epstein barr virus

I actually had a milder case of mono about 6 months after the big case. Which back then they said could not happen, but it did. I strongly believe that ebv lingers in a person forever.

yes im 27 male diagnosed with mono may 1st they said i had a mild case did any of you have muscle aches and pains and weakness in muscless that was the main thing for me and sore ribs and itchy skin throat a little sore and 1 swollen node not to swelled though but i been fatigued still light hurts my head i get anxiety attacks i can't take this much more i feel like im 80 im so streesed my father is in the hospital with an anuerism on his heart my mother wanted me to wake up today and take her to see him i felt so bad i couldn't get up but eventually i did and can mono lower your lymphocyte count mine was 15.9 normal is 20-51 from my hospital my tonsils were never white also but monospot is only 85% accurate i was worried about hiv or mold in my apartment cause my g/f has same symptoms as me she was neg for hiv though and neg for monospot twice if you have mono and it goes away will the monospot be positive for the rest of your life. but im startin to think i have CFS, here in pittsburgh it seems like alot of people are getting sick with mono kinda strange maybe there puttin somethin in the food to weaken everyone's immune system for when the bird flu hits

ty mom well my doc said my lymphocyte count was a little low because of the mono but i don't know i don't really ever take naps but when i sleep i sleep 10 - 12 hours sometime but when i am up i have no energy but my family always tells me and my g/f don't go to doctors they will make you sicker and tell you that you have this and that which my mom is 70 smoked for 50 years never ever goes to the doc and she's in really good health i think better than me but i worry about hiv alot but i don't know im a big worrier.

Also, I'm finding alot of herpes involved with this... Do I have an std? I'm starting to freak out but understand I might be misconstruing what I'm seeing on the internet.

I was just diagnosed with EBV after having been sick for 6 months. It started with constant nausea, fever, and utter exhaustion. Now, it is much more mild than in the beginning, but I aways feel a general feeling of fatigue, dehydration, and nausea. I am an extremely physically active person, energetic, and driven, and refuse to accept that I am just going to have to feel like this forever. I know that the symptoms can be somewhat controlled by making dietary changes, taking vitamins, etc. I was wondering if anybody out there with this condition has found a regimen that has helped them to manage the virus and live a somewhat normal life.

In addition, what kinds of laboratory tests/etc have people done in order to assess the situation, and are there other related conditions that I should be vigilant of?

Basically, I'm just looking for a very practical way to tackle this thing. In about 6 months I will be in a position to really seek good, thorough medical care but in the meantime I am out of the country doing volunteer work and have limited access to medical care. I'd like to do what I can while I am away to control the situation, then get after it with my doctors when I get home.

Thanks everyone.

hi, I just wanted to know if anyone knows the extent that this virus affects the liver and does anyone know if this condition is fatal?

Hi! I'm from over on the Ulcerative Colitis forum and seen the title of this post so I thought I would stop in and ask a question. How long can mono stay in your body? Is it a lifelong thing meaning that once you have it does it remain dormant in your system until something activates it again? Truthfully I am not that educated on mono but I did have a pretty bad case of it when I was 17. Lately I have been so extremely fatigued that shouldn't be contributed to my other illnesses (which are in remission) nor my medications. I have been to the doctor and she has tested me for everything under the sun but yet I still feel sometimes weak and I feel like I can just fall asleep on my feet. I'm just trying to figure out the cause of this intense fatigue.

I have had EBV for 14 weeks, ( bedridden for 11 weeks) and have thankfully started to feel a bit bettter and wanted to share what I've done in order to get back to a semi-normal life. I have been completely frustrated with the treatment for EBV....doctors just say, "Go home and sleep". This is not a good enough answer for me. I am fortunate enough to have good health insurance and I just wanted to share and hopefully help anyone who is suffering from this virus. I searched and searched for answers and believe me...there is really not much out there except for out dated and conflicting advice.

First, I have never in my life experienced anything like this virus and my struggle is still continuing. Thankfully, the bad days have started to become less and less. But, in the beginning, I really thought I was dying or going crazy. For the first 2 weeks, I could not move or eat. I finally got the diagnosis when I went to an internist and begged him to test me for everything. My EBV was 1522 and DHEA was 1342. I'm a 37 year old healthy female, the only problems I was having before this were hormonal issues and I was also in severe pain after working out (of course, people responded "you just need to work out more".....in my case, not so.)

