HealingWell
Search Close Search
☰

Remicade wearing off..how quick for you?

Support Forums
>
Rheumatoid Arthritis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/3/2007 7:34 PM (GMT 0)
Hi all,

hope you are ok.  I have AS and received my first infusion of remicade in feb (for crohns) happily it TOTALLY got rid of my back pain and i was amazed and over the moon.  I had been suffering so badly for so long i didn't know what to do with myself.

After about 5/6 weeks it started to wear off...not majorly but the pain was back...pardon the pun! I had my second infusion at 7 weeks (about 2/3 weeks ago)and i am already feeling the pain come back.

In your experience, how long has it taken for you?....does the benefit get shorter each time??  I am not on anything else with the remicade, just a steroid shot at the time.  My docs are trying to get me on methotrexate as well as they say it prolongs it but i'm scared of the fertility issues surrounding it....too scared to go on it.

I'm in the UK and we don't have Humira here so i am terrified of the thought of the pain coming back as there is nothing left for me if this stops working.

Would really appreciate hearing your experiences with it

Lise :o)

Posted 4/3/2007 9:18 PM (GMT 0)
I was started on Remicade for my AS and CD. I was started at 8 week intervals and it was not lasting. The recommended dosing interval for someone with AS is 6 weeks. My Remicade was put on that schedule. For the first year it was holding me pretty good. Now I am getting joint and back pain at about 4.5 weeks. My dosage has even been increased and I still don't hold for the entire 6 weeks. My GI is talking about moving my interval to every 5 weeks.
Posted 4/4/2007 2:45 AM (GMT 0)
hi there!

i receive my infusions of 300mg every 3 weeks. i couldn't handle the wait when it was at the 4 and 6 week intervals (landed in the ER due to pain) so my GO keeps me on 3 weeks.
the RA is my main problem but i do deal with CD and AS. even at 3 weeks i can feel the pain worsening a few days before the next infusion.

perhaps you & your docs can tweek the timing.
take good care
Posted 4/5/2007 1:42 AM (GMT 0)
Hi There,
I am also on remicade eery eight weeks. I am never completely pain free but it is much better. I start to feel it more fter bout seven weeks. Good luck.
✚ New Topic ✚ Reply