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Posted 4/9/2012 5:40 AM (GMT 0)
it might be just the holliday's or the fact i'm in a huge Flare up

But i am having a lot of trouble accepting Being Dependant

i should be used to it as its been years But just seems latley Everything is adding up

simple things like going to the store,Wednesday i wanted to go then thursday then on and on till finally Monday i get to go to shops.

i want to clean out a cupbord wait or thats fine it dosn't need it

i am getting So frustrated having to rely on other people to do the simplest things

i find im getting snappy and almost Demanding things or giving sarcastic replys then kicking myself after

this flare up is Huge and to add to it i keep hurting myself the other night i rolled over in bed and hit my head on night table nearly knocked me out, i have a huge Sore Lump on my head.

how do i cope with long term Loss of independance

Posted 4/9/2012 2:27 PM (GMT 0)
Maybe, seek out counseling...For me (as I have so many autoimmune) it can be hard
to find that you can't do something that you could do...Cross-Stitching is one of my favorite
things to do but I just can't get it done as good as I used to, so yes it's all very frustrating
but the good thing is that when this flair is over you will be able to do those things again...
Keep hope that a new medicine will be found that will be able to help you better in
this, yes that will give you a struggle but keep hope that one day your life will be better....
Many many well wishes to you and I hope this flair passes for you soon and maybe look into
counseling, but your not alone in that thinking either and maybe let your RA Doctor know
that your in a flair...
Posted 4/10/2012 2:44 PM (GMT 0)
How are you today? Hope the flair is easing up for you soon...
thinking of you...
Posted 4/10/2012 3:51 PM (GMT 0)
BadDay, I'm sorry to hear you are in such a flare! Flares are miserable that is for certain! Can you call your rheumy and see what he says? Maybe a different med or something to get you over the hump? I hope you feel better soon!
Posted 4/11/2012 2:55 AM (GMT 0)
Hi yep can't walk at all today knee lockes up,getting a bit better on the frustration side of it tho, Thanks for Support
Posted 4/11/2012 3:10 AM (GMT 0)
Call into your doctor...and hope things improve for you...
Prayers
Posted 4/11/2012 12:05 PM (GMT 0)
Another day - ankles Ach, Knees Ach,Legs Hurt Back Hurts,Lower Back almost Butt Hurts-right down at the Coxix (tailBone)  Hands Ach , Little Finger Hurts ,Jaw Ach's, Feet Hurt, Heals Hurt, Head Ach ,Tired    cry
Posted 4/11/2012 5:25 PM (GMT 0)
So sorry to hear you are in the middle of a bad flare. Missed you- glad you popped in though!

I remember the loss of independance was the worst part of a flare...   :(

Hope it lifts soon! Keep us posted.

Posted 4/14/2012 10:41 PM (GMT 0)
Have you talked to your doc, BadDay. I am so sorry you are suffering. You need some medical assitance to get you thru this bad time.

Hugs,
V
Posted 4/15/2012 5:41 AM (GMT 0)
shocked  Flying Solo at moment as since my Rhumy left i haven't reschedualed with the other one here as we are waiting to moove i dont want to wast time going thru it all with someone then re do it when we moove.

so just dealing with local GP he's been good doing Accupuncture on Back that helped.

and ive increased both Pain med and Prednisone

we are due to moove next week then i'll hunt down Rhumy's over there,

one good thing it is a city so there are more choice of doctors instead of only 2 i think there is 10-20 Rhumys to choose from and not as long waits for appointment.

same with the Heamatologist i have been waiting 5 months so far still got ?? months to go but i rang one over there and they said 3 weeks max wait. so i'll be able to get that on go also.

just gotta get thru this Flare

Thanks

Posted 4/16/2012 4:42 PM (GMT 0)
Oh my Badday, is that all you take for your RA, pred and pain meds? no MTX, bio's or anything else? No wonder you are in so much pain!! I hope your move goes quickly so that you can find a good rheumy that you like and get on a treatment plan so that you feel better! It sounds like there are good options where you are heading!
Posted 4/17/2012 1:18 AM (GMT 0)
Hi no i Do take MTX as well but i can control the prednisone myself the MTX is a set dose i am suposed to try to increase it but everytime i try all i do is throw up smhair

and the Biologics well thats another story - i have tried 1 still waiting on final report of damage.

Posted 4/17/2012 1:54 AM (GMT 0)
Sure hope the move goes good for you and don't you over do things....
the stress alone might be making your flair worse than normal, so hopefully once
your moved in you can start to relax and feel better...
many many well wishes, okay...thinking of you...
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