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Posted 6/13/2006 5:21 PM (GMT 0)
Awe shucks...ya'll made me blush.  Thanks Craig, Dave, Yalinda & Snowlynne.

I like the bionic idea myself.

"Craptastic" ??!!  definition? LOL.  I'll take that as a compliment though as it sounds good to me.

 

I should listen to my horoscope today for it was very wise:

                    "Do not worry about your present state because it is where you are suppose to be."

I should do that.

 

Doing my darndest to "be strong like bull", a little less apprehensive about things as I keep telling myself this too shall pass & perhaps being off of the Imuran & Humira for 2 weeks due to pneumonia in May possible could be why I was set off into a very bad RA flare.

Walking a tad better. Can bend them more, stand a little longer. Still painful @ injection site.

AAAAAAAAAAAHHHHHHHHHHHHHHHHHH...I tell ya, I think I speak for everyone on this one:  Oh to be normal again! 

 

Time to get back into fightin' Yoda mode. "...You Either Do or Do not...There is No Try..."

Words I live by.

Here's to everyone having a hard time.

:-)  

Posted 6/13/2006 11:07 PM (GMT 0)
It's easy to be all philisophical when you can just slice people up with a lightsaber whenever you feel like it. As for "craptastic" its like fantastically crappy. I was just thinking that it totally blows to be so young and have to go through all the junk you hafta deal with. My knees are alright, so I'll trade you a knee for two fingers and a hip if you're interested. Preferably middle fingers, I met lotsa people I want to flip off this week.
Posted 6/14/2006 11:35 AM (GMT 0)
erin,  just thinking of you and wondering how you are feeling today?  i hope each day is starting to get a little better for you?  keep up your positive attitude and you will be dancing again real soon!  here's to getting well! yeah    ~*yalinda
Posted 6/14/2006 4:11 PM (GMT 0)
Erin i just went threw this last week with my knees one of mine are bone on bone and i just turned 50 and they won't replace mine yet iam sorry you are having trouble i was lucky i just iced mine that night after the injections and lucky me no more pain for a while but iam a lot better i went to knew dr and he took me off ultram and put me on viciden and the new rumy put me on low dose of methotrexate i have psoriatic arthritis ,o/arthrtitis,ddd,fm for once in my life after 15 years at least iam 75%pain free i feel like a new person how long it will last i don't know take care hope you get better soon DEB
Posted 6/14/2006 10:13 PM (GMT 0)

thanks a lot all.

Dave, sorry dude...my hips you wouldn't want.  they're pretty; but they're uh, craptastic on the inside.  my left middle finger although is pretty straight!  and my ring finger could double as a flipper as it's pretty long...so there ya have it.  i've already willed my bladder to Ducky.  glad to see we've a little organ donation organization going on here. LOL.

hey yalinda: today was a rough one.  but this too shall pass.  had some good talks with 2 good friends today & yesterday and short synopsis " you never know what lies in the road ahead."  so mine just might be pretty darn good.

     you know what it's like?  you put blood, sweat and tears into preparing for something great.  and then you're knocked down before you ever got a chance to get a go at it.  Dave, you asked about dealing with all of this so young...i don't have enough adjectives to describe it.  i have a lot in common with the 1 ton Man.  feels like a prisoner in his own body?  and at 95 pounds i can absolutely relate.

but i do put my self back in reality & am greatful that i do have my wits about me, am smart, can wipe my rear end myself on a  good day, have mantained a great disposition throughout it all, and heck....i'm not on an iron lung.  (humor instead of philosophy...my lightsaber has gone impotent). geesh, they've got a cure for that eyes  .

Deb:  yeah...so i was pretty right on about the age qualifications. i hope your knees are up and running (or walking) soon as well.  i'm still an icebox.  so are you going to get a TKR?  in the near future?

here's to everyone going through rough times.   


Posted 6/15/2006 11:45 AM (GMT 0)
erin (and anyone else who cares?) sry to ear you are still in the muck of things..... is that a word?  i think so .... where did i get that from?  oh well i will type you some humor i guess i hope it doesnt hurt to smile?  

 

 i just came back from a sleep study..... spent the night in the Ritz, lol, with infra red cameras on me watching my every move and sound!  like u can sleep with people starring at you all night?  21 wires hooked up to your body and they say just go to sleep like nothing is happening!  yeah right!  plus it was no reading or tv once i was tucked in ~ just dark.....  at least i didnt end up like darth vader wearing a mask!  like that would be good for the sex life? although they claimed it was?!  

 i ordered a gigalo (sp) but i never got one, nor did i get my suite with chocolate covered strawberries.....

