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Posted 11/1/2011 2:48 AM (GMT 0)
Dear All,

My rheumy asked me to stop Humira due to my future cervical procedure. I should take the injection today, my consultation with the specialist is on following Monday, I don't know when will be the procedure done yet. It may be few days from the consultation app and then according to my rheumy I should wait with next injection until my doctor's check up and when everything is OK. It can take around 4 weeks from today (when I should inject Humira) depending on when will be my check up after the proceedure (which I think can be after around 2 weeks as I had to come 2 weeks after biopsy for the check up).

If someone from you needed to stop Humira - please let me know when the inflamation started to show up or other RA symptoms? I am calling rheumy tomorrow morning I want to check with him if it is not to early he is taking me off the medication... I would like to check with you also how did you feel when you needed to stop Humira due to any surgeries etc.

As much as I am worrying latelly about the Humira side effects the same I am worrying about not taking it... OMG what a world...

I am awaiting your replies, thank you!

Posted 11/6/2011 12:56 AM (GMT 0)
I don't have any info for you on stopping Humira, Bstrong. I hope you don't have a huge flare or anything. Hope someone w/experience comes along with some info to help you. Just wanted to check in with you. Sorry you have to go thru another medical procedure. Hope everything works out well for you.

V
Posted 11/6/2011 3:58 PM (GMT 0)
Hi Vannie,

Thank you for the response, I didn't get any replies on that cry   But so far I am doing OK, it is almost 1 week without the injection. I am nervous about it but try to not think and stress -  whenever flare come will come, can't do nothing about it. Sometimes I am dreaming a little bit ;) about not having RA anymore, maybe it is gone??? I know it would be too good to be true but nobody charge us for dreaming right?? ;) I just wish I would not need to take Humira anymore and don't be worry about all these side effects and all that crap... It is just my way of forgetting hard things which are going on right now... :)) I even had my period 3 days ago which always trigerred flare ups.... Who knows maybe plaquenil does it thing too ... Tomorrow 2 appointments EMG and consultation for the procedure..

Thank you Vannie!!! Have a good one!

Posted 11/7/2011 3:50 AM (GMT 0)
Will be thinking of you, Bstrong. I know you will feel much better once all of this is behind you. I think about the side effects of Humira now and then, but honestly, I couldn't do much of anything w/o my meds.

Best Wishes!
V
Posted 11/7/2011 3:50 AM (GMT 0)
Will be thinking of you, Bstrong. I know you will feel much better once all of this is behind you. I think about the side effects of Humira now and then, but honestly, I couldn't do much of anything w/o my meds.

Best Wishes!
V
Posted 11/7/2011 5:23 AM (GMT 0)
Hi Bstrong, I went off humira fo my surgery and didn't notice it at all. I was still on mtx but I had to stop my mobic as well. I felt surprisingly well RA wise.

Yet when I had to stop the lot for pneumonia, I noticed after 2 weeks.

I think the mtx holds you up.

Good luck with it all.

The first week after surgery is really hard, watch for infections, I caught one day 3. Keep a check on your pain levels. I needed to up my meds to get me through. I think the lack of movement meant my joints were ok. I shuffled around rather than my normal working, walking body.

Lying down a lot!

You get sooo tired.

I was told to stop when I was tired. Seemed to help.

I feel so much better now.

Hormones can upset you too or the lack of them, can affect your joints.

I was put on a low dose HRT.

Best best wishes, golitho

Posted 11/10/2011 5:49 AM (GMT 0)
Hi golitho, thanks for the response - I do not take MTX so whatever it is - maybe the rest of humira in my system - it is keeping me away from big flare up... still.. thanks God!

It will be 2 weeks without humira on following Tusday, procedure scheduled for this Friday - cervical leep. The doctor who will be performing the procedure was veery nice and I mentioned that I am a little scared that I needed to stop my RA medication so she tried to find the closest possible day for the procedure - thanks for people like her. At least people were nice and understanding and I realy feel lucky with the doctors around me. It is enough that we need to deal with the health problems - at least everything around is going smooth so far..

Then just keeping fingers crossed for no infections or any complications and no more procedures like this one...

Glititho - I am trying to rest a lot too, taking naps at the afternoon it seems to help.

Vannie - thanks for the support :)

take care everybody!

Post Edited (Bstrong) : 11/9/2011 11:10:31 PM (GMT-7)

Posted 11/10/2011 1:32 PM (GMT 0)
All the best to you B! Glad you have a good medical team on your side- let us know how you make out.
Posted 11/19/2011 3:48 PM (GMT 0)
Hey,

I am still doing fine without Humira - my last injection was on October 17th wooow I am sooo suprised... Also we decided with rheumy to lower the Prednisone from 2,50mg a day to 2,50mg every 2 days. First time we were trying it failed, I started to flare up, but second time which was short before scheduled procedure and stopping Humira seems to work. He even used magic word "remision" which I wasn't sure I am experiencing as I was still taking other medications for RA but was feeling really good.

I was trying to find information on - how long Humira stays in the body - I couldn't find anything... I am sure every person will react differently after stopping it.

I will see rheumy on Wednesday for check up.

Cervical leep procedure went very well, no signs of infection so far (I think) check up Nov 28th and then if everything would be good I could start Humira again. But if I will still feel like I feel now I would like to try a little bit longer without Humira and see how I am doing.... I will check with rheumy what he thinks... I am sure he will find small inflamation here or there as he always sees something I don't see ;) 

 

Posted 12/12/2011 1:07 AM (GMT 0)
Hey everybody,

Little update on my Humira break... there was no miracle... shakehead   but I didn't end up with the big flare also - thankfully... I was off the Humira for 1 month and almost 2 weeks, my doctor said Humira stays in the body for around 4 weeks. I felt more tired than before when being on Humira and the pain was starting very lightly and slowly in my knees short before my injection 1,5 week ago. Now the pain in knees is almost gone, I will take my next injection on Wednesday and everything back to "normal". My rheumy said that if I will be doing well on Humira for 5 years we can try to take me off and see how I am doing but not earlier. 5 years... not very optimistic... and he reminded me that this desease is in my genes and will not disapear just like that..

Thanks for the reminder Doc ;)

I started to exercise yesterday just very light - treadmil walking and plan to go every other day - that is my come back to the gym after around 2 years... feels nice :) I would like to just kill this RA somehow, but I don't know the way yet....

Hugs for everybody on this forum!!!

Posted 12/12/2011 4:00 AM (GMT 0)
H, Bstrong,

Thanks for the update. I came here tonight to see how you were doing. Wonderful that you can start exercising again. Try not to overdo!
Happy to hear things are basically going well.

Blessings,
Vannie
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