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Chemo protocol...Xeloda questions....

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Posted 3/10/2005 9:47 PM (GMT 0)
Fisrt off..thanks to all of you noisy ladies that went with me to my appointment..pink feathers were everywhere...LOL

I start Chemo on Monday March 14th at 11:00am.

I will do taxotere every 3 weeks for 6-8 treatments.

Xeloda twice a day for 2 weeks on & 1 week off, not sure how long.

Aredia every 3 weeks.

Although they gave me a video and tons of reading material

about Xeloda, I dont know much about it. If anyone has

any info please let me know. Hoping Taxotere isnt as bad for me as Taxol....

I am not looking forward to treatment again, but I will

be able to do it again with all your love and encouragement.

I am sad ....

Love and Hugs

Cathi

 

Posted 3/10/2005 10:12 PM (GMT 0)
Cathi, I wish so very much that you did not have to do this. I am so glad we gave you a smile today. You know all these pink flamingos in one drs. office had to look pretty strange. Sure glad your Dr. is used to us. I have already told you all about my experience with taxotere. I can not help with the other one. I am so crossing everything I own wishing for the best possible luck with this treatment. Love and hugs, Joyce
Posted 3/10/2005 10:13 PM (GMT 0)
Hi Cathi,

I am sad with you. I hate the thought of starting it again someday too. My friend Rose Mary is still on a new drug called Faslodex which she gets from a shot. I think it's only for er+ though, I'm not really sure. But, you know that I will be praying for another remission, at least. A total cure is best so I'll pray for that. Are you er- like me? I keep hearing that er- does respond to chemotherapy better than +. I don't have any personal information about Xeloda though. I love you, Cath. I think of you so often each day Di

Posted 3/10/2005 10:16 PM (GMT 0)
Oh Cathi,

 

I wish I had more to offer you but I'm a newbie with nothing more to give you than this.....

 

BIG CYBER HUG

{{{{{{{{{{{{{{Cathi}}}}}}}}}}}}}}}

 

Holding your hand and keeping you in my prayers,

 

 

Posted 3/10/2005 11:34 PM (GMT 0)
Oh, sweet Cathi....I am offering you as many cyber hugs as you need. I have lots that I can share with you! I think this time around you are wiser and more experienced and you will be able to take charge...if q 3 weeks means too heavy of a dose, maybe they can switch it to weekly...people seem to tolerate that pretty well. I think Shelley was or is on Xeloda and tolerating it well. I know it can cause hand and feet problems, but they say that adjusting the dose takes care of it.

Cathi, we're here for you any time. Tavish is a better support for you via cyber space, rather than in person...he has some biting issues sometimes. He does not mean it, but it can be a problem.
L&H and more H....
Lori
Posted 3/11/2005 2:06 AM (GMT 0)
My dear, sweet Cathleen. I love you.

Becky
Posted 3/11/2005 3:20 AM (GMT 0)
Our loveable Cathi,

I will be sending prayers that this treatment will go smoothly and not be too hard on you, and that it will do its magic on those "c" cells.

What else can I say, but that I will be walking this journey with you Cathi. Anytime you want to "vent" we are here sweetie.

Angels are surrounding you thru this ^j^ ^j^ Cathi ^j^ ^j^.

Love you dear one.
Debbie
^j^ ^j^ ^j^ ^j^
Posted 3/11/2005 4:56 AM (GMT 0)
Cathy,

 

I am currently on Taxotere and it is much easier to tolerate than what I was on before.  I've only had one treatment, but didn't have any noticeable side effects.  I understand it can cause tingling and numbness in the fingers and toes, but I haven't gotten that.  I have my next treatment on Tuesday. 

 

I'm sorry you are going through this again.  I can't imagine doing this more than once, but be strong and believe that everything will be alright.

 

Hugs,

Posted 3/11/2005 11:34 AM (GMT 0)
Cathi, I did xeloda last year. It was the easiest chemo I have done. I also did taxatere and tolerated that well also. I didnt do them together. With the taxatere the Dr. put me on vitamin B6 100 mg to ward off that neuropathy. I didnt get much of the bone pain that many do get. After each treatment I would get a drippy nose and felt like I had a cold. Some of my nails got black streaks on them (easily covered with nail polish) The xeloda was a breeze. I did not get the diarrhea that many get. My hands and feet turned a brownish color, my kids found that weird. Feet peeled like crazy were so dry. So my advise is to get some udder cream or bag balm or a really great lotion and slather your feet nightly. Email me anytime. Good luck. Good thoughts coming your way.
Posted 3/11/2005 1:26 PM (GMT 0)
{{Cathi}}} My dear sweet sister...I am so sorry that you have to go through that again. I am sad with you. Like the others said we are here for you and you can lean on us anytime. I hope you have an easy time of this and it does the trick. I didn't have any of those treatments so have no advise to offer but just to tell you that I will be here for you each step of the way.