My second lab test (about week 5 or 6 of virus onset) the EBV elevated to 2338. I finally broke down and started Valtrex, and it honestly helped ME alot. I wish I would have gotten the precription for Valtrex at the first diagnosis, but I'm hard headed and I'm not a big supporter of pharmaceuticals. But, with all honesty, they have helped me.

The early symptoms I had:
*fatique so bad, like the blood in my body wasn't even flowing; a complete energy crisis
*Dizziness & tunnel vision that both lead to nausea
*Extreme Muscle pain (especially in neck, back and legs)
*Insomnia
*Heart Palpatations
*Unable to think, eat, almost dulsional
* I had to force water into my body
*Weakness and tightness in muscles (for a week it was hard to walk and when I did get up it was like I was drunk)
*Migranes
*Major anxiety
*Sensitivity to noise and light
*Heartburn, constipation, severe stomach aches
*ear aches & buzzing in ears
*Mild fever
*Lots of tears, frustrations, bouts of anger

I'm about 75%. I still suffer from muscle aches and tightness, spasms, migranes and fatique. But, I am not bedridden everyday like I was for the first 11 weeks.

I read the book "From Fatique to Fantastic" and I'm following the vitamin supplementation in the book. It's alot of pills to swallow, but I will to anything to kick this virus. I do believe it has helped. I had low Vitamin D, so also I've added it 2 X a day. I would highly recommend Vitamin D if you are in bedridden. I wish I would have started it in the beginning of the virus.

I am doing restorative yoga just about everyday or when I can move or feel like it. I started a few dvd's about 4 weeks before I got sick and whenever I can do 5 minutes just to stretch my muscles I feel better. I highly recommend "Candlelight Yoga" and "Meditation for Beginners" they are both gentle and relaxing. I rented them from Netflix, then I liked them so much I bought them both from Amazon.

I am taking the following RX:
AM: Wellbutrin, Celexa, Valtrex (500 mg)
PM: Valtrex (500 mg), Ambien CR (12.5 mg)

Before I got the EBV onset, I was taking no rx drugs.

I have also changed my diet in MAJOR ways. I flew from CA to Portland, Oregon 4 weeks ago, around week 10 of virus (it was an very painful & tearful flight). The doctor did a blood test to find foods that were inflammitory and that my body was reacting to. Among the list were thing that I was eating alot of and I thought were healthy. On the list were eggs, all beans, flax, dairy, and others. I cut them out and I'm not having the bad stomach problems and pain. I know this is not for everyone. But, I am determined to not eat anything processed or in a box. This is out of sheer determination to heal my body and be healthy.

I now only ocassionally eat meat and my diet consist of mostly veggies and fruit. I use our juicer ALOT (atleast once daily, mostly 2 times a day). And...those of you that say eating healthy is expensive, I swear, it's not! At Costco, you can get in HUGE amounts organic carrots, celery, grapes, apples, oranges, berries, kiwi, plums. I am able to load up for around $55 for the entire week. This also provides enough fruit and veggies for my husband and daughter.

I hope that anyone that is reading this this that has EBV is surrounded by love, compassion and understanding. It is an unexplainable experience and I wish I could say that it has been easy. My only advise is to listen to what your body is telling you and give it what it needs. I can't tell you the things I have done will help anyone else, but I have reached out to many doctors and I recieved no real answers. I wasted alot of energy to try and find "the answer" at a time when I had very little energy available. I have a new found compassion for people with chronic illnesses. I hope that by sharing what I went thru, I can help anyone who is able to find this information.

There's such a thing as CFS caused by chronic mono (the Eppstein Barr virus), which is what my doctors are looking into as well. Not that it's that useful of information seeing as, to my knowledge, it's as without a cure as all CFS is. I completely understand your frustration-- I've been sick for 2 1/2 years with no end in sight. I just have to hope there's a better way of coping that I haven't discovered yet... and that's why I'm here.

I am on evtox to get rid of Epstein Barr, its been done before by others. Its homeopathic. I am feeling so much better since.

Panicky was my old nickname can't believe some of my posts are still around from 2006 and still feel the same except mush worse leg pain, and amy1998 i have like every symptom you have.

I have an 5.92 Range is H Index, for an Epstein Barr Virus VCA Antibody (IGG) EBV Capsid AB IGG. Ot says <OR = 0.90 Negative, 0.91 = 1.00 Equivocal, > OR = 1.10 Positive. So what does a 5.92 mean?

Thanks, Deb25. Maybe someone else will.