Posted 1/15/2014 7:04 PM (GMT 0)
Thank you both for the replies.
My family doctor is wonderful, very thorough and thoughtful. I did not expect him to notice what was going on and when he did I was 100% honest with him.
The Syringomyelia is causing pain, worst at times then others and it is causing a lot of electric feeling in my back, numbness and tingling. I have come to find out it is pretty rare 8.4 people out of every 100 000 get it. It can sometimes progress faster then others. Back in July when I initially started having problems with my T-spine I found out I had a slue of issues wrong with my back. Some of which I was aware of before because I have had lower back pain most of my life, but the T-spine pain was new. The numbness was new and got worst with the type of work that I do. When the pain was so bad that walking was a chore my doctor wanted an MRI done, the hospital refused it because my x-rays showed stuff we already knew. The x-rays showed some DDD, arthritic changes, mild scoliosis, a spina bifida that we did not know about (oculta), My L5 is fused to my Sacruum and I had a disk that was slipping. I was able to deal with all these things and in fact some of them did not even bother me but they did not explain the pain and numbness in the areas that it was occurring.
The hospital refused the MRI and instead we ended up with a CT scan, which confirmed the Disk changes, my doctor was still sure there was something wrong so he wrote the hospital in hopes of them going ahead with the MRI, he suspected Syringomyelia and told them that so they fit me in almost right away, test results came back and my doctor was right and the diagnosis made sense. Finally I had answers.
I work in a fish processing plant, so the types of work is hard on me depending on what I am doing at any given time. I am fortunate that they know about my back issues and are accommodating when it gets bad, though it takes a lot for me to give in and let anyone know how bad it is, I try to hide it as much as I can.
My doctor wanted to take me off work because of the off balance in my Bipolar disorder, but I refused because financially I am unable to take time off work right now. If it gets too bad I will have no choice so now that I am not too bad I have to work. Right now I only work 12 hours a week, usually 2 short shifts, I told my doctor this but he still thought it was too much for me right now. He suggested that I take a vacation but that is not an option for us right now.
I see my psychiatrist again in February.