Fibro patient w/ severe autoimmune disease symptoms

Chartreux, I've had pneumonia 3 times and once like you with 3 broken ribs and that's tough, huh; But, I've been on Humira for 1-1/2 year with no problems - except feel rung out on the 3rd day, but that's about it and you can get help up to 100%

This is GREAT for itch... "Desonide Lotion" .05 is what I use"

JJP

MaggieMc, so sorry to hear about your mother :-(

You said, "I get crazy things like one pupil larger than the other, numbing from head to foot on one side and a crazy vibrating inside. These either come and go or go away. This is a crazy disease but I find the pain and the depression are the worst." - me too.

Try this for the itch... check if a RX could get you a prescription for "Desonide Lotion" or they might know of something close to it.

I have to be honest with everyone, the absolute best help I've ever had has come from the Lord Jesus... even though it seems like everything that could go wrong does go wrong - the Lord has given me hope and peace... regardless of what report a Doctor report come back with.

The best Dr's in the Nation gave me 6 months to a max of 2 yrs to live (all my troubles began after eating raw oysters - causing Grougerot - Ruiter Leukocyticlastic Vasculitis along with 18 Liver Disorders along with a list of other illnesses including most of what everyone else has going on here) and many more Dr's over the years saying that I was in the end stages, but I shared with them all: simply that I had not been saved for only 6 months and did not understand what was happening to me, but I would find what the Bible had to say and this is what I would believe (which only angered most). Dr's go by facts and they have helped me over the years, but I've stuck with truth IE, God's word... facts can and do change, but the truth never changes

Today many of those same Dr's have passed away. I'm not saying things have not been rough, they have and it has been a tough row to hoe (20 to 24 hours a day in bed for 25 years due to unbearable pain w/ no treatments available), and I'm still here and I've had the wonderful privilege and joy of seeing my daughter grow into adulthood. Today more than ever, I know God is not my enemy but He is for me and there's the bonus of Heaven when my expiration date comes; where there will be no more pain, tears nor sorrow.

I have also learned that the good Lord is not against Doctors, but is the great Physician's Himself and chose Luke (a physician) as one of His Apostles.

JJP

Post Edited (JJP) : 3/16/2014 1:46:36 PM (GMT-6)

Sorry have not been around. Not doing so well these days... very depressed, never want to get out of bed because the pain is very very bad. Also try not to type or read any more than I have to. Hands and eyes have been very inflamed.

Maggie, sorry about your mother! I hope you're both doing better! I may not be diagnosed with all of the same things you are, but I've dealt a lot with not being able to barely walk at times. In fact, it gets so bad that I need to literally crawl to go to the bathroom sometimes. Heat seems to help somewhat, but never to the point where it helped me walk again. My ability to walk just comes and goes.

Hi again, JJP! WOW! You really have dealt with a lot of illness! I'm glad you made it out on top . Sorry, but I'm not religious in any way, shape or form. I have a very analytical and scientific mind. I'm glad that you have found some guidance in your life though, don't get me wrong. Whatever works for you! But I don't believe in it.

Thank you so much for the links. A woman from the welfare office has been trying to get ahold of me... we keep missing each other... but she is calling about my case (since i tried to sign up for Obamacare but still cannot afford it monthly because of not being able to hold down a job). I think she thinks I'm still with my ex, when actually, we've been separated for nearly 5 yrs now and i don't even know where he lives! He was supposed to take care of the divorce, but of course he did not because all he cares about is the bottle (he's an alcoholic). And he always knew I was poor, so I can't do much about it. Anyway, I need to be able to speak to this woman at the office to clarify that I am not with him, do not receive any insurance or financial support through him, etc. I need to tell her that I'm poor and have severe medical needs, and hopefully she will be able to help me find some coverage then!!

So... hopefully some healthcare coverage/ help will be on it's way to me soon!! I'm sick of crying every day.

Hope everyone's doing well.

Eden

Hehe, thanks for everything, JJP! Not a problem! I do appreciate all your help regardless.

But I do understand, Lynnwood! No worries.

I'm just waiting on this woman at the welfare office who is handling my case... we keep missing each other's calls... but I can get in touch with her, tell her all of the issues I am facing, and hopefully I will be getting some help real soon!!!!

Eden

Hi again, alioop! Thank you, dear! I'm hanging in... started taking oil of oregano 3x a day + a probiotic once a day (suggested by the chiropractor) for my gastro, yeast and bacterial problems... hoping I'll see some relief soon!

Eden

Dry eyes not ryrs