violets said...
Marius,
Hi, I actually saw your post somewhere else and was impressed and got a kick out of it. Also, in your post you just wrote, you put out a request for any info on any disease. So here I am. I always wonder whether or not I should post to someone. Not everyone is receptive. But if someone is asking for help, I am going to offer my take. I hate to see anyone suffer. I've felt it, I've been there.
I just remember I was searching, I sounded just like you, trying everything just like you did with the garlic. I thought I had B12 deficiency and took 5000mg of B12 a day for 5 days and got very sick from it. I tried everything, thought there was no disease, I hadn't checked. But I made one mistake, I believed the tests for lyme were accurate, so I didn't give it a second look. Your asking if any one has ideas of what is raising up in you. Have you checked out lyme?
The fact that you have been to several physicians, just like me with every test negative just like me, says something. I too had a normal ESR, in fact it is like 1, so between the fact I didn't have a fever, all tests negative and a low ESR may doctor asked if I was stressed.
I don't know if you have lyme or not. But, lyme presents in strange ways. I was told I had mono because of my swollen glands, so I delayed searching further waiting for it to heal. Then I thought I had chronic fatique and almost took a viral medication called valtrex. But I was just like you when you didn't want to take the methotrexate, I didn't take the Valtrex. Why, because I wanted to continue to feel my symptoms. I knew something was causing them and I was afraid if I took beta blockers, or pain killers, or viral meds that didn't make sense, then I wouldn't find the real culprit.
I finally figured out what I had. You could have something totally different then lyme, but keep searching and believe in yourself, and you will figure it out. But you may want to give lyme a second look. Lyme has no borders and really no one knows all the ways you can catch it. It may not just be ticks.
Arthritis is a common symptom of lyme, so is muscle aches, low temperature, low ESR, muscle aches, flu like feeling etc, exercise intolerance and yes pain in your left upper abdomen (I had that) and rib pain or chest pain that moves around.
The only way I found out I had lyme, was when my doctor had me do a trial course of antibiotics. It hit me the first day like a brick or truck. I had an increase in all my symptoms and then some. It is called a herx. Not everyone has a herx, but I personally feel that most people know once they take the antibioitcs, whether or not they have hit on the right disease. If it is bacterial you will either be worst in the beginning, or may just feel better and better every day. If it is not a bacterial you will probably feel no differ. Since my orginial reaction, then I have slowly gotten better every day. I suggest finding a good doctor that you may be able to ask about an antibioitc trial. What is it going to hurt, that is if you think you may have lyme.
Thank you violets.
I'm very happy that you finaly has found out the cause of your problems.
What tests did they make you ?
It's a stright on goal shot..this about lyme, but like you said I do not think it is exactly lyme in me;(
The reasons that I think that I do not have lyme are that I haven't been bitten by anything unusual as I remember, I haven't had the EM classical lyme rash, and the most strong characteristic is that I have no neurological symptoms, not even a minor. Like I see the neurological symptoms are with priority in lyme. However, I SHALL DO the test just to ensure. I'll post feedback when it's done. I'm planning to talk about antibiotics approach after testing for lyme and with no metter of it is positive or negative, but after 2 more months and my fever not yet resolved.
I have to say in addition to you, that my health problems all started after kissing my GF's herpeses with a an open wound on my lip (sully stupid;((( ). Immediately after, I had 2 weeks bout of mouth ulcers, high fever and swollen lymphs. Months later I was discovered to have bacterial infection in the prostate (prostatitis), penis rash and then developed transitional rash similar to pityriasis rosea, which has failed to be diagnosed unanimously. And all this happened as a consequence. It is may be just a good concentration of trigger *environmental* factors bringing up to my condition.
I spoke with a friend GI physician yesterday. We spoke about my problems hour and a half.;))) His opinion is that I realy have chronic reactive arthritis/reiter's syndrome which had gone worst last months because of gut dysbacteriosis caused by my garlic strong overdosing. He told me to take probiotics as much as I can. This is what I do, but the condition dosen't get better. Not even a bit. Only the GI issue resolved. Everything else is persistent. Doesen't move even a bit;(( In one word: I was returned back as healthy once again, even was returned by friend of mine;))) Well, I'm getting to worry about my eyes, that I may develop some eyes damage, because of severe problems time to time. He told me to visit ophtamologist to prescripe me steroid drops or somethink like that. This might interest you: I spoke with him about the viruses as a possible cause. He told me that if a virus like CMV,EVB,HHV is causing my problems this is only because of lowered / or disbalanced immune system. He asked me about HIV, I told him - negative. And he also told me that if realy a virus is the cause there is no medecine which can do the things better. Only my immune system is the resposible about that. I told him about your Valtrex issues. His opinion is that this is not effective. He told me that Valtrex and other medications of the group are 1) not fully efffective against viruses 2) only effective when the virus is dominating, spreaded all over the body. The medicament not completely inhibits the virus but may come into help to the immune system in stressfull moments. I also asked him about any examinations which I could make to determine an active virus infection. He told me that only the PCR method is reliable. The common antibody titter tests are 90% non-demonstrative for active not acute but chronic infection. For example the chronic hepatitis C infections is being masured by liver biopsy and DNA scan for the virus, the antibody titer is always elevated and this does not mean anything;(. Well since I do not know PCR tests for various virus definitions near my area to be made I should try a different approach. Violets, what do you know about the effect of Valtrex on the viruses, and which viruses ? I told my friend for my methotrexate test proposal by my rheumy. He told me that a low dose of MTX is the only test that for 4 months may determine with high realibility whether my problems are infectious of clearly immunological. If the first I should experience significant worsening after the medication discontinuation, else I should experience significant improvement or even may be a cure;) That was very hopefull. I liked that how it sounded;) However all these "fairy-tales" are usually called "speculations" by the doctors. The reumatical diseases are well known as with most blurred prognosis.
Post Edited (Marius123) : 8/28/2006 9:50:41 AM (GMT-6)