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Posted 4/5/2005 11:14 PM (GMT 0)
I don't make it very often. Thanks Mikki for the pink feather it will be with me in my journey. I can't believe all the new names. My treatment nurse informed the beginning of March I had my 200th Herceptin. That drug wasn't approved until after my diagnosis. Hard telling where I would be without it. The Navelbine isn't bad. It does a number on my white and red counts so have shots every week. I hope that it is doing the same to the cancer cells. Tumor marker stablize for a short time but this week it was up some more. At some point I will probably breakdown and let them scan me to find out just where it is at. It's been a long time since any CT or MRI's have been done. I kind of glanced through to see if Shelley has posted and I didn't find anything since a month ago. Does anyone have any info on how she is? Love and hugs to all, Cyndy

Post Edited (cynd56) : 4/5/2005 5:42:43 PM (GMT-6)

Posted 4/5/2005 11:49 PM (GMT 0)
Hi Cyndy,
Wow! 200 treatments. That's wonderful. They yanked me off after 5. We really have to meet one day. I hope to be in the N.W. Indiana area sometime over spring of summer. That depends on how Dean's new house is coming. Is your address and phone number the same as it is on my sheet? L&H, Di
Posted 4/6/2005 6:51 PM (GMT 0)
I am glad to see your post Cyndy. You know I think about you often. I have not been real good about sending cards since before Christmas. I am sorry to say I don't know how Shelley is. Joyce keeps close tabs on her, perhaps she can let us know. There is another young woman who just came to the board last year Jen Possible who lives near Mikki. She has had a really rough time, too, so I am wondering about her also. You and Jackie (bandlady) are both veteran members with many, many treatments. It is always good to hear from you. Lots of hugs, MK
Posted 4/6/2005 10:18 PM (GMT 0)
Hi Cyndy! I'm fairly new here but wanted to let you know that I am on Herceptin and the Navelbine also. I take them weekly and have for the past 17 mos. I also get an IV med to strengthen my bones every 3 weeks. I had to get a procrit shot this week as my counts were down but the last one that I had was in November. My markers have been fairly stable. When they go up I get upset by my onco says it's not enough to worry about. Do you have the muscle spasms? That is my worst complaint, outside of being tired after treatment. I have scans every 3 mos as well as a mugga. I dread the time when all of those are due. I hope that you continue to do well. Take care and maybe we can meet someday.

Hugs..Deb

Posted 4/7/2005 12:02 AM (GMT 0)
Hi Cyndy -- this is Jackie, aka has bandlady2 from ivillage!  Didn't you have a BMT?  I did in '99 . . went for treatment today and I checked . . this was Herceptin 218+ .. my nurse said it is probably closer to 300 because for the past year or so I've been taking double doses every other week.  I am now the Abraxane guinea pig . . took it today also.

Glad to see you post.

Jackie

Posted 4/7/2005 1:22 AM (GMT 0)
How good to see you post, Cyndy! Thanks so much for the update. Here's a prayer that the chemo keeps doing its job.

Hugs,
Becky
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