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I keep losing words and spelling words

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Chronic Fatigue Syndrome
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Posted 8/1/2012 7:55 PM (GMT 0)
I am new here but read your posts often. about 6 months ago   I started losing words while speaking. I thought it might be dementia but now I think it could be CFS..

I have fatigue every day and go to bed at 7pm. I am retired so should have lots of energy. Then I have pains if I touch my arm or thigh it hurts....... or my lower leg. I dont exercise so that could be a factor... I am in good health otherwise..I eat very healthy diet..and take lots of vitamins...I only take one high-blood pressure pill per day.

I am going in to my doctor to have a physical in August.......

ps. It is hard to have a talk with someone because I cant speak  a regular sentence

  Any advice will be helpful..

Caren

Posted 8/4/2012 9:34 PM (GMT 0)
It certainly sounds like some of the symptoms, but it could also be the lack of activity especially if your older, I would definetly talk to your GP and maybe have him/her do a complete physical. Good Luck.
Posted 8/4/2012 11:34 PM (GMT 0)
Thank s so much for responding

Caren

Posted 8/5/2012 3:36 AM (GMT 0)
I have the same problem but I have fibromyalgia. My memory seems to be getting worse. I can't think of simple words it's awful.
Posted 8/5/2012 1:31 PM (GMT 0)
I went online to see what would cause not having my sentences right and losing words.  It said it could be aphasia caused by a stroke.

well when I go to the doctor for my physical I will talk to him about this

hugs, Caren

Posted 8/5/2012 7:46 PM (GMT 0)
Mayflower- no I dont suffer from anxiety

hugs, Caren

Posted 9/8/2012 3:41 PM (GMT 0)
update- I had an MRI   on my head and it is clear-so glad it wasnt a stroke like the doctor said it could be.........

now he is sending me to a Neurologist   to be tested for the memory problems,,,,,,,

Caren

Posted 9/9/2012 11:00 AM (GMT 0)
I used to get really bad "word salad" when I was over tired... Now I only really get it before I get a migraine. (Which is really annoying as a chronic symptom hider, because now my boss knows when I’m getting a migraine, and I’d rather just go about my afternoon, lol.) I also have trouble with  hand writing. I’m pretty sure it happens more when I’m tired, but I just forget how to write occasionally. Oddly I never forget how to type.    
Posted 9/11/2012 3:47 AM (GMT 0)
I've had Fibro for 4 years and it made it harder to think and I had to get glasses and then I got CFS and now i have the word loss you are talking about and the fatigue seems to be different for a lot of people, I was diagnosed with EBV/CFS which is supposed to go into remission although i've gotten numbers everywhere from 6weeks to 9months on the how long in between and I'm going on 7months without a break of any kind. A neurologist is a good place to start, just don't give up!
Posted 9/12/2012 2:24 PM (GMT 0)
Hi Caren, I suffer badly with memory loss and disorientation caused by M.E. Sometimes, I forget how to get home from town on a bad day.

I am interested in your diet, you said it is healthy - could you give me an example of what you eat? The "government's" healthy recommendation on diet and a real "healthy diet" are two completely different things...

To truly test if you have M.E. you could try doing some really strenuous exercise, preferably with weights or other resistance and then see if you "crash" a day or two later. If I do a heavy-lifting routine, then I am punished for a day or two after.
Posted 9/12/2012 3:21 PM (GMT 0)
Yes- I dont eat prosessed foods . I eat broccoli and carrots  every day and then sweet potatoes sometimes......Salmon every week. I eat a lot of nectarines when in season. brown rice also.... lots of green salads..........

Then I take fish oil capsules 500mg each day, lots of vitamins. Enzymes each day.......cranberry capsules every day-it has a built in antibiotic from the cranberries....

I go to an athletic gym and exercise.      

ps. I eat stevia instead of sugar..........

Hugs, Caren

Posted 9/12/2012 3:31 PM (GMT 0)
I have CFS & Fibro, and when my CFS is at its worst, I have trouble talking. I only make sounds before the words come, and my thinking is so slow to think of the right words and there is a problem with it all. Then when I am better there is no hesitation, but there is still a little problem remembering what to say.
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