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When do you get your worst pain? What do you take for it?

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Rheumatoid Arthritis
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Posted 4/14/2015 11:54 PM (GMT 0)
When does your RA pain start if you are having a flare? Does it just come on you during the day or do you wake up with the pain? Does your pain get worse at night?

My pain seems to always start in the middle of the night. Is this typical? Then, I don't sleep well, and I wake up feeling so bad. Often, if I can break the cycle of pain, I feel a lot better.

Also, what do you take for pain? I really got got my firm diagnosis of SJS and RA in the past month and I am waiting for plaquenil to kick in. I have tramadol but it makes me dizzy and nauseous. I have a small stash of loritabs and I only take them when things get pretty bad. I have bad GERD so NSAIDS are a no-no for me.

Thanks!
Posted 4/15/2015 12:25 AM (GMT 0)
Mine just jumps out and says boo!
I woke up this morning feeling like a truck ran over me and someone stole my brains. I feel terrible. Ugh.
Posted 4/15/2015 12:39 AM (GMT 0)
You too Joy? Sorry..... I feel the same way!!!!
Posted 4/15/2015 1:52 AM (GMT 0)
Mine comes slowly from late night and by morning I am in so much pain I can't stand for someone to even touch me! I have to roll out of bed and can't take anything until one grand child is at school and the other is napping. I hardly ever take pain med during the day and I think that what makes my pain so intense. I take mtx by injection once a week, fioricet, Tylenol3, gabapentin, soma or flexiril for muscle spasms. I've been flaring off and on ever since I was diagnosed with RA. I haven't been in remission yet and my rheumy wants me to get on a dmar but we can't afford it.
Do you ever get stomach problems with you flares? Ever since this last flare that actually started mid morning my IBS has been really bad. I'm having a colonoscopy next week hope it turns out ok. The last few I've had they have found polyps.
Hope you feel better soon!
God Bless you!
Posted 4/15/2015 3:19 AM (GMT 0)
DMARDS are pretty reasonable priced at walmart. I get my plaquinel and Leflunomide at a decent price as self paying.

I just got my insurance started with humana gold plus my plaquinel is free and my Leflunomide is $125 for three months. They use Right Source Pharmacy mail order.
Posted 4/15/2015 1:18 PM (GMT 0)
Glea, I wonder if the IBS is related to the fibromyalgia flares? Do you think you might be lactose intolerant? Do you take probiotics? Those often help IBS sufferers. Get some good strong ones at the health food store. They aren't cheap but well worth it. Kefir is also good for IBS.

Some of my meds cause some stomach issues, like gas and d-) The combination of plaquenil and metformin are rough on my stomach at times. I really hate it too. Gives me gas and I don't sleep well when I have gas. Now, I take the meds with lunch so the gas is over with by the time I go to bed.

Sleep is too precious to miss!!!!!

Posted 4/16/2015 3:33 AM (GMT 0)
I haven't had my meds so far to cause me problems with the IBS, but the way RA, Fibro and IBS go hand in hand it could be something to check into. I've been on these meds for 2 years, well not the Tylenol3. I am allergic to so many pain meds it took about a year to get my rheumy to give me stronger pain meds that I wasn't allergic too. He was afraid I would get addicted to them. So I had to prove that I wouldn't. I have had to increase the number of pain meds for a few months so its a possibility.
Posted 4/16/2015 5:17 AM (GMT 0)
Jean,
My flares seem to be more localized. Usually it is a foot or elbow..swollen, hot, red and ow!!!! I have not had one since adding methotrexate to the enbril. I have also reduced my prednisone. When I flare, only thing that works is up the prednisone. If the plauquenil is still not working, you should think about methotrexate. Sounds like you are not having flare, but that you have not gotten control of symptoms. Do you get your sedrate checked?
I take Percocet for pain relief and restless legs at night unapologetically. I take Aleve during the day. I also have GERD, but the Aleve doesn't bother me. Prilosec for reflux and supplements too. I hope you find what works for you soon. It's hard to function when you're in pain and can't sleep!
Posted 4/20/2015 12:52 AM (GMT 0)
Mine seem to pop up at no specific time. However I think I feel my worst at night after dinner. I generally have very busy stressful days at work which do not allow me to acknowledge any pain I may be having. When I finallly sit down and have a quiet moment I become aware of all the sensations and when I stand from my chair I am extremely stiff.
Posted 4/22/2015 8:39 PM (GMT 0)
Well, we are having fair weather and after a few weeks of feeling bad, I feel a lot better. What a relief. I wish it would last, but it rarely does-:) Just gotta be honest with myself. As always, thanks for chatting and sharing with me.
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