. See her sayings were well.... just illinformed. Lupus is really the prominent auto-immune disorder that runs rampidly through my family.

I know, I know I need to keep moving. See that's why I keep posting here. Sometimes I just need a kick in the but to keep on keepin on. It is so much harder to try to move when I have layed dorment for awhile. I appreciate your help, and hope you have a pain-free weekend. Heather

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