 

well enough about my night.... i am certain as rediculous as my sleep was it was not as painful as your night and i am certain you would have traded with me in a hearbeat!  sometimes i admire you and then sometimes i fear you for my future..... i know you understand.... and i hope i am like the person (i think rosas friend ) who is in remission.... with days i want to cut my arms off from pain i cant imagine my legs going too!  ok gettin to deep even for me! 

 

 well it is over the hump and 2 work days left to try and stay awake and moan around ..... the weather should be nice here which is a big deal for these parts.... i just came back in april from rancho bernardo, my daughter wants to move to sunny CA and attend USC, her favorite in our search thus far.....scares me to have her go that far coast to coast..... ok i am babbaling again  sry  well i better go hi's to everyone out there and here's to a better day for everyone!!!!!!!  

 ~* yalinda

Posted 6/15/2006 1:48 PM (GMT 0)
Hey Yalinda... where are you from ? You mentioned going coast to coast is why I asked... I am in South Carolina, Charleston actually... I am from the west coast though... USC is a good school, not a bad choice for your daughter... Why did you have the sleep study done? I need to have one too, and I was wondering about that... so how long did it take for you to fall asleep? did you wake up a lot 'cause of all the wires and stuff? Hope all is well with you... Duck
Posted 6/15/2006 4:26 PM (GMT 0)
hey thanks yalinda,

hah...i was in an Epilepsy Monitoring Unit for 4 days like that.  "they"  watched evry move by camera...the sucker would even follow you around!  and if they couldn't see you, all of a sudden you'de hear, "Erin where are you?"  AAAAHHHH!  "Peeing thank you!"  LOL.  shear torture. i'm glad you're home.  any results? when do you get them?

no sleep here!  up all nite with ice on the knees (should be a drink..."knees on the rocks"....hmmmm?)

i wish for no one to be in my predicament. ever.  but yalinda, i wouldn't fear too much.  i was a complicated case from the get-go.  and believe me, if this wasn't ignored for a decade it wouldn't be as bad as it is right now.  i know it.  it is if a person knew he/she had RA or any disease at that....and just did NOTHING for 10 years.  so that's the way it goes.  i was a little girl when it started so i was too naive to understand anything to this caliber at 13 years old...so when Dr.s  said "don't worry about it"...that's exactly what i did.

but this DOES go to show, that WITHOUT PROPER TREATMENT, medical attention and medicine...the devastating and disabling effects of RA.  

i am not weak, i am not sorry, i am not EVER losing my determination.  those things are what are most important.  and i think that's what keeps me the way i am.

 

you'll be alright yalinda.  enjoy every good minute. enjoy every work day you can.  and always be proud of the things you can do...no matter how great or small they may be.

 

erin    

Posted 6/15/2006 4:36 PM (GMT 0)
Dave,

I re-read one of your posts.  Do you suppose you will try MTX? Or some TNF med for the PsA and RA?

 

Oh...up till 7am last nite (or this morning) eyes (geesh what a long day) and my cinematherapy was "The Good Thief"  it's one of those IFC films. I dig independent films, Cannes, and all that good stuff. "TransAmerica" was also fabulous. Umh...come to think of it...so was "THE DRUG YEARS" on VH1. LOL tongue

 

Knees? It's going on the 6th day post injections.  I busted my knee last nite.  Bent it too far.  Very trippy to watch it blow up to 3 times its size. Ewww.

Ah well...keep on keepin' on.

 

Be well all.

Posted 6/15/2006 6:00 PM (GMT 0)
hi everyone

ducky i am from the burbs of buffalo ny orchard park to be exact. my daughter says her life is comprimised living here. this winter we went like 9o some days no sunshine and it depresses her she needs warm sun and beaches! we just have polluted lake erie that i wouldnt dare enter! i am trying to get her on the east coast like so carolina or even boston but i dont know. she will be applying this fall and i hope her dreams come true as she is a good kid with a strong work ethic.... we almost moved to greensboro 6 years ago! but we ended up staying here... born and raised in this h*** hole! buffalo is a dying city but it has been good to me.. just taxed to death!!!!!!!

i had the sleep study rec by that pulmonary doctor! he never really adressed the spots on my lungs and my fatigue which i said was RA he said was not more than likely and i agreed because like just now and i mean now i have trouble with all my driving for work and not falling asleep at the wheel... havent done it yet but have had recently 2 close calls and today i just came home to power nap for a lunch break and go again 20 min does me well mid day or i am in trouble today i must have driven for 20 min in construction with dang ""cones"" they were hypnotizing me and i was so worried i would go to sleep i am sooooooooooooooooo tired always and often drive over an hour one way to see a client!

