Wow. First of all, sending hugs your way (((((Mia))))), because your really, really need them. Second, I wanted to say that you evidently did a wonderful job in nurturing her and preparing her for this day. I applaud you for talking with her so early, which allowed her to be informed and not freightened, when she had her "visit". Nine is such a young age. She is still a baby, herself. I cannot imagine your total emotions, right now. Unfortunately, starting periods at a young age does up the risk. I do think, however, that by the time she is at an age, where bc may be possible, this disease will be manageable and not the disease that we know, today. I worry about my girls, too. Blessings.