Love ya
Sara
Posted 3/11/2005 1:33 PM (GMT 0)
My sweet Cathi, I'm sorry you are having to go through this.  I'll be there with you each step of the way... watch for those cards they'll be carrying gentle hugs.  Love you, Libby

Posted 3/11/2005 2:18 PM (GMT 0)
Cathi, how can I add anything to all the above posts? We all care about you and feel badly that you are having to go through all this yet again. But I am sure you will do anything to stop the pain and the march of this awful disease, and we are here to hold your hand through anything and everything. I hope and pray this is be the answer. Hugs MK
Posted 3/11/2005 3:28 PM (GMT 0)
(((Cathi))), I'm holding you tightly. You've been so strong, but I sure can understand your sadness. Please know that I'm thinking of you. L&H's, Luci
Posted 3/16/2005 8:11 AM (GMT 0)
:-)  Hi I take taxatore once a week with Xeloda twice a day. I  find the Xeloda somewhat diffucult for me only because of the neuropathy. My feet burn and tingle alot and they shed something awful. Dr. wanted to take me off of the Xeloda because of side effects. I am going into my second

cycle of treatment and they feel it will only get worse. My thoughts are my tumor is shrinking with this combo and I am not a canidate for hormone therapy. I will have surgery after my chemo followed by radiation. So for me I manage the side effects in hope that this will take care of the issue. When the 2 chemo's meet they hit hard but it's worth it to me. I am 43yrs old working a 40hr midnight job that allows me to take it easy. So I feel for me it is a workable for me now. I promised my dr. I would not be a marty with the pain yet I want cry every time I have some discomfort either. I just listen to my body and readjust as needed. Hope all goes well for you 

Posted 3/16/2005 4:21 PM (GMT 0)
Gee emmeria you sure are taking the bull by the horns. Atta girl. You have a good attitude under extremely hard circumstances. Hang in here and maybe we can help when you need to vent and maybe we can even answer some questions. We have women of all ages and all stages of BC. Cathi here is a great example of fighting the good fight. She has bone mets and has been through a lot. Hugs, MK
Posted 3/17/2005 7:19 AM (GMT 0)
:-)  Don't get we wrong there are days when the bull drags me around the block and back. I just try to control it when I can. If things could be different believe me I would not be working 40 hrs nights. But I carry the insurance for my family and its to late to change over to my husbands. I don't like his anyway. But we have such a long road ahead of us that it's just not smart for me to use up all my time early on. So I bite the bullet and carry on. I have a loving husband and 2 great kids (20 @ 26) and I am the youngest of 12. I am well supported by my 7sisters who still forget that I am a adult. That sometimes work to my advantage that they allow me to act like a baby. I love them dearly. Yet I still have to do what is best for the family which is keep the health insurance going. So see I just like the others making sacrifices for the benefit of the family. I do enjoy reading the postings they really are very helpful.
Posted 3/19/2005 4:07 PM (GMT 0)
{{{{{{{{{{{{{{{{{CATHI}}}}}}}}}}}}}}}}}}}

Hope that this treatment goes better than the Taxol! Sounds like it will, based on the other posts.

Love you lots,

Peg
Posted 3/20/2005 5:56 PM (GMT 0)
Hey ((((((((((((((Cathi)))))))))))))

 

Here's hoping taxotere is better for you.  I hope you have an easier time of it than I did.  I found that the narcotic painkillers allowed me to work on days 4-8 with it. 

 

I'm so sorry you are doing this again, hopefully it will kill the buggers and give you some quilting fun and times of loving and sharing with us!!!!!

Posted 3/21/2005 3:42 AM (GMT 0)

Cathi: I am sorry that you are having to start treatments again. I had to start a yr ago Oct (after 2 yrs of everything being ok) and it is tough to digest. But, we are some of the strongest and best fighters in the world and have one of the best support systems right here. Hang in there. Let us know how you are tolerating the treatments.

Hugs

deb

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