the sleep test was ok 21 wires and yes infra red cameras and speakers that hear everything it took me a while to sleep but they wouldnt tell me how long i asked but because of a post questioneer they wouldnt tell me! i did wake up once to get up around 3 but other wise once i slept it was prettynormal..... the technician did tell me that the doctor would review my tapes and her findings and that i shouldnt be surprised if i am asked to return to repeat the study when i asked why she said she couldnt say!!!! what ever!!!!!

erin i quickly had posted and then hit the wrong button, fatigue iam certain, i think i was the post for the lab info....late may memorial weekend i am seeing my pcp this pm so i will ask it all to him and let u know what he says if anything

take care everyone sry this was a fast long one but i g2nap....and erin no pics? i understand u got alot going on and i have no photos of me as i avoid breaking cameras but as i tell my blind clients i look just like marilyn monroe,.... not! ~* yalinda night night
Posted 6/15/2006 8:34 PM (GMT 0)
How do you mean you busted your knee? Not like literally I hope?

I really don't know what I'm going to try next. For me the medications are kinda like a buffet, I like to try one of everything, even though it all tastes like crap. My joints are relatively alright with the sulfasalazine ATM. For me relatively alright means I can do most of the things I need to do most of the time and maybe a few of the things I like to do some of the time. So, i can deal with that. I think my rheumy will give prednisone a shot before methotextrate. Every time I mention mtx she talks me out of it. I'm 32 and I know a guy in his fifties, with ultra severe RA, his hands, and whole arms really are totally disfigured, he has some wicked hip issues etc. Anywho, he did methotextrate and got cancer a month after he started it. Probably a coincidence, but it makes it easy for me to let the rheumy talk me out of it. I've been trying to trick her into trying some kinda penicillin therapy on me, but she seems to think my lupus issues are more serious than my RA or PA issues. Don't think she really thinks much of penicillin therapy anyway. But to me it seems pretty harmless so why not?

I'm working on a new cure for everything autoimmune anywho. Ever notice how you feel better on appointment days? I figure if I make an appointment every day for the rest of my life, I will be cured in no time (patent pending). I can just get up in the morning and cancel my appointment for that day because of how great I feel. I'm still working on on the whole can't make appointments on weekends thing. Might involve travelling around the world all the time, so wherever you are it's always a weekday. I should probably start lobbying the government to add it to OHIP. Nobel prize for medicine here I come!
Posted 6/15/2006 8:59 PM (GMT 0)
Oh yeah, I meant to add that I don't think I really like independent movies, generally I prefer higher quality, more expensive explosions in the films I watch. Also a car chase with a Chevette and a Pinto doesn't really work for me. Is Memento an independent movie? I liked that one if it was. Well even if it wasn't I liked it. Either way.
Posted 6/16/2006 2:14 AM (GMT 0)

Hey Dave, your patent pending theory has a flaw - it will only work if you KEEP the appointment....if you felt GREAT and called at the very last minute to cancel (like 2 hours before at 3 p.m. for a 5 p..m appointment) you KNOW (don't deny it) that the MINUTE you hang up the phone, you'll get attacked all at once! In fact, you'll twist your wrist or slam your fingers just trying to hang up!  Oy, I don't know if i should be tongue   or sad   about this, because it is too true in a sad yet pathetically funny way.

Yalinda, what were you doing in Rancho Bernardo? That's right next door to me here in SoCal....USC is up in Los Angeles...How'd you like it here? The weather here is wonderful. So much better than the buffalo cold (of course, I never lived there, but grew up in MA....so, I have a small idea!)

Erin, I hope your knees start behaving soon! Can't believe you messed them up last night by bending them a little too far! UGH!***

Posted 6/16/2006 2:25 AM (GMT 0)
hi camama,  not really knowing the area and my daughter initially interested is sdsu we booked our stay in rancho bernardo.  sdsu was a great disappointment as they r NOT out of state friendly and they basically said that to us and only have a 5% out of state enrollment.  and usd seemed like a party school and my daughter wants to get into med school. pepperdine a bit conservative and small scale.  usc seemed to have it all!  she wants to research in neurosciences with a minor in psychology.   we were there for easter and attended a really nice church in solena beach?  drove up towards LA alomst everyday too!  that was crazy!!!!!   san diego is beautiful!!!!!   the PCH was a treat for us!  of course laguna beach and the OC, my teenagers ode to TV land!  great trip  jsut tooooo far!   

i am traveling to salt lake for work this july, any locals or tips for that let me know!  ~*yalinda

 

sry if i stole this thread with this email?

