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Schitzoaffective bipolar type

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Posted 2/8/2008 9:52 PM (GMT 0)
Does anyone here have this disorder? Seems its hard to find people with this illness. I was recentlly diagnosed with it 2 weeks ago and would love to talk to others about it.




carmen confused



schitzoaffective biplar type, generalized anxiety, agraphobia
Posted 2/9/2008 7:50 PM (GMT 0)
Hi Carmen,

I don't have schizoaffective type bipolar disorder, I just just wanted to take a moment to welcome you to the board. I know we've at least had one or two people passing through who've been diagnosed with your disorder, but I can't remember if they've stayed around. Give it a couple of days and see if anyone responds. It sounds like quite a burden. Are you feeling okay?

serafena
Posted 2/11/2008 8:20 AM (GMT 0)

carmen,

welcome to hw.  i was first diagnosed schizoffective by a psychiatrist but ws unhappy with the diagnosis.  i was going to a psychologist and asked him about the diagnosis.  he told me that this diagnosis is usually a catchall when the therapist doesn't really know what's wrong or if the therapist is too lazy to check the dsdm (the "bible" of disorders for doctors and therapists).  each time you see a dr or a therapist, they must indicate an ailment that is refereenced in the dsdm if they want an insurance company to pay the bill.

it usually takes several sessions with a therapist to diagnose bp because there are several aspects to the disorder which occur distinctly.  these are the phases that we all go through as we pass through this lifetime.  fun, huh?  the dr must see enough of these phases to make a bp determination.

i checked with several docters who confirmed what my therapist told me.

i hope that this helps.

"and lo the profit said, "take heart, it could get worse."  and he was right.  it DID get worse."

warren

Posted 2/27/2008 10:46 PM (GMT 0)
im convinced this is what my boyfriend of 6 years is.

He exibits all the symptoms, and his stupid doctor thinks hes ADHD.

We live in an area of the country where it takes 2 months before you can even get an appointment.

good doctors are hard to come by, and very very expensive. You have to drive to Chicago to access them.

hang in there.

Just remember..... they arent laughing at you. They are laughing at something that has NOTHING to do with you.

thats what i keep telling my Bf

-NYX

Posted 3/2/2008 12:31 AM (GMT 0)
when people don't know what to do or say, they either laugh or cry.

warren
Posted 3/2/2008 3:45 AM (GMT 0)
nyx how come you so sure ,want to share some symptoms which helps others ,thx for sharing !!
Posted 3/4/2008 9:18 PM (GMT 0)
Hi Carmen

I was diagnosed with Bipolar I, but I have had frequent problems with delusions since I was about 10. Fantasies grew into reality way too quickly.

At 21, I still have problems with delusions, but I'm left with questions like, how much do I need to believe in my delusions to make them true delusional thoughts? Some of the things that I recognize as delusional thoughts are way out there stuff...Things that wouldn't make sense to anyone, including myself. Part of me always accepts these delusions as truth and I can believe them fully if I'm going through a psychotic break or have a bad experience with some sort of intoxication. Something has to put me on edge to really accept my delusions, but they're always there.

Sometime I worry though. I kind of wonder that if I can have these way out there delusions and be just well enough to know they're not true for the most part and have me do or be nothing but paranoid or affect my mood, then are there some delusions I have that are realistic and I can't see them simply because they're real world stuff?

I can step into psychosis without the aid of something affecting my brain other than stress, but I suppose I'm on the ground enough not to need treatment for that. With that said, I do at least have a clue on what you're going through, so I guess I could be a good candidate to chat with.
Posted 3/19/2008 6:49 PM (GMT 0)
Hello Carmen, I was diagnosed 2 yrs ago

schizoaffective type bipolar I disorder
With severe depression....
Its wonderfull to hear, someone else with the same problem..
For a long time i was to embarsed to admit i was schizoaffective..
I thought it meant i was really nuts..
Posted 4/17/2008 9:39 PM (GMT 0)
yeah
Finally someone whom can relate to me. Im Schitzoaffective bipolar type 1, agorophobia, generalized anxiety.

I take 600 mgs at nite of Seroquel, 100 mgs of lamictal morn, 1 mg twice a day of Klonopin, 20 mgs of prilosec for heartburn.

