trying to get off prednisone again

Yeah it is so good to be on it, but the trouble it causes...

I am amazed Msouchie that you lose weight on the pred. I thought it made you gain water weight fairly solidly. Momto when I've come off it before it takes a month or so before you lose the weight but it does go.

I'm hoping thats the case anyway, I feel so unattractive, hobbling along with my extra weight and moon face, often with a steroid flush, often with strapping on my feet sometimes with my wrist braces...just not the look I had in mind for a forever fit, active, healthy athletic mom I used to be!!!

Hard to match the reality with who I was such a short time ago.

Sad isn't it? golitho

You’re Welcome Momto3.  You’re certainly having a bad time of it.  Do not worry.  You have every right to whine.  We all do sometimes.  In case you didn’t notice, I stick my whines in other people’s posts when I need to.   

Yes, I’ve had Type 1 D since I was dxd. at age 3.  We didn’t get much help with info back then and for many years, so it was tough.  But I’m okay with it for some time now since I know what I need to do for me.  Yes!  That Pred, especially high doses like 30 and 40 mgs. are hell  for me while trying to control my sugars.  Plus a lot more Insulin.  I’ve been on just 10 and 7 gms. for quite some time now, so I can easily control it.  The Medrol injections are bad for me for about the first 2-3 weeks.  Then also easily controllable.

They did every test?  That is amazing that they did not find something.  But I think a person very well knows when something is wrong with their body.  The Docters’ just haven’t figured it out yet.  Keep at them and they most likely will.  Everybody loves a mystery. 

Lucky you.  My hair fell out in handfuls when I was younger and on MTX, even without Pred.  Now it just falls out little by little but it is still noticeable.  Hey, we all differ in many ways.  I use volumizer shampoo or conditioner and then I curl my hair so it looks like I have more. LOL!  My Sis is the same as me that way.

Yes, I love blueberries and other fruits.  Good anti-oxidants(and extra Insulin).  I didn’t know they were an anti-inflammatory too.  Nice!  Thank you!  I’m really happy that my inflammation is gone also.  I hope that it stays away for some time. 

I think my hubby used to get acid reflux a lot also.  Is that bad burning in the tummy and chest and throat?  If so, his Dr. prescribed Pantoloc for him and it works good. 

Good job on the 2 lbs.  It’s a start.  Every pound lost is helpful towards your health.

Yes, Pred. is good but as we know, it’s also Bad unfortunately.  Have a pleasant Friday Momto3.

Speaking of hair..my daughter is 15 and obsessed with growing her hair longer..does not have any issues with hair like we do, BUT does use a product called Mane and Tail (think horses ha ha!) it is a shampoo and conditioner and you can find it at most drug stores.  It is supposed to help your hair grow thicker and longer   Since I have some grey and it doesn't say it is for color treated hair, I have not used it, but her hair looks great after using it.  Keep in mind she is young, doesn't use all these insane meds etc etc but it may be worth a try.

Trust me, when it comes to inflammation if there is a food or anything for that matter stating it will reduce or get rid of inflammation, I will try it at least once out of desperation! Plus blueberries are great for the skin

Yes, that is acid reflux.  It is something knew for me. I may have to go in and get something prescription.

Have a wonderful weekend!!

Well...I have eaten a ton of blueberries and my brain/memory are still the same.  There is a commercial where the guy is looking for his sunglasses, and he searches and searches, and in the end they are on the back of his head, that is me, I am *that* person

Gastroparesis is often a diabetes related issue, but many of us have it and not diabetes.  There are a couple of meds, Reglan and Domperidome out there and I have taken them, but now just manage with diet.  When I was on the pred, I could eat almost what I wanted. Now without pred, I am back to pureed foods etc.

We have had a couple of wonderful days here, but soon it will be back to snow! But, Spring is not far off!

No, pred is not used for the gastroparesis that I know of, but my symptoms were alleviated for whatever reason while taking the 10mg.  I could actually eat food that wasn't pureed, without feeling like I have a bowling ball in my belly!

The puppy is soft and lovely and smells much better as well!

I guess if you have more than one med causing hair loss, it is going to happen. That is what was going on with the pred and the MTX for me.  But come to think about it, way back in 05, I had the same issue of hair coming out in the shower in clumps, same as now and I wasn't on any meds and didn't even have RA yet. So, part of mine could just be me!  Can you use one of those special shampoos for thin hair? you get them at the hair salons?

As far as I am concerned Spring is just around the corner!! I am ready for cute shoes and flip flops!

Ohh yes Momto3, I believe we lose or gain an hour but I was tired earlier, so I went to bed at 7 p.m on Sat. and woke up at 10:50 a.m Sunday morning, ready to go.  I didn't miss the hour loss. 

Yes, you may be right that nothing will probably help with hair loss when we have that much against us.  I eat the right stuff plus vits.  My nails and skin are fine.  That is odd that you lost that much hair before RA and meds.  Perhaps a lot of stress or if you have thyroid problems?  Or the genes too.  My Kids have their Dad's hair thickness and full hair.  Lucky them.  I don't think the hair salon potions would be worth the money.  I did use "Herbal Glo" many years ago when I was just on MTX and Indo but it wasn't cheap back then.  I lost track of it.  It did make my hair somewhat thicker. 

Good that your puppy did well with the shampoo and enjoyed his/her bath.

LOL!  Spring soon indeed.  The temps are good.  They did say that we'd have one more snow or two snow.  Oh well, that's okay.  Have a sunny day.