  

Posted 6/16/2006 2:39 AM (GMT 0)

hey Dave,

yeah, i see your point on the MTX.  i never thought of this as a buffet...but you know, you're kinda right.

busted my knee!  well, i sorta went to bend it (like in a sitting/knealing position, 90 degrees. this is by accident too, trying to get into bed), and when i did i heard a POP confused and ouch it hurt. a few seconds later it started to throb. THEN IT GREW.  so i think in New Jersey, a "busted" anything is term for "i hurt my -------"(fill in the blank with whatever you hurt). LOL.

a hah "Memento" yes indeedy.  i'm a little artsy fartsy so i tend to fancy the lower budget films.  some favs are: "Secretary"  "Son of the Bride"  "Resevoir Dogs"  "Reqiuem For A Dream"  "Boys Don't Cry" 

but then again...i'm gung ho for 1930's 40's and 50's films. can't get enough of Katherine Hepburn (Audrey too) and Cary Grant, Gary Cooper, Gregory Peck. hey...like a buffet...but all good.

i'm behaving Camama! i'm not doing stuff i'm not supposed to. so don't worry. in bed/with ice/and pharmaceuticals...hah! and my cats if they'll have me; but i think they're sick of me.

swollen but in good spirits! :-)  

Posted 6/16/2006 2:43 AM (GMT 0)

nono  yes yalinda..that'll be a 5 dollar fine payable to me via paypal. tongue   hah! someone once called it "hyjacking" your post! sorry for hyjacking your post or something like that. funny.

wow, so neurosciences? does she want to pursue an MD? or go into pathology and research rather?  sounds like you have a smart cookie there.

ciao! :-)

Posted 6/16/2006 3:02 AM (GMT 0)
eyes  who hyjacked what???  wasnt me???  lol devil    hope ur feelin better.... i cant enter the movie talk cuz i NEVER can stay awake for an entire flick esp at home!!!!  ticks my hubby right off... he rents a movie and i fall asleep  some cheap date.... but i bet those movies would be good?! saturday he rented fun with **** and jane and within the first 15 min. i turned over  redface

dave i am on mtx from my rhuemmy and saw my pcp tonight and he is not happy i am on it an has more questions than i do!  he thinks it is a drug with alot of side effects and is concerned if it is the best choice or even the right direction entirely? 

i have been doing so much better too! so i am soooo confused?

well erin i better put in a get well real soon or i will pay double fines!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Get Well REAL soon!!!!!!!!!!!!!!!      yeah   have an ice pack on me!  cheers!

 

~*yalinda tongue

Posted 6/16/2006 1:12 PM (GMT 0)
You are probably right CaMama, but the beauty of Dave's Auto-Immune Cure (tm) is that even if you feel bad after cancelling the appointment, you have another one the next day! I realize that by definition this makes it not a cure. However, to maximize sales I feel it's important to have "cure" in the title.

Uhh not do be a dummy, but you guys say PCP a lot. What is that? It's probably some kind of Canada/United States thing. But here PCP is an illegal street drug. The mind boggles.

Oh I totally liked Reservoir Dogs. Anything that requires a violence/nudity/excessive bad language disclaimer is totally alright with me.

I haven't seen many old movies. Just enough to know that the special effects have come a long way!

P.S. The good thing about Buffalo is that you don't have to worry about all the noise and vandalism of those crazy Super Bowl parties after your team wins! Don't mind me, I'm just still bitter because the Sabres beat the Sens in the playoffs.

P.P.S. Keeping the thread relevant...How are your knees today Erin? Does it usually take so long for them to start feeling better?
Posted 6/16/2006 9:32 PM (GMT 0)

tongue  Hah!  As much as "PCP" is a psychedelic here too...it's also what we call our Primary Care Physicians!  "GP" (general practicioners) or plain ol' "Primary".  Typically just an internal medicine or family practice MD.

Aaah, if only they did come with PCP...oh what a world it would be.

I think your cure should be patent pending! go for it! LOL.

Knees? The Dr I saw today poked & prodded them so they're worse than yesterday...but I'll get into that in my disability thread. Please tune in!

Ciao!

Posted 6/16/2006 10:50 PM (GMT 0)
Oh you have a disability thread? How exciting! I can't wait to track it down. Ahhhh Primary Care Physician. I shoulda known! We don't call them that here, so naturally I just assumed drugs (kidding!) Lucky I already know what "meth" means in the autoimmune context or it could have resulted in some very embarassing replies on my part.

