Soo Frustrated!

BlueD, I know how hard it is. What you are going through is a grieving process. We have to grieve our old lives & somehow come to terms with having an illness that has changed our lives completely. I remember being where you are, so angry that my life was different & I had lost control of it. Also, sad & afraid that I was always going to be this way. I then spent months trying to gain control again, pushing myself & being slapped down by this illness again & again. This is a hard process but let me tell you that you will get through it, you will find your way with being chronically ill. I just started reading a book called "Chronic Fatigue Syndrome, a treatment guide", I am learning so much I didn't know & feel empowered with what I figured out on my own. I would recommend it to you. I downloaded it for only 2.99 from Amazon.

Take it one day at a time & pace yourself. If I don't feel well when I get up, I usually do some light housework but spend most of the day on the couch resting. On good days I get myself cleaned up & go out for awhile, do my shopping, get my mail, pick up prescriptions, etc. I try to live on those days even though they are fewer then my bad days. I hope you are doing better, I saw you have other illnesses as well, so hang in there. Post as often as you need to & vent all that you want. Believe me we understand. Soft & gentle hugs, Denise

Good for you for getting out & doing something. It is a trade off, balancing energy with fatigue. It is very frustrating to have to do this but it is what it is now. Coming to terms with this illness is actually such a relief. It is not giving in to the illness, it is coming to the understanding that our bodies have limitations. Please keep posting & let us know how you are doing. I have found talking to others helps me so much with my illness, seeing that I am not alone when I feel alone helps. Many hugs, Denise