Working?

Thanks everyone for the insight.  This is a new line of questioning regarding working.  I'm going bored out of my mind being at home.  Currently, I'm doing pool therapy and trying daily walks around my neighborhood (trying to stay active and lose some of this weight from the Pred), however because my job is labor intensive (flight attendant...no jokes we have long days and lots of up and down on your body) I haven't been able to go back to work.

I feel like a failure, and really thinking about upping my pred dose and working a trip this weekend just to see if I can handle it. 

I know everyone is different, but does anyone work a non-office job that can provide a little insight.  I have my good days and bad days around the house and will be starting remicade next week, but I'd love to have a little "normal."

Thanks!

hi bamabelle, as you know some jobs are more strenuous than others but if you are state side there is the amerian disabilities act or the ADA that does lay some guidelines for employer accomadations to disabilities. most persons are not familiar with their rights and often feel they have no choice but to go on disability. sometimes that is an nlu choice but sometimes employers mght be able with undo hardship to place you within their organization and still keep seniority and benifits. an example might be you are unable to work on an airplane any longer due to mobility issues but maybe with a comfy high chair you could work the ticket station at the gate or something else with in the company. not being fam,iliar with your abiilities, interests and accomadation needs i can only suggest what i am familiar with. often agencies like independent living centers and VESID can help with such exploration if you truley want to work still, plus while on any form of permanent disability you often can still eran limited dollars to compliment your disability earnings without loosing your benifits. good luck with your job search.

From everything I've read, I think I'll be able to return to work once I find the medicine (regime) that works for me.  I'm really hopeful that one day I may be able to brave the route of alternative treatments, etc.  I'm not ready to explore those options because this is all so new.

My next question is if someone is not able to work due to this disease, when did you know, or rather how do you know.  Here is my confusion:  on most days after a few hours I feel 'normal.' I have pain, but I can work through it, especially when I'm distracted by other things (one reason I think work is good for me).  I do get the serious fatigue going about midday, and need a nap.  From what I'm told this will also not be the case once I'm getting the proper medicines going.  As long as I stay on the prednisone, I can function.  I do have those days, however that I can't move despite all my efforts.

How do I know when I'm well? Is what I'm asking...I know it's silly, but again this is all new?

work is so different for each of us .... desk jobs verses manual labor, we all siffer. we also differ by physical limitations and mental outlooks. me i am stuborn and darn if i am gonna quit just yet- patcially cuz i need the income.... actually totoally because i need the income lol well i telling the truth. on really bad days i call in sick and my boss understands me thak goodness. yep work is a distraction for me and home is my resting place. luckily my kids are old enough to do for themsevles so i can nap. i thin those who have gone on disability just knew they had to, no choice and that is when youwill know, no choice. i hope i dont see that day until i can afford it. good luck hugs yally