Usually I refer to my family doctor as "TPWSMTADCSDMSWFHADGFAS" which quite obviously is an acronym for That Person Who Sends Me To Another Doctor Cuz She Decided Medical School Wasn't For Her And Didn't Go For A Specialty.

I think I will offer my cure as a free bonus when people purchase the special juice I'm inventing. I just have to find a tropical island with a bizarre fruit whose inhabitants have never had an autoimmune disorder. Should be easy enough. My slogan will be "This Juice Cures Everything Including Bird Flu and If It Doesn't You Will Get Dave's Auto-Immune Cure (tm) Free When You Buy It"

For some reason I'm really enjoying capitalization today.
Posted 6/17/2006 3:34 AM (GMT 0)

CAPITALIZATION is great in all ways!

Hee hee...you're actually a very creative writer Dave.  Immensely enjoyable. And in subcontext oh so right on in so many ways.

Yes, I leave no area uncovered. I have a disability thread going on.  It's a journey 5 years in the making.  But I had to apply for disability last May (2005) when I could no longer perform neither one of my 2 jobs.

Take care.

Erin

Posted 6/17/2006 6:00 AM (GMT 0)

USD a party school? Or did you mean UCSD? I guess things might have changed since I was in college (I went to SDSU - and my roommate was from GA and I remember her having to pay a lot more per sememster until she had to get her residency, I don't recall that being an SDSU thing, but a State college funding thing.) Anyway, back 'in my day' USD was touted as being pretty intense - you get a the kids who are used to being top in their class competing against each other in college.....not a fun atmosphere.

Erin, glad you are behaving. tongue   My roommate and I (in college, since we're talking about it) used to watch old B&W films on AMC (when it first came out) every weekend....ahhhh, it was fun. Of course, I've been thru so much crap over the last 10 years, I cannot remember anything other than Death Takes a Holiday (now known as Meet Joe Black with some variations), The Enchanted Cottage, and the picture of Barabara Stanwick (?) (and I cannot remember the man in the photo for some reason) my roomate bought and hung in our living room.

Dave, you're cracking me up!

**

Posted 6/17/2006 7:07 AM (GMT 0)
Yay! Smiles are fun! Hope everyone has a swell weekend! Except for Erin who has clearly had enough swelling. You can have like a great weekend or an awesome weekend or some kinda unswell weekend instead. Gotta go write the script for my first infomercial, gnight!
Posted 6/17/2006 1:22 PM (GMT 0)
hi everyone  sry i wasnt online but we had sun and 80* her so i get in the yard then!

 

Dave yes our bflo bills have been a sry sight and no we never get to party hardy here, usually send some chicken wings to some mayor somewhere when our city looses the team bet!  but we do have the best wings in the world!  we thought the sabres might make it but they all got hurt in the end so as always no celebration!  i live like 5 min from the bills stadium but never go to the games anymore....tooooo cold usually and my wild tailgattin days are long gone!

 

camama  opps!!!!!!!!  sry made a mistake too many sd's to remember!!!!!!!! sdsu party?  usd private? ucsd locals only, 5% out of state?  i think i got it right now? but maybe not?!  sry didnt mean to dis the wrong schools, but i get so confusssed with all the sd abreviations!!!!!! i even did when we were there! any way USC, southern cal, (good fb team dave) is still in the running for her personal choice!

erin how r u feeling?  could you sleep last night? having any virtual martinis or margaritas.  i have a bucket of frozen "virgin" margaritas in my freezer to down this weekend with friends and family..... never was a big drinker but knowing i cannot have a sip on the mtx, per my md, does put that summer social frown on my face but i will survive with the non alcky drinks!

hope everyone else is doing well elcamino, ducky, RA girl and anyone else i forgot....sry

we are suppose to get in the high 80's here today so i hope to be poolside tongue with the kidos!

 

happy fathers day!!!  to all the dads in case i forget to send it out later!!!!  smurf papa smurf!

 

~*yalinda

Posted 6/17/2006 4:28 PM (GMT 0)
tongue  It took me forever to get the UC, SU, and privates all figured out as well, Yalinda! SDSU was always considered the "party" school, though I was never much a partier.....can't say I did NONE, but for the most part, I was there for school (just couldn't afford the UC's or private!) It was still a good school, I think. I can only tell you "how it was" back then, but USC was always considered a very good school. If I recall, not in the greatest part of town, but a great school nonetheless.

Erin, I'm with Dave, hope you have an awesome (but unswell) weekend! tongue Very funny, I like your train of though, Dave! Between you and Craig, I see how funny men can be....I forgot.

 

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