Hi, New here

Hi om7peace. 

Welcome to the family.  We're all here when you need.

Hi Om7peace,

Welcome!  Most of us have been where you are with our family and friends not understanding what we are going through.  I thought my husband didn't care because when I cancelled outings or didn't feel like watching movies, he simply did NOT say anything.  After many months of feeling very alone I finally called a family conference.....what I found out was his silence was one of frustration, frustration that he couldn't fix me!  It is very hard for people who love us to know what to do, once they know its not their job to fix us, just support us, it does change things. 

Its hard for people who don't live in CP to understand, talk to your BF honestly.....we are here for you!

XXOO
Patti

 

   Good Morning Peace!

 

      Welcome to Healing Well Community! My name is Dani. It is very nice to meet you. I hope you find it a comfortable, caring environment to spend your time.

 

     I am so sorry your flares are out of control. I know you mentioned Lortab. But I wonder are you on other medications? More importantly have you been to a Pain Management Specialist yet? If not, I highly recommend you see one. Often times, chronic pain ( no matter the source) takes multiple approcahes. Ani-depressant, nerve med, pain meds, break through meds, anti cons, blocks - epi - trigger cortisteroids, et al. A pain management specialist can take of all of that. Often times primary care physicians arnt able to take care of chronic conditions. So, that is just a thought. I don't know how your relationship with your primary care doctor is, or if he/she would be open to refferal to a pain management specialist.

 

      Again, welcome! I look forward to getting to know you better as time goes by

 

*hugg*

  dani

Hi om, I can totally relate to what you are going through w/docs and feeling profiled-- as a druggie with no credible complaints. All I can say is, you have to be your own best advocate, and not allow anyone to dismiss <or mock> your pain issues... I find it incredible that there are so many people here @ HW--that share similiar symptoms & complaints--there is definately a common thread that needs researching by the scientific community. Anyway, off topic--I hope you find relief soon, & speak up! What is the worst thing that can happen?--you may have to find another doc, but, I'm sure it will be worth it. peace out... L

Welcome to the chronic pain forum.  I'm glad you found us.  I'm sorry you're in so much pain.   You might want to ask your pcp to refer you to a pain management doctor.  I wish you luck with finding relief from the pain.

 

hugs

Loretta

Hi OM,

 

Welcome to Healing Well's chronic pain forum. I am very glad that you found us. As you can see there are quite a few of us and know that you are not alone in your suffering, although I know many times it does feel that way. Everyone here has a story to tell as to how or what caused their CP to rear its ugly head and turn their world upside down. For many of us we ar working on building a second phase of our life because of CP. I always says no one can truly understand or appreciate CP unless they too suffer with it. Kind of like takes one to know one type of thing.

 

It seems to magnify things even worse when we feel that we have no one to talk to about how bad we may hurt or how bad we may feel. Some are fortunate to have support at home some don't. I no longer talk about CP or any of my issues with my family. They don't understand it, heck most of the time I don't either, so can I really blame them for not understanding, no, I can't and I don't. I did seek out help from a very good psychologist that helped me a great deal. She was knowledgable not only in CP but auto-immune diseases as well, so I kind of got a two for one in that area. Our ins changed and did not offer that sort of help any longer, now I am on Medicare and sure can't afford to run up one more dr bill.

 

I don't know if you are having any trouble with depression or not but CP and depression go hand in hand for some reason. If you feel depression is sneaking in then by all means let your PCP know about this and get something for it. Life is much better around here now that I take something for depression. Many times antidepressants can help lower the pain level somewhat too. Does your PCP have you on anything for the nerve pain from the Fibro, something like Lyrica, Neurotin or CymbBalta? These medications can work very good for some with nerve pain and Fibro. Alot of people on here that suffer with Fibo usually are on one of these meds, a lot of them are on Lyrica.  Most of your regular pain medications have little effect on nerve pain, its takes something for actual nerve pain to help with that. You may want to check these meds out and talk to your PCP about being tried on one of them.

 

Its really hard to say one way or the other as to what you should do about your PCP and asking for an increase. You know your dr better than any of us and know more on how he will react when being asked about an increase. Rather than ask directly for an increase, why not just tell him that the meds you are on now are not effectively getting your pain level down and its getting worse and is there something else he can try or suggest for you in order to get some relief. By asking this way you are asking him to try something different but it looks like its his idea and not yours. Not many PCP's will rx pain meds to a patient for long term use. They don't want to get involved with it as a rule. Most will tell you this and if yours gets to this point then ask to be referred to a pain mgt for care. I would also say I would like to have one that deals with a lot of Fibro patients too.Yes, we all know about the care you get going to an ER, its criminal.

 

Let us know how the appt goes with your dr. Try to hang in there, thats about all you can do and take care of yourself. Any time you feel the need to talk, vent or whatever remember you have found this place and we can offer a lot of moral support.