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fatigue for as long as I (and my mom) can remember

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Chronic Fatigue Syndrome
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Posted 6/5/2007 1:28 PM (GMT 0)
Hi,

I'm a newbie, trying to figure out what's going on with me. I've been fatigued for as long as I can remember, and my mom confirms that I've always been like this. I always thought it was because I was depressed, not eating right, or out of shape, but now I have none of those properties, and I'm still like this. I've slowly got myself up to running for 30 mins. at a time (thanks, coolrunning.com) from being unable to run for three minutes. But even though I'm really proud of and happy with that, a flight of stairs still makes me woozy.

I found this forum, and although I don't seem to have had a rapid onset of symptoms (at least, none that I can remember), I wonder if any of my symptoms might ring a bell, or if you might let me know what other tests I should have done. There seem to be a bunch but honestly I'm too foggy right now (I'm home with a cold) to sort through them, so I'm hoping you guys can help!

I went and got some bloodwork done, and got a whole lot of normal results: iron, hemoglobin, thyroid, blood sugar. I do have low blood pressure, but friends with lower blood pressure than me don't seem to have my symptoms.

My symptoms (everything I can think of, since I don't know what's relevant and what might be something else):

general wooziness coming over me in waves, especially climbing stairs, standing on the subway, shopping, cleaning
yawning uncontrollably, especially during yoga and after a certain point at night
can exercise, but long days wear me out
exercise and cold-weather asthma
low blood pressure
not always thirsty, but seems like I can drink a lot of it without feeling hydrated
mere colds seem to really knock me out for no particular reason
intolerance of heat

Any thoughts for my next move?

Thanks in advance! I appreciate it.
Posted 6/5/2007 6:10 PM (GMT 0)
Did your doctor say anything about CFS when she/he issued the lab work? Did you mention you thought you might have it? Have you had your thyroid checked?
Posted 6/6/2007 5:54 PM (GMT 0)

 Hi,

 I am Robert, from the Lyme forum. Buy the Book, The Yeast Syndrome. $7.00 Get a 3 day stool sample done from Genova labs, also go to www.google.com, search for MDL Labs, checkout their tests for yeast/candida,lyme. Yeast/Candida can make your life a living hell and fatigue is the most common symptom.

 Get to a holistic dr. soon. Drink lots of Evamor water, but it at Wild Oats. Read that book, buy it today, ok! You can get some good tests done from these labs, they have tests for fatigue, and many others. Also, get checked for co-infections to lyme disease as well.

 If you are feeling worse after eating certain foods, it may just be yeast/candida, and you will need to be treated, and you can recover,  FULLY!

 Robert

Posted 6/7/2007 4:14 PM (GMT 0)
You have some of the symptoms that I have/had and was dx with myasthenia gravis. You can have this disease from childhood. You can read about myasthenia on the internet. There are some pretty definative tests for the disease. The disease works by your immune system attacking your muscles. Look it up and compare what you are feeling with the info you get on the web. It is sort of rare disease so not a lot of people have ever heard of it. Good luck.
Posted 6/7/2007 9:24 PM (GMT 0)
Thanks! Yes, my doctor said nothing about CFS, and to tell the truth, I don't think it's likely, but I want to know about what else it might possibly be, because now that I've exhausted (heh) the basic options I was tested for, I have no idea what comes next. I'll look into the myasthenia bit, thanks for that!
Posted 6/20/2007 5:15 PM (GMT 0)
I also have had fatigue for as long as I can remember.

I went to a chronic fatigue and fibromyalgia clinic yesterday and they are running the full gamut of tests.
the doc was convinced I have chronic fatigue and was certain to find certain thyroid numbers off.

we'll see...
Posted 6/20/2007 5:16 PM (GMT 0)
oops. forgot to mention, I believe there is a link w/ the yeast thing ast well. just not sure what it is yet.

my doc said nothing about cfs either, so i just jumped ship and went to the clinic. at least they take it seriously there. i'm tired of hearing, "that's just the way your body is; deal w/ it."

Posted 6/20/2007 5:30 PM (GMT 0)
Good luck with getting your answers. I'm still waiting for some tests back myself...
Posted 6/21/2007 10:33 PM (GMT 0)
let me know what they find out..
Posted 6/24/2007 9:27 PM (GMT 0)
Zola,

Be careful at the FFC. They overdosed me on throid meds. My new dr told me I could have had a stroke or heart attack. See my response to your other thread. I had a real bad experience with that clinic. So have many other people on a difference CFS forum I post at.

Posted 6/25/2007 10:04 PM (GMT 0)
Have your dr. check you for epstein-barr virus. Here's what happend to me. I had infect. mono for over 8 months. The company doctor kept telling me I had tonsilitus. The antibiotics she prescribed kept the mono down to a mild roar.  Because I had the mono for so long, it activated the ebv in my blood. I was so exhausted, I would fall into such a deep sleep neither my husband or son could wake me without alot of difficulty, so I finally went to my dr. and she ran bloodwork. The good news about ebv is that it is treatable with an anti depressant. If you find the right one for you, ebv can become dormant in your blood. Ebv is also one of the main contributors to chronic fatigue syndrome. Maybe you have the same thing.

Posted 6/26/2007 12:34 AM (GMT 0)
Hi,

I'm new at this too. I originally went to the doctor, because I was exhausted all the time. You can exercise, I got to the point where I couldn't anymore. My b-12 levels were very low- I have Pernicious Anemia. I'm certainly not a doctor and I'm still trying to figure things out, but it's worth a try to ask your doc.

Good luck.
Posted 6/27/2007 3:17 AM (GMT 0)
Hello,

I just posted something under the name 'Oregon' that might help you. You sound like you have the same symptoms I used to. Look up Neurally Mediated Hypotension and then get a doctor to do a tilt-table test. It helped me so much. I hope this help!

Posted 7/12/2007 3:46 AM (GMT 0)
nothingtoulouse, may I ask you if your doctor has done tests on your adrenal glands?

I went for a good 30 years not knowing what caused my fatigue and your symptoms were definitely similar to mine.

Low Blood Pressure
Low Sodium Levels perhaps?
A hormone panel showed extremly out of whack hormones (dhea, testosterone, and some estrogens were rock bottom)
Fainting and dizzyness, not just when I stood, I could just be walking and the waves would hit me.

There are a lot more symptoms I had, but you seem to have many that I had. It could be many things, but it would be GREAT if your doctor could rule out Adrenal Insufficieny, Fatigue, or another Adrenal Problem.

Also what BostonLyme2006 was talking about was definitely also relevent! I had the stool sample done among other tests and sure enough we found a very severe candida growth in my stomach.

My doctor also uses a n holistic approach to a lot of things. His patients are often those who have exausted their avenues and been to doctor after doctor with no answers. And he finds those answer, he is one of my heroes. Caring so much about what is best for you, if something from the health food store is going to help better than an RX then that is where he sends you.

I hope you find the culprit, it may be more than one thing as often is the case. Stay strong no matter what, many times doctors who brush you off or go as far to say its in your head just can't admit "I don't know" and that is sad. If you haven't been to an endocrinologist that is also something I might suggest, they seem to take a whole body approach to find out what is wrong with you.

good luck!
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