Songwriter,
I know I think we will get there eventually. I hate to start the meds over. All of them take so long before they start to work. Back to square one.
BADDAY,
haha!
I'm trying to be patient and hand on. Boy what a ride it is, huh. I think the predisone originally helped the most too. He hasn't changed the dose since November just added something else like the sulfur and then the plaq. We will see I guess.
Jo I am so scared of what i have read and heard about
the biologics although i know i am running out of options. Most of you have said methotrexate. I am going to look it up because i can't remember but is that the one you have to do with infusions? Ugh i hope not!!
dee,
The only reason i didn't want to tell my Dr. is because I was the one who asked him to take me off the sulfur and put me back on the plaquenil because it had helped better and now I know the headaches were from the rotator cuff. I know I have to tell him though. I can't keep going like this and the meds now are not helping, so what's the point, right? I hate to here that you are going through the same thing. I hope you can find something that works for you as well.
Christina,
I would like to get to manageable pain. I kind of felt that way when i was first taking my meds. I would still have a day or week that was very painfull but the stiffness was a lot better.Then when it went south: First my knees started getting hot again(like a fire through my joints whether I was standing, sitting, whatever), then the stiffness in my neck and now back almost worse than when I first started, everywhere. Or maybe it feels that way because I was in less pain for awhile.
Thanks for all the info. Was anyone else scared of infusions or shots of the other medication? How long before you saw any improvement? Ugh I'm nervous!! Take care Heather