Does anyone else have weird eye symptoms?

Hi all,

I'm in the process of being possibly dignosed with CFS, obviously i have a lot of tiredness but my main symptom which is worsening is a feeling of pressure and strain around my eyes and in my temples. although i can see ok i feel as if it's taking all i've got to hold my eyes still, it feels like they want to cross or flicker to the side, they don't but that's how it feels, this causes such a wierd feeling in my head and literally makes me feel disorientated and off balance, it's even worse in odd lighting or in a busy environment where i have to look around more, although as i said, my vision is not distorted at all, i've had several eye tests and other than a slight stigmatism in my eyes there's no problem with my vision. i guess i want to know if anyone else has experienced this or whether the doc is barking up the wrong tree with CFS. I know you can't diagnose on here but it would help to know if anyone else has the same problem.

And while i'm here can i list a few of my other symptoms and see how many tick the boxes with things you have all experienced?

Heartburn, really bad, most of the time.

tingling or 'cold' spots on my arms that last a few seconds, as well as 'hot' spots that last a few seconds

Ringing in my ears, and my hearing 'switching off' in one ear for a few seconds

Tiredness in my head but not really in my body (if that makes sense!)

Too much mucus in throat (sorry to be gross!)

any ideas and comparisons would be very helpful,

thanks, Sarah :o)

 

Hi,

thanks for your reply.

I have only had regular eye tests at the opticians, just the standard test you have to determine which glasses you need.

I am seeing an endecronologist on monday, i've finally been referred by my doc after he admitted he knows very little about CFS, and after years of going to docs and being told my blood tests are normal so there's nothing wrong.

Yeah i'm worying about MS too, but having read through the symptoms of CFS and MS about half of it seems to fit both and half of it doesn't seem to fit anything. It's so frustrating, i guess i just need to know what i'm dealing with, it's like trying to fight an invisible enemy.

Anyone elses experiences of these symptoms would be appreciated,

thanks, Sarah :o)

Yes, Lyme is the disease that comes from tics, but I've learned from people at the Lyme forum that you don't have to remember being bitten or getting a rash. Also, I think a lot of the lab tests for Lyme are unreliable. If you go visit the Lyme forum they can tell you the specific labs that run the most accurate tests for Lymes. I'm glad you are getting to see a specialist and I hope you get some answers or at least a little more direction.

I have had eye pain, they just ache, and are very sensitive to light
but i was thinking it was from sinus pressure?
i have also been having problems with too much mucus, i have been having lots of drainage with my last bout

but i have not been diagnosed as to what i have
sorry im not much help

I have had many eye problems in the past.........Mine began as having blurry vision with floaters. Mine would linger for months before stopping. My vision changed 3 times in a years time and had the eye doctor quite worried.

After that year of issues, new symptoms began. I had light sensitivity so bad that I could not stand being in bright lights. I wore dark sunglasses but they made me dizzy.

Then the floaters came back and my RX changed yet again. Then my eyes got better and then worse. Back and forth. Now I get bright flashing lights like super bright silver flashes. Also, if I happen to look at something bright and then look away, the image is burned in my eyes for awhile.

I just found out I had a positive Lyme test from 2006 and believe this is what has been causing my eye problems for the last 12 years. I will be getting treatment in early December.

Here is a small list of what LD can do to the eyes:
~~~~~~~~~~~~~~~~~~
Eyes/Vision

Double or blurry vision
Increased floating spots
Pain in eyes, or swelling around eyes
Oversensitivity to light
Flashing lights/Peripheral waves/phantom images in corner of eyes
~~~~~~~~~~~~~~~~~~

Your other symptoms resemble LD as well. I wish you well in finding help and treatment soon.

Hi kota, I would definitely talk to your doc about your headaches. I get the same type of headache and it's awful. I get pain in my forehead and behind my eyes and it hurts so bad it feels like my eyes are going to pop and explode. Mine seem more related to my lupus, but it could be a thing that's related to cfs or fibro too.

Yes!  Now that you mention it, yes I do.

Increased sensitivity to bright light

and a strange 'pressure' behind the eye socket, i assumed it was some sort of sinus irritation

my eyes also get 'tired' for lack of a better word, it feels like it takes additional 'effort' to look left and right

no vision problems and the pressure feeling comes and goes.  I did just recently read an article about a link between chronic fatigue syndrom and chronic sinus problems, i'm wondering if the eye pressure is part of that.  I've got a follow up with my specialist and will plan to bring that up as well.  I'll let you know what he thinks.

 [original quote: Also, is Lyme disease the one that people get from tics? end quote] 

Another tick-borne disease, Rocky Mountain Spotted  Fever. MY last and most severe flare(about 2 years ago) from which it appears I will not recover  was a result in large part due to this illness going untreated for 7-8 months while my (then) doc repeatedly refused to do the test, stating that it is not found i our part of the country. He did test me for Lyme Disese which was negative at the time. 

My husband gave me an article about a Game and Fish Officer with whom I shared many symptoms. The Officer is now terribly ill,unable to work and keeps being turned down by SSA for disability. Fortunately, he had a small longterm disability policy from the state in which he works. A different state from mine, the doc pointed out, when I made him read it.

My next doc tested for RMSF immediately, without me asking. 

MY medical herstory:

I was diagnosed with Multiple Sclerosis, Chronic Fatigue Syndrome and Fibromyalgia 12 years ago after a couple of years of a repetitive mystery illness, initially thought to be mononucleosis after testing positive for Epstein-Barr virus (EBV) and Cytomeglovirus (CMV).

 

My condition continued to progressively worsen over the years and I havebeen unable to work since May of this year. My doc believes that I will not improve sufficiently to ever work again. Social Security Administration does not consider Fibro a disability diagnosis, but is considering adding Chronic Fatigue Syndrome as a disability classification. 

I hope all goes well for all who are dealing with these illnesses and all they bring with them. 

 Namaste.

Post Edited (IzzieBee) : 11/25/2007 6:57:41 AM (GMT-7)

Yes I have all your symtoms and more and after 2 years of being told I have cfs/fm I found out I have lyme disease, get tested through IGENEX labs to see if you have it and remember you can have neg test and still have it. if you have had it for a while the tests are neg alot of the time becouse it hids very well.