Hi Gabby,
I am so sorry you are having so much pain. I would assume that you are probably also having a problem with nausea/vommiting. I have Gastropareis as well...very severly. Have you had to have a feeding tube yet? I had a J tube, because I was unable to eat anymore, but unfortunately due to my really bad immune system from Lupus, I got MRSA, and the tube came out. I have also had a NJ tube {down your nose..like an NG tube, but bypasses the stomach}, and am now on TPN {IV nutrition}. I only ask, because nutrition is such a big deal, and worry that you are probably depleted of a lot of nutrients. Its caused me to also have severe gerd which has caused abdominal pain. I'm so sorry for the throat pain you have! I am sure that is awful. I currently live in Ohio {Have lived in Amsterdam, and Chicago in the past}, and was sent to the Cleveland Clinic for my stomache issues. They weren't able to do much for me {they have for a lot of people though}because all the medications {Like Reglan} I am unable to tolerate, not a candidate for the pacer because of the Lupus, etc. So, I just try and maintain hydration, and nutrition. Oh, and I am on IV Phenergan and Compazine for the nausea and vomitting. I am actually on pain meds for other conditions {severe joint pain from Lupus, LPHS, Renal cancer, and arthritis}, and wish I didn't have to take anything because I know it just slows the GI tract down more. Unfortunately I have no choice. If you aren't already on pain medication, I would suggest you try something like the Fentanyl patches, because they bypass the GI tract. If you need a good breakthrough pain med with the same concept, Actiq, and Fentora are good options, as only a small percentage go into the stomache. I am on both the patches and Actiq. I also have a prescription for Dilaudid, but most of the time I am unable to take it. Anyway, I realize you have a lot of other conditions, but I just want you to know that you do have some options for pain meds not making a horrible impact on your body as far as the Gastroparesis goes. I may have missed this, but are you on pain medication? Oh, and another suggestion...if your insurance won't pay for Actiq or Fentora, you could try Morphine Sulphate Immediate Release in liquid form. I was on it for awhile, until my Gastroparesis got worse. Okay, I will quit rambling, I just want you to know that you are not alone. I only have two of the situations that you have, but if you need any support, or have any questions, I will try and help in any way I can. I have had Gastroparesis for a long time, so I know a lot about it! Ha ha. I hope you find relief soon sweetie!
Take Care,
Heidi