Benfotiamine(A type of Thiamine/B vit.) & Methyl B12 for Neuropathy -- Anyone use this?

Hello all:

I've not been here in a long while but am glad to see it's still active and well used in supporting each other. I think this is maybe the best such board on the web, and I really appreciate how well it is moderated. I don't come here as often as I once did due to an interesting paradox/dilemma I experience when on this CP board: first, as someone in cp since 1984, and who lived-worked with it for many years without meds, and have learned to live with it, I find that when I come here I focus on the idea of pain -- and this leads me to focus my attention on my own pain (which I manage to push out of the foreground of my awareness most of the day). In short, even when I come here mainly to support fellow CP-ites, it ends up being a end-gain negative for me alot of the times. Maybe someday I'll learn how to better control those thoughts and tendency toward the dark side and focus more on being helpful to others who are surely far worse off than I.

But that's not why I'm here today. I have had peripheral (non-diabetic) neuropathy since not long after my botched spinal lumbar  fusion in '84, when it started as cold feet and worked its way up to my hips over time, going from cold to hot-cold-pins-burning-tingling...you get the picture...

So my ears perked up when I came across a B vitamin which is oil soluble, and thus stays in the system longer. I found one company WCN **** which sells a combination of the 2  I mention in subject, with some more B's and a bit of D & Folic acid. Testimonials are raving for helping neuropathy but I prefer to get testimonials away from a product web site.

I've googled and found a fair amount of support for the claims on the WCN web site, but wondered if any of you had tried Benfotiamine and/or Methyl B12[Methylcobalamin(e)] for your peripheral neuropathy. If so, what dosages etc worked for you? Would appreciate it.   Take care all, "OO"

Hi Obtuse and welcome back. I know nothing of the vitamins you are inquiring about, sorry. But, I can pass this tidbit onto you. I do know that many times when diabetics get neuropathy, many times their B12 is low. Once they start either pills or injections,  it can help with the neuropathy and can completely eradicate it. So, there is my limited knowledge on it.

I have PN in my hands & feet. I was also low on B12 and my PCP started me on monthly B12 injections. The neuropathy is not as bad as it once was. I was on Cymbalta and Lyrica and both helped alot. The Cymbalta helped for quite awhile but then be ineffective so I was switched to Lyrica. Perhaps some of the others may be aware of this stuff.

Hi, O.O.,
Sorry to hear your problems are increasing. I also have non-diabetic PN in both feet, along with sciatic pain, etc., etc., etc. My started after a bad fall in 2004, and double lumar fusion in 2007 did not help it. I've been on neurontin for a couple of years now; not thrilled about it but I know it helps because if I'm late on a dose the symptoms get worse very quickly.

I had to, sadly, stop the cymbalta because is interfered with another medical condition, but I do know that at 30mg it helps mood and may help PN, but the dose that really helps PN if you go look at their website is 60mg. So if you're not on the 60mg I'd suggest talking with your doctor. I had to take effexor, which is the next best thing, but nowhere near as good as the 60mg of cymbalta - which was the only thing that made my feet feel normal.

As far as the vitamin you're talking about, I don't know anymore than what Susie has already said. I do take a B complex. I would check out Dr. Andrew Weil's website, as he's very good with a lot of this, except he also sells his own products, but he also may tell you what you need to look for in a vitamin.

Good luck!

PaLady

 

 

   Dear OO,

 

     Have you ever seen an cranial osteopath? I am talking to a friend who has Meniers aswell. She said an osteopath was the best route to take, Just an idea.

*huggs*

dani

OO,

I also see an osteopath for craniosacral work & he is great (and certainly not one to give up)!Osteopaths can help with a variety of conditions & even find things that you didn't know you had that are being caused by or are contributing to the cause of your condition. If you do see one, just make sure that they do craniosacral work, as it seems that some osteopaths are doing less & less hands on work these days. Craniosacaral work is very gentle, yet very powerful.

Skeye