Posted 11/19/2012 2:41 AM (GMT 0)
I am posting here since I currently have a Sjogren's dx though I have something called Undifferentiated Connective Tissue disease which is an umbrella term for lots of different autoimmune diseases at once, that keep changing over time. I've had discoid Lupus, dermatomyocitis, rheum. arthritis, morton's neuroma (probably related), and I probably missed a few but I rarely have more than two at a time. Right now it's Sjogrens which thank god has been mild so far.
I went off Prednisone about 2 years ago after being on it for about 20 years. Was down to only 3 mg but was tired of getting sick and thought even that low dose was supressing my immune system. I had had great tests while on that low dose of prednisone.
Now tests aren't great, pos for Rheum factor and sjogrens and other stuff....mostly markers.
I have torn up my stomach with NSAID's since going off the prednisone and now i have reflux disease. I think I should have stayed on it. I feel worse than I ever have.
I just want to say hi. I actually have something I wanted to write/ask about but it will have to wait becuase i'm about to fall asleep :) Thanks for being here.