Recently I have been extremely paranoid that their are cameras everywhere, people following me such as the FBI, scool its all due to aliens trying to contact me and the FBI wants to know what they want. I know sounds far fetched. And I know these are just symptoms, but I still believe in them whole heartly. eyes

I'm taking my meds regularly and I still get the bad hallucinations, delusions, and psychosis. I just saw my pdoc April 11, 2008, then we had a meeting today on goals I want to achieve with their program. I have a therapist whom comes to my house for therapy every other week, and a peer recovery specialist every other week as well. And a case management person drives me places due to having no car plus I get scared going to new places with lots of people. I have alot of support from my mental health place.

I see my pdoc next on May 9, 2008 but I am still having these hallucinations. Oh yeah voices. But atleast they are not telling to kill myself. Thats a good thing. It's just like normal talk everyday people have. Please anybody respond and no mean or judgemental stuff.
Posted 4/18/2008 5:14 PM (GMT 0)
No one here is mean or judgmental -- this is a support community and you sound like you're really suffering. I'm sorry to hear that. Is there any way to move your doc appointment sooner?

It must be very frustrating understanding that your symptoms -- the hallucinations and paranoia -- are just coming from your condition messing with your head but also you believe it to be real at the same time. That must be hard. Do you have friends or family to talk to? Anyone outside your therapists you can confide in and make you feel a little more "normal"?

serafena
Posted 4/18/2008 10:33 PM (GMT 0)
Hi Carmen 011, I have schizoaffective disorder with the bipolar. I have not been on this board and have been on another one with my  medical conditions and read your comments and was excited I could meet with someone who is not a straight bipolar disorder person and has the schizoaffectiive components. I was a mental health therapist for 20 years and got this disease ( hereditary) from my mother. I am now on disability and not working.  I do not know why the other sentence turned out like that and I obviously am hitting some other button. If I can be of help just ask me anything. I have no symptoms now and am on medications. Look forward to hear from you. Denise (enpointe as in ballet).
Posted 4/19/2008 7:24 PM (GMT 0)
I was diagnosised as schizoprenic, but thry remover the y diagnosis after doing PET, MFI, CAT scans and my brain was demonstrating altered activity in my right and left lobes. They only thing that odd was the I had some area where there was over-growth and loss of grey matter. They diagnosed me encpholpathologic brain disoe, NOS.

I am pyschotic to variing deegrees on or off anti-pychotics. On haldol, I still hear the radio a lot in little pieces. Sometimes the neighbors TV. I almost always afraid I am being followed when I have to drive. I am able to function and "undestand" not to run over people because they try re try to kill me. Haldo makes it so I can see into a psychotic impulse or whatever and decide if it is real. I am very good at living this way. Off med, I cannot really decribe. I never even told my husband. In thime I don't believe in who he is or that my children are are anything. Only once did it go to the end where thorture of this world meant I had to die. For four days my brain could barely stay alive. It is usualy, manic or depressed, how it has to to end with just very high doses of anti
-pyschotics. I aways take haldol, but I do repond also to zyprexa about 100mg. So we take that dose of zyprexa(zydis) and also use 10mg haldol. I tend to respond in 15-29 minutes, and may need restraint. Even on meds this happens. Psychosis never is really gone.

My biplar is very different. It never really leaves the scope of of severe depression. I also have PTSD and even with they of meny kinds and many years it is not contalled, but very different from my schizo sysmptoms which involve spiders, corpes hands before they get stiff Ihave felt it for real), the government, soliers, trees, light, noise, movement, and such. A

AT 18 is when it got really dad I was in my 3 year of college, Iwas very smart, and of all sudden I coulde understand what was happenening aroundme. I dropped out, SInce my abilty to talk and write were lost. Two weks later they came back and they weird days set in.I am not under control still. I am almost 31.

quietpain
Posted 4/20/2008 1:25 PM (GMT 0)
Carmen, I was just wondering how you are doing and that I hope things are getting a bit better. Check in and let us know how its going for you. You have support here. Enpointe
Posted 7/3/2008 4:40 PM (GMT 0)
Hi Carmen,

My fiance has schizo affective bipolar disorder. He has great success with Risperdal. He tells me it has turned the volume down on the outside world and he no longer believes everything is directed at him (traffic, police lights, Truman Showesque existence..I could go on)...if you're still having delusions, maybe you should ask about an alternative to Seroquel?

Hang in.
Posted 7/4/2008 10:14 PM (GMT 0)
Hi welcome to the board,, just being friendly cause I  have Bipolar 1

  Caren

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