HealingWell
Search Close Search
☰

How many with CFS also have FMS. or think you do???

Support Forums
>
Chronic Fatigue Syndrome
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/10/2009 4:27 AM (GMT 0)
I am curious if most with CFS do feel they have FMS too?

Post Edited (KeepHope) : 3/8/2009 1:13:17 AM (GMT-7)

Posted 1/10/2009 4:38 AM (GMT 0)
Yes I do have both CFS and FMS
Posted 1/10/2009 5:07 AM (GMT 0)
I also have been dx with both.
Posted 1/13/2009 5:36 PM (GMT 0)
I have ben dx'd with both.  That's interesting isn't it?  I wonder what the percentage is.  It will be interesting to find out.  Hugs, Denise

Posted 1/14/2009 8:59 AM (GMT 0)
My daughter got CFIDS first, followed later by Chronic Lyme Disease and coinfections, and then Fibromyalgia. The LLMD says when Lyme is killed off, FM will go away.
Posted 1/14/2009 3:46 PM (GMT 0)
I never knew I had CFS until my doctor wrote it as one of my conditions in my SSDI paperwork. I was diagnosed woth Fibromyalgia first.

Kathy
Posted 1/17/2009 12:25 PM (GMT 0)
I do, I spend all day drifting in and out I cant even move though I force myself everytime I wake but the moment I go back to chair down I go again and its not good sleep it  makes me more and more tired and I have bad fibro and see pain spec and im sick of it all   suse2z mad
Posted 1/27/2009 2:22 AM (GMT 0)
I have both also. Ive read online that some doctors consider the two to be connected but on different sides of the spectrum.
Posted 1/27/2009 4:52 AM (GMT 0)
Hi. Yes I have Fibro as well as CFS, the Rheumatologist that I saw told me that, "If you have CFS of course you have Fibromyalgia. If the pain is more prominent than the fatigue we give you a diagnosis of Fibro, but if the fatigue is more pronounced we say you have CFS." Mind you, he also told me that flatulence was not a symptom of Coeliac Disease. I used to be an SRN, and I know he was wrong on that one so what about the Fibro/CFS? Chizlib
Posted 1/28/2009 9:17 PM (GMT 0)
I've been diagnosed with Fibro.. however I experience fatigue episodes where I can't move or anything for a period of minutes, sometimes hours.

And I relate to a lot of the CFS, and I believe both are very closely related.
Posted 2/9/2009 5:04 PM (GMT 0)

Yes!! I have CFS and Fibro. Both severe. rolleyes I've had them for 15 years been to a couple of the big hospittals. Does anyone have bipolar depression with their cfs?

Posted 3/2/2009 6:54 PM (GMT 0)
YES,,,dx with both cfs primary and fms second. My depression is from dealing with it.
Thanks for asking. I'm curious also.
Posted 3/8/2009 6:27 PM (GMT 0)
Yes, I have been diagnosed with CSF, FMS, EBV, and Candida. I also have some food allergies to dairy, wheat and my doc wants me off all sugar including fruit, fruit juice, etc. I am doing much better since seeing Dr. Jenefer Huntoon in Seattle. Her strong therapeutic enzymes are supposed to literally digest the virus, yeast etc. and this seem to be working for me.
Posted 3/9/2009 11:27 PM (GMT 0)

Hi all, yes I have been diagnosed with severe sleep apnea and Fibromyalgia. After taking the apnea test over night twice, they said that I wake up every 45 SECONDS. No wonder I'm tired alll the time. I have to sleep about 15+ hours a day to feel refreshed. I tried over and over again to use the CPAP machine and I can not get used to it. For the Fibro I use the 10's unit. Though I am on a lot of meds for other problems, I am on no meds for Fibro as they have all made me too sick or they didn't work, even Lyrica. Only the 10's unit works the best so far, but it's annoying and it really hurts to take the sticky pads off. OUCH!!!!

Take care all, God Bless.

Holly  redface

Posted 3/12/2009 2:23 AM (GMT 0)

Lyme disease often the root cause of Chronic Fatigue Syndrome and Fibro. Please try to see an lyme literate doctor. I think that as more research is done, my guess would be that over 90% of CFS suffers have lyme disease. Right now there is no known cause, but soon we wil find the truth. Please let me know if you need the name of a great lyme doctor in your area.

good luck.

✚ New Topic ✚ Reply