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Posted 12/11/2010 12:48 AM (GMT 0)
SE

 

I am glad that they got you on long term pain control! It is bad when you have the pain coming from both ends  of the spine! I have lived with that for a long, long time, and it is no fun. Unfortunately the mornings do seem to be the worst! I have found for me, that often in the morning the thing that seems to help the most is a nice warm shower, I use a shower chair, and just to sit and and feel the wet warmth of the water running over me, it just seems to help wash away the early morning pain and stiffness in the muscles. I wish you well and hope that you find long term relief of your pain with your new meds!

 

Good luck to YOU!

 

White Beard

Posted 12/11/2010 1:18 AM (GMT 0)
Thank you WB! I know you will understand completely what I'm going through, and your so right about both ends of the spine hammering your body to a pulp.

I have a ways to go before things level out, but at least I'm on a path now.

I have not checked your post in a day or two, but will in a bit. Hope your doing better these days.

Thanks Again!

SE

Post Edited (Screaming Eagle) : 12/10/2010 7:39:33 PM (GMT-7)

Posted 12/11/2010 5:30 AM (GMT 0)
SE, I haven't been around much (dealing with my own issues which keep multiplying), but I wanted to let you know that I'm praying for you. I'm glad to read this last update and it sounds like your doctor really took the time to understand what you need. I'm glad he's prescribed long acting pain relief for you...it makes such a huge difference when you get on it at the right dose...it certainly is what keeps my pain at a fairly steady 4.

I hope you find the relief you need so you can get through your days without the pain building and building. Good luck to you, and I'll be continuing to pray and send my good thoughts your way.

hugs,
Pam
Posted 12/11/2010 12:56 PM (GMT 0)
Bunky, did you notice a difference with the new formulation (OP)?

I have been 24hrs now with no sleep and totally worn out! Did not sleep a wink last night! smhair Anybody? Also my gut was hurting quite a bit as well. Felt like gas, but none there..

SE cry
Posted 12/11/2010 1:05 PM (GMT 0)
Mikey, I'm so glad you like your doc and he is taking good care of you! In this day and age, that seems to be pretty unusual! I hope the change in meds helps you w/ the ups & downs! Your right> they suck!
I can remember not that long ago when you were waiting for your surgery and all you wanted to do is "Get completely OFF the meds!" I'm so sorry it didn't work out that way for you!!! Truth be told, I think it seldom does for people like us! The surgery may correct certain things and maybe evan prevent more damage and the pain from getting worse but eliminate the pain completely> NOT! Myself included along w/ so many other brothers & sisters here on HW!! Then we juggle meds the best we can and are allowed to depending on our docs and where we live, some get shots and others theropy but it just seems like we are still struggling w/ the "P" word!
Thanks again for starting the post to me Mike! I thought I was completely forgotten on HW for a while as I was checking in to read evan if I didn't write anything the past couple weeks! You are a good man Mikey and I can't wait to meet you and your's along w/ Suz and her's this winter!!! It's gonna be SO COOL!!!
Manhugs & stuff!
Pete
Posted 12/11/2010 4:45 PM (GMT 0)
Dear Michael,

I'm so glad to hear your appointment went well and that the doctor really LISTENED to you and that he's on your side!! Pete's right, that's pretty rare! And it makes life so much nicer when you have a doctor who really cares about you and wants to get it right!!

I'm really really happy that you're going to get some real pain management going!

Take care my friend,
JoAnn
Posted 12/11/2010 6:49 PM (GMT 0)
embeda is very expensive form of a abuse deterant morphine. the standard morphine sulfate ER which is generic versions of MS Contin or Oramorph works pretty good and its affordable. it comes in 15, 30, 60, 100, and 200mg. the 60 and the 1oo are potent. morphine is the most effective opiate and is the gold standard.
Posted 12/11/2010 8:41 PM (GMT 0)
SE I am thinking Ms Bunky said it took the newer version a little longer to kick in. One thing I do when I am needing relief like now is after taking the pill I drink either hot tea or coffee and it helps the pill dissolve much faster. It really works.
Posted 12/11/2010 11:23 PM (GMT 0)
SE
I have been checking in now and agin to see how everyone is doing.
I am so sorry that your pain level has increased for you. We all understand how it is bt that does not make it any easier fo you.

It sure sounds like you have the same great relationship with you pm as I do. But it really is a shame that we think about our drs. not trusting us, or that we think they may think we only want drugs. They can tell the difference between a drug seaker and a person in pain. Although a nurse did tell me that some people will even go as far as a discogram for the pain meds. (can't fake that kind of pain)

My dr. put me on opana and I take the norco for breakthu. I guess it is not oxycotin but oxymorphone, morphine and oxycotine. He said it was stronger that oxycotin. Well I am a new person with it. I still take the norco for breakthu but not as often. The best part to me is that I am not always thinking about taking more norco because the pain is so high. I am no loger stressed about running out. before the pain was always around so I always was thinking about my pin meds.

Any way..........Always good to see you, (sounds conry but I feel a bond because we had our surgeries so close together) but very sad that you are in bad shape again. I will be thinking about you! Take care of yourself my friend.

Hydrangea
Posted 12/12/2010 1:07 AM (GMT 0)
WOW! After a night of no sleep, I hit the sack at about 7:30am and slept all day, only to wake for a bit to visit with one of our members, and then out like a light again. I just woke up. smhair


Just in time too, as it was time to take my BT again. I think the stress has gotten to me or something. I was fighting this whole thing mentally for quite some time now.

My Dr has never really doubted me, but he is cautious with scripting pain meds out more for the reason of the long term harmful effects. I have always wanted to please him, and I was the one who has suffered for it.
Going from short term meds to a long term meds seems to be a big step with all Dr's.

Hydrangea, I wish you would pop in more often, as I do think of you, and often wondered how you were doing. At least send me an email every once in a while please. smilewinkgrin

I'm behind on my personal thank yous to each one of you, but at the moment, my head is no where to be found. shocked For those veteran members who think their value here on the boards is waning at times.....well think again!
You are needed here on a daily basis for us neophytes (beginners) ! I often don't have the medical expertise, but my heart is big...and surely it is worth something of value. I feel like I have hit bottom.....so which one of you "I told you so's" is going to help me out of this pit! aaaaaahhhhh! Just kidding!

I just woke up up, so if I'm seem a little off kilter here.....I still have sleepy's on my brain.

While I'm thinking of it....Pete I read your post this morning, and wanted to say, don't ever sell yourself short here on HW. We all enjoy them! We need you as much as you need us! The Norman Rockwell descriptions you give us of your daily life are priceless.

OK, I'm out of here before I really say something stupid!

SE
Posted 12/12/2010 2:40 AM (GMT 0)

  Dear SE,

    I hope you are continuing to rest up. With a little luck this medicine switch could be just the thing! Hang in there

*hugg*
  dani

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