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Posted 6/10/2005 3:00 AM (GMT 0)
hi everyone! im new in this board. im 31 y/o, married with 2 kids and i'm from Philippines. im suffering from MVP and Costochondritis..ill be posting more next time. thanks! God bless! yeah
Posted 6/10/2005 10:50 AM (GMT 0)

Welcome to the forum jhet -

When were you diagnosed with MVP and costochondritis?  I am 31 years old too, but I have 3 kids, 8, 7, and 6.  I was diagnosed in March with Psoriatic Arthritis and Spondylitis, but have had it for almost 2 years now.  I am currently taking 50 mg of Enbrel weekly and it seems to be helping ALOT!  Are you taking anything for the MVP ro costochondritis?  I am also 1/2 filipina.  My mom is from the Philippines.  :-) Hope to see you in the forum again, this is a great group of people, they will give you lots of support and great advice! 

Happy Weather, Warm Hugs and as always - Best Wishes - Ducky

Posted 6/15/2005 5:01 PM (GMT 0)
Welcome jhet. I am 30 y/o from Canada. I have 2 kids age 9(almost) and 7. I was Dx about 8 years ago with psoriatic arthritis and am currently taking 25 mg Enbrel and 200mg plaqenil. I was just told that I am doing great and the drugs are working wonderful. Keep on posting. We would love to get to know you better.
Oreo
Posted 6/20/2005 5:57 PM (GMT 0)
hi there jhet,
nice to hear from you. i bet having MVP makes the costo feel worse eh? there is a nice thread on chostochondritis with some good posts on relief at home "cures" like heat and rest and stuff. but nothing really makes it seem to go away completely. from RA i developed MVP and 2 more valve problems in the other chamber...and let me tel you....the inflammation from costo really makes me feel those painful heartbeats even worse. i found watching my positioning to help ease it a little and also not talking for too long (sounds silly but it helps) i use lidoderm patches and heat on the chest and sometimes menthol. taking lots of meds now. do you have trouble breathing at all? i know this is a pain. it's so uncomfortable and puts a damper on lots of things. hopefully you might pick up some good tips from the peeps here. we all seem to be on the same page! are you on any meds from your doc? wishing you well.
erin
Posted 6/20/2005 6:03 PM (GMT 0)
wait a minute here guys! i want part of the club too! feeling left out of the " 30's with kids from phillipines" :)
just kidding
what would my domographic look like? hhmmmm
hi...24 y/o...6 cats....2 inside...4 outside....2 stinky litter boxes....one crazy mommy....
tee hee hee
sorry, was just amusing myself//// no one's home and there's no one to talk to. everybody at work.
i must be feeling better if i'm making myself laugh.
this is pathetic
perhaps i'll erase this post
"e"
Posted 6/21/2005 2:05 AM (GMT 0)
HEY, Erin! Better to be YOUNG than OLD....I'm gonna be 35 in July!! :) All you young'ens are making me feel ancient! tongue

It's lonely when your laid up.....so, no reason to exuse talking to yourself (and man have I been talking to myeslf a LOT these last 4 weeks! Okay, just feeling sorry for myself today - just ignore that comment.)

MVP is a heart valve condition, right?

**

Posted 6/21/2005 2:59 AM (GMT 0)
tee hee hee hah hee!
not when i see my 85 year old neighbor zoomin up the block like a bat out of hell! we should all get together for a race! see who makes it to the corner first! i've got dibs on ducky! she deals with planes all week so she is probably very "propelling" hi DUCKY!!!! {{{{{{{{{{{hugs}}}}}}}}}}}
no no CaMama...do you have cats? it's funny cause i've been talking to philapee (Pea) my kitty.... and i swear she understands. maybe it's the steroids? my honey's buddy is a neurologist and they were hanging out saturday and he was telling all of my steroid adventures from the week! it's like a really weird trip! everything is sparkly! and then i get the creepy crawlies!!!!! freaky.
well, at least you probably give yourself good advice right? i mean, you're very good here! so you wouldn't be so bad if you chose to confide in yourself for a few weeks! :)
ooh yea mitral valve prolapse = MVP or in man-speak "most valuable player " i suppose. can swing both ways depending on the profession. i wish i made their salary though!
hoping to sleep tonite...i'm back at home, sad, but will see my honey friday afternoon after he gets off of work. we are seeing Bob Dylan in Montclair friday nite! i love me Bobby! as long as i can breath...i don't care if i have to crawl there! MUST GO OUT!!!! hey, maybe i shoud get a wheelchair for a guaranteed seat. i think it's standing room only..umh, can't stand? gonna have to figure this one out.
going to try to cool down....hearts beatin fast and overtired i think.
ROID RAGE ROID RAGE!!! AAAAAAAAAAHHHHHHHHHHHHHHH
xoxoxxox nighty night
erin please excuse the silliness.... i know not what i do
Posted 6/21/2005 3:45 AM (GMT 0)
tongue  Recalling my past mania from steriods....I will excuse you - but what is my excuse now that steriods are out of the picture? ha ha. The one thing I remember the most was feeling like I was inside a glass box that was getting thicker with fog every day! sad

As for giving myself good advice....I can sometimes dish it out well (don't know where it comes from), but things are easier said than done, right? When it's just me and the depression, or PMS, or whatever on top of being holed up in the house sick YET AGAIN....all I get is down and paranoid and very very lonely....sounds like fun, eh? 

Uggghhh, there I go whining again...like I said, just ingnore me today! :-) Gotta just brush it off and say HAPPY TO BE ALIVE, just don't want the sickies anymore! Or, if you've ever seen Ella Enchanted...."Just grin and bear it..." I am trying to stick to that right now, but I'm failing miserably (note the complaints in paragraph 2! hee hee.)

Erin, I hope you get some sleep tonight. Actually, I hope we BOTH get some sleep tonight - we both need it desperately! Oh, I saw that Lindsay Lohan girl the other night in a Freaky Friday remake with Jamie Lee Curtis. Of course, you are too YOUNG to remember the original, I'm sure, with Jodi Foster! HA HA HA.

Sleep well.

**

Posted 6/21/2005 3:57 AM (GMT 0)
By the way, thank you for the compliment, Erin! :-)
Posted 6/22/2005 3:58 AM (GMT 0)
no problem! anytime. i remember the original....i saw it once. in fact, it's just recently that i have been becomming MODERN! i was living in the 40's through the 80's my whole life. WAS ALWAYS LIKE THAT! i just love past eras. and plus i felt i never fit in with the generation of which i was born. go figure....my honey is 25 years older than i, and he knows more "in" things than i did when we first dated. so he's actually brought me into this century!!!!!!!!! i hate being stuck in too. it stinks. and boy does it get lonely. i just miss being at work for the whole day i suppose. i have my mother here to talk, and i see my boyfriend on weekends and maybe talk to a friend or 2 on the phone during the week. but i guess pain and fatigue just makes ya feel isolated. it's hard. Camama, have you seen "Angels in America"? it's a wonderful miniseries from HBO...was a broadway play at first. Al Pacino is in it. it's about 1983 NYC and the AIDS problems. very touching drama. and it's like 6 hours long. i found it a nice "day" when ill....since it's so long it kills an entire afternoon. it won a ton of emmy's and all. i wish you too a good sleep! waiting to wind down from the steroids! hee hee.
here's to better days!
erin
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