in the past year, i have noticed that i have gotten this much worse in my health. with my back, neck, pains etc. i dont know what to do. yesterday i tried to go out on a boat ride ( big ship) for about 5 hours and by the time i got done, my neck was in such a spazz and in so much pain i was taking much more than i usually take to quiet down my neck and back.
i can not even enjoy a day or night out any more., i spent the entire day in bed today to pay for my night out of 5 hours.
i have more fatique, more pain than i did last year but have not upped the pain meds any more higher than last year. i am still woefully under medicated for pain. the doctors do not understand this.
i am only on norco, 10-325 2x's aday and xanax .50 mg a day, and advil when needed.
this is so bad i dont know waht to do b/c flrioda is one place you do not wan tto be if you are sick.
my life is becomoing more and more of a recluse and i am getting deeper into pain and discomfort but am feaful of trying anything drastic like the enbrel b/c with my luck i will die from it early.
i react badly to meds and have tried many many differnt pain meds only to have to get off them for one bad side effect or another.
i will be 51 in december. some days i feel like i will not live past my 50's sicen i have no energy, and am literally exhausted all day long. when i try to do some exercise or anything at all my body goes into such a spasm it is unbearable. so i guess i will tr y another shot of steriod. my second one of the year.
maybe that wil help me.
it helped me for a bout tw oweeks last time.
i am really tired of not having a life.
what scares me most is the fact that i will be in a nursing home early on if i cant manage at home .....
i am sorry for this being so negative but every time i try to do something positive in my life i wind up worse for it all. if this is how it iwill be for the rest of my life, i may move to oregon when the time comes and say my good byes to all from there, as i cant live in this much pain all the time....