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CFS and hormones - has having a hysterectomy helped?

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Chronic Fatigue Syndrome
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Posted 8/30/2012 5:29 AM (GMT 0)

Hi Everyone,

I've posted this thread in the FMS forum but am also interested in those who have CFS what their thoughts are...

I've been perimenopausal since I was 35 (41 now) and I feel like I have symptoms at least 3 wks of the month and they seem to be getting worse shakehead So, after not having a period for 3mths, (but spotting all that time), I decided to have u'sound and was then referred to a ob/gyn. I had seen him 3yrs prior and an IUD had helped with some of the symptoms (mainly the heavy bleeding). So anyways, told him in last few years I'd been really unwell with CFS and FM and he goes on to tell me that they are only labels Dr's put on things when they can't figure out what's wrong with a person mad I'm sorry to say that I didn't disagree with him or argue his thoughts because I was at the stage where I would burst in to tears if I tried to advocate and set him right. I'm hoping next time I see him I'm much stronger and can 'advise' him on how his thoughts about CFS and FM are wrong!!!!!

so anyways, I thought he would suggest a hysterectomy however he won't as he believes with hormone therapy and diet (weight loss - am not obese though just a bit over) and exercise then things will improve. I've had a history of evil hormones and i'm beginning to thing that if I do have a hysterectomy then some parts of my life will improve.

So I ask the question: Has anyone had a hysterectomy post Fibro/CFS diagnosis and how has it affected you? Has it improved your health or made things worse??

Thanks everyone for reading this....

Cheers Lou :-)

Posted 9/10/2012 6:35 PM (GMT 0)
I had the same problem. I had a procedure called novasure, which is an endometrial ablation. Its done under general anesthesia, but you go home the same day. I will never have another period, but everything is still there. Maybe that's an option for you. There are several kinds of ablations. I had mine in May, so far so good. I hope that info helps you!
Posted 9/10/2012 10:18 PM (GMT 0)
I had a hysterectomy  with the ovaries taken out....no periods again yeah. MY life was all new after it. My entire health improved........

hugs, Caren

Posted 9/11/2012 3:41 AM (GMT 0)
I had a complete hysterectomy in 2009 and I thought at first that it helped, while i was on 2mg of Estradiol. That was post Fibro and pre CFS, i started getting sicker at the end of 2010 and had to have a benign lesion(that's a large mass) from my breastbone and had to go off hormones. Menopause is hell! Night sweats, day sweats, fatigue, dry skin, dry hair, nausea, headaches, I didn't sleep a whole night for 8months. I don't know who started calling them night sweats, that's a joke! its like being on fire! If feels like the worst fever you have ever had and nothing helps and it goes on for hours. I went back on hormones, 6months ago I started on a .5mg patch and 3months ago I added 100mg of progesterone. And now I am going to have to go under the knife again. I would definitely try ablation or a partial hysterectomy.
Posted 9/12/2012 3:26 PM (GMT 0)
First of all I would really try to get a new doctor because I couldn't bear having one that does not acknowledge CFS & Fibro in a positive way. I had a hysterectomy but didn't notice any difference with the CFS & Fibro. I wrote emails to my city's top hospitals to ask about docs for CFS and came up with only one: a rheumatologist who diagnosed me with Fibro and said that is you have one you ususally have the other. She sent me for a sleep apnea test and I found out that I had severe apnea. Good thing she sent me. I was so fortunate that I was awarded SSD after applying for it, since I couldn't work anymore.All the best to you.
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