Happyscrapper said...
I just wanted to let people know about a test that you may or may not be familiar with. There is a test called CCP that has been recently out on the market that is more specific for RA. As you know, not all patients with RA will have a positive RF (RA) test. CCP is a bit more specific than the RF test that is normally used to screen people with joint pain. If you have not had a CCP test done, ask your doctor about it. I do autoimmune testing in a laboratory. I am a medical technologist by trade and if I can answer any questions about lab tests, I would be happy to do so. I don't know all things, but I will answer what I can.
I also have joint pain, but I do not have RA. There are so many autoimmune diseases out there that it is difficult for even a very good rheum. to differentiate. The more common ones are "easier" to diagnose, but sometimes it can take years. I was diagnosed with connective tissue disease when I was 34. I am now 45, and still living with joint pain (especially my feet) and now I am having problems with my shoulders. My doctor has put me on a short stint with prednisone, and it really is helping. I have been dealing with this for awhile (chronic pain) like all of you, and it's a great confirmation that I am not going crazy. Most people who do not have chronic pain think it's all in your head (or at least that is the way they treat it). I don't like it, but you can't change the way people think. Anyway, thanks for listening. I hope you can get some answers. Wouldn't that be nice?
I have tested positive for RA but negative for the CCP test. My doctor said I Had osteoarthritis. This did not make sense to me. I had pain in the same joints on both sides. not normal with Osteo. But because the CCP was negative she said do not worry about
the positive RA. After a few years a lots of $$.i gave up. But the pain started in again and I tried a new doctor. Wow what a difference. He looked at my find nails and said they all show signs of psoriatic arthritis. He told me the test are only a guide
And that they need to look at the person, listen to the symptoms, look at x rays and there are other tests that can help narrow down. He just ordered ANA test as well as, 14.3.3 ETA RA test and urine protein test.
And x rays of where it hurts.
If your doctor doesn’t listen to you, go to another doctor..