Posted 7/14/2014 2:35 PM (GMT 0)
What type doctor have you seen, such as a RA doctor? You might want to get a consult with an RA doctor to see if he/she thinks it's Sjogren's you have, a lip biopsy can be painful (it was very painful for me as doctor took 3 biopsies) and it then just depends on the reporting tech, mine said not inflammed enough, which was shocking to both the ENT (who took the biopsy) and my RA doctor who said I did have sjogren's.
You can try mouth care items like biotene at night, warm water compresses along with eye drops and check with your eye doctor if eye plugs would help, (read the eye plug post on here). Plus a RA doctor might also possibly add Plaquernil medication for you to try or another medication. Sjogrens is an autoimmune disease and many RA doctor do treat this disease. RA doctor do not do the biopsy, a good ENT (Ears, nose, throat doctor) will do the biopsy.
Get back into your eye doctor and ask him or her if this is sjogrens as well and get treatments started for the dry eye's if the dry eyes get worse the eye doctor can try eye plugs, chronic dry eyes is bad and can cause eye infections, I have a antibotic eye ointment, steroid eye drops, many many eye drops such as Blink, GenTeal and Restasis eye drops to name some, I've also used Sustane eye drops and some gel drops along with warm compresses and eye plugs last year I had upper and lower lids plugs which finally helped me. Later on I even had to have the upper eye plug removed because I was having tears all the time. I also had in 2006 3 eye surgeries on my left eye which probably worsened my condition.
Hope some of this info helps and many well wishes to you.