Posted 4/20/2016 2:01 PM (GMT 0)
Wow Neenaa that blew me away Thank You
yes as time goes on I guess it gets harder when Hubby & I met I was still working and only had flares once in a while they were still at that stage undiagnosed from early teenage I was told different things with each flare one time I had exhaustion then glandular fever then bad flu etc etc as I would have a flare that lasted anywhere from a few weeks to a few months but I usually returned to normal till next time until the day one flare came and decided to Stay I was a Nurse so in one way it was good I could work shifts around flares i'd work 2 days and have 3 off to recover
we were in our 2nd year together and had just gone traveling when things went crazy and the RD Stayed
when the diagnosis came in I sat him down told him a little of what life may hold with RD as I had nursed a lot of people with it and so I gave him the choice he could leave & No Bad feelings, to my surprise he did leave he was gone for hours and just as I was telling myself Hm ok that's that
at about 3am he came back and said " For Better or Worse you are stuck with me"
we have been together 23yrs now
and I do sometimes see the frustration in his face and that makes it hard.
he can deal with showering me ,doing my hair & daily problems even times when I'm bedbound or falling on floor with a hip or knee lock up and sometimes I see his frustration when I try to push thru to do something he will get annoyed and tell me to stop
But heaven help if He gets sick he can't cope as he is Very independent and of course I panic so we are a sad case
we won't know his blood results till early next month when he will get the 2nd test done and we go back to Doctor so its just a case of feeding him vitamins and trying not to think about it
I am hoping it is something like inflammatory bowel disease -as he has a lot of problems with his tummy, or even a false positive.
I have been feeling a little better I think just saying it out loud and letting hubby know also and he was better than I had thought he'd be , he had noticed I had been a wreck for a while but hadn't said anything
and knowing I have the tablets I can take and even my vent on here helped me say it out loud - or actually say it to myself .
right now I think I will hold off on the pills till I go back to Dr to clarify my concerns But I don't feel like I used to I Know I have a problem and I am ok with taking something if I need to
I haven't cried all day today and I haven't panicked either so that's good,
OMG I am sorry I have rambled on again