Posted 8/19/2012 1:36 AM (GMT 0)
Hello Tricia, I am so sorry to hear that you are so bad at this early age. I know now that I had fibromyalgia at 40 and the fatigue didnt hit me so bad until about 10 years ago. I am 61 now and I feel I will never make 70. My mom is 81 and is just now going down hill very quickly. She has RA and sjogrens really bad. It is causing all of her internal organs to start drying out. She has neuropathy in her rectum and is in constant pain. At my age she was still a go getter. I have aged 10 years in the past 3 years. I am so exhausted I can barely walk, so I have a wheel chair. I have neuropathy in my feet and hands, but with fibro and the CFS I really dont know what to do. I live in my recliner or my bed. Just recently diagnosed with diabetes is just to much to handle. CFS is like the rotten cherry on top of a $h1t flavored ice cream sunday. Finding a doctor who respects a patient with CFS is rare, especially if they dont believe in fibromyalgia. Keep hunting dear, dont give up. Somehow find the strength. We are all here to help if we can. I exercise in swimming pool as often as I can. I shoot for twice a day. I can only go in when my husband is here tho. I can barely get out of pool alone. I have to make myself exercise. I am so so sorry you are so exhausted. Even if I didnt have severe pain, and just had the exhaustion, it would still be terrible. Maybe someday they will find help for fibro and CFS. Bless you and hope u can sleep tonight...Welcome to this forum, its a safe place to fall when u need it most....regards...Cathy