~ Having an odd delimma

   I am having an odd delimma as of late. Though I know I have more important problems on my hands this is something that I really want to do.....

    As my deformity progresses my hip is now all of an inch or so from my bottom 4 ribbs. Now, it is rotating towards the rear a few inches. My deformity is obvious. Up until now I have been wearing strategic clothing to try to "hide" as much of it as possible, though it is still obvious that the big lump in my lower chest is my hip and the lump in my back is my shoulder blade protruding out unnaturally.

     Recently, despite my best efforts, my walk is the obvious hobble of someone with a deformity. My deformity in hip and shoulder is... sickening and obvious. People do not look me in the eye anymore the last 2 months. If I look at them, the immediatly look at the floor, or away. A bummer, my new smile cost thousands of dollars and I like to smile / show it off. In anycase, you get the idea.... So, recently I had an idea. I know noone wants to look at me directly, but I like to look at me. I think for a defomred lady, I look pretty good. My point is I want some professional photos done. You heard me right, I want full body shots while wearing something very form fitting so I can show off my deformity. I know it sounds crazy, but I want this. I need this, for me. I want full body pictures of me "celebrating" my deformity. LIke the pregnancy photos, only show casing my "curves".

     I brought this up to my husband (he is a very kind and caring man) and all he did was raise his eye brow and say "Hua". So I waited a few days and I brought it up again. That time he said,"Really? WHy?" so I told him, just as I have explain to all of you. I want to "showcase" my deformity. I want pictures celebrating my deformtiy. He said," Thats weird babe.". So what do I do? I have brought it up a dozen times in the last month, and I just cannot seem to get him to understand that I want this done for me. For the "inside me" and it is important.

     What am I doing wrong? Am I going about this in the wrong way? Or should I ask in different manner? WHat do you guys think?

*hugg*

  dani

You are such an inspiration to me!  If this is important to you then you SHOULD have it done ASAP.  Perhaps you should even consider contacting a magazine (medical) or a serious fund raising/support group for people who can benefit from seeing your side.  I know you are doing this for yourself, but it could possibly help others who are suffering and may make some additional cash to boot.  I'm sure there is someone out there who can help you make arrangments and I'm sure you want the best photo shoot available without the expenditure of a large amount of cash....at least I would, anyway.

I think you are very brave and very inspiring.  Perhaps even Discovery Health Channel would be interested in your story.  I know they were where I first saw something about my HGH problem with another lady.  Our problems were still different in the end, but it gave me something to think about and educated me a little.  Of course, I've never seen you, but Pete seems to think you are beautiful just the way you are.  Giving others the chance to see that and having photos done now (especially if things progres more later) could be a real treasure.

My prayers are with you always.

Dani,

I totally get your reasoning!  DO IT, the pictures I'm sure will capture your inner beauty as well!  We all come with different packaging but its our HEARTS and SOULS that shine! Like SE says make sure the Photographer understands what you want.  My Grandmother is 100.5 years old and we have a picture of her that is magnificent, her eyes show everything she is....she only sees her wrinkles but we see HER!!

XXOO
Patti

Your so pretty! Can I get one of the pic's after you get them done? I was so upset I didn't get any pic's of us together! I've been trying to cut some photos of you and Lisa out of the Flip videos that your "Bumblebees" made but they were moving so fast that the pics came out fuzzy!

I think it's a wonderful idea to get yourself photographed! I think that it will not only help you but also children who have spinal deformities to see how beautiful you are!!!!!!!!!!!!!!!!!!!!!!!!

Go for it!

Love and Big Hugs!!!

Pete

    Thank you all so much. From the bottom of my heart. I knew you would understand. Thank you.

     I think flower is right. A letter just might do the trick. When I was trying to think of what I would write I had another idea.....  Soon, he will start to ask me what I want for my anniversery gift. I think that would be a good time to bring it up again. Also, if I say "I will write down what I want" and hand him a heart felt letter insead, that might work too. I havnt gotten a game plann fully together yet... I really think I can get him to agree to this, if I could just get creative about asking for it.

*hugg*

  dani