~ New Member JJuice2 (julie)

Hello all,

I'm a bit too shy to start a new topic to introduce myself so this seems like a good place to do it!  Although I'm just introducing myself, I have been reading nearly every day for a long time and feel that I know all of you.  I am moved and humbled by your stories and your courage.

My name is Julie and I'm 39.  I'm happily married and have 2 kids - a 7 yr old son and 5 yr old daughter.  Needless to say, they are my world.  I was diagnosed w/fibromyalgia about 18 mos. ago although like most folks, I'm sure I've had it for years.  Since then, things seem to be falling apart.  Shortly after that, I discovered that I had a fractured tailbone but had no idea how I did it.  That has been over a yr ago and it's been terribly painful every day since.  In addition, I developed horrible pain in my legs and an EMG showed that I have perm nerve damage, most likely a result of the fracture my dr. said.  I also started having lower back pain, and an MRI showed degenerative arthritis, which really surprised me.

I have a bunch of other "conditions" that usually go along w/fibromyalgia as well.  I have to say though that I'm very fortunate to have 2 WONDERFUL doctors.  My rheumatologist and my neurologist/pain mgmt. doctors have both been w/me since the beginning and at every appt. I whip out my notes and list of questions and they both love it that I do that!

Ok, that's long enough!  Just wanted to introduce myself because then I'll feel more comfortable if want to post a response sometime.  You are all amazing and thanks for sharing your lives...you have no idea the impact it makes!  Even to "lurkers" like me!

Julie

Welcome to the HW family!

You should never be afraid to start a thread here or to introduce yourself. We were all the "new kid" once too! There is such a wealth of knowledge and experience in this group of people and we are generally very accepting and easy to get along with. Sometimes, just like in all families, we disagree, but that is usually controlled very well by our wonderful moderators.

I, as well as many of our other members, have fibro and can surely understand the flare! I also (like so many ohters) have the back problems added in and a slew of other medical conditions. We are a mixed bag and have such a great representation of so many things. Some have conditions I have never even heard of, but I can give emotional support none the less.

Please feel free to join in any conversations and to allow our family to support you emotionally. We also give some great advice on where to go for medical information, but please do not think that any of us are doctors and we do not give true medical advice....one personal experience information.

Again, welcome to HW!

Hello Julie and welcome to HW. I have not been a member for too long myself, but it has been a great place for me to 'go' when I get time to myself most days, I love to log in and read how everyone is traveling. I have learnt a lot of new info along the way that has been helpful to my plight, I am sure you will find the same.

I am so sorry to read about your plight, when it rains it pours (as they say), I hope things get easier for you. I had four little children when my woes began, now they are all grown up, just the 12 year old to care for, somehow you manage to do it, just make a point of enjoying the children as much as you can along the way.

Radles

Julie

I would also like to Welcome you to our forum, or shall I say "Family"! I am sorry that you have reasons to have to come here, but if since you have been coming here and reading our post, you can not help but know what a really great site this really is!  Of course it is the kind, caring, and compassionate people here that make this forum what it is!  I am glad that you decided to post, and introduce yourself, I do hope that you decide to stick around and become part of our family. You know this is just the place to come to vent your frustrations about CP, because when you do, you will alway find a compassionate ear, that is willing to listen and share in pain, when your here your definitely not alone! You now have friends that really do understand your pain and what you feel, and can empathize with you, as the saying goes "misery loves company" Well here you have plenty of company!  There is power in numbers, so if we can not over come CP, maybe we can at least help surpress it a bit!

 

I wish you well and again Welcome to our forum!

 

White Beard

 

   Dear Julie,

 

    Good morning and welcome to the community! I am terribly sorry for moving your post, it was fine in the "Weekly Roll Call", but I wanted us to have a chance to welcome you

 

    I am terribly sorry your having had to endure so much pain for so long. It is good though, that you have doctors you trust and are comfortable with. It makes a world of difference when you are treated as a person and not just another "patient".

 

    Parenting little ones with chronic pain is hard. I have two children myself and it does take its toll. I love my little Bumblebees very much, but there isnt a "pause button". There isnt anyone you can "call in sick day" to. Other times it is nice I do not have time to frett over what is happening to my body. What suprises me the most is that there isnt more resouces or information about parenting with illnesses.

 

     I see I am chatting away here. I do hope you have a good day. it was very nice to meet you.

 

*hugg*
  dani