Hello everyone. I am from the Lyme forum. I went to a rhumatologist cause i have always had chronic pain in my joints and achy. my pain starts in my kneck and travels down the spine to mid back and spreads into my shoulder blades and top of shoulder. I have always had achy pain in theses areas but went away for a few years.
I have had Lyme for 3 years now and in the past year these symptoms have got worse and unbearable at times. My rhumy sent me to Physicle Therapy. I have gone about 4 times and it feels good to get the massage done but i am still in pain. She also told me that I hardly have a curve in my kneck, that I have sighns of arthritis in my kneck that a 40 year old would show and I am 32. also that my kneck doesnt line up with my right shoulder.
But also I am on no pain meds and suffer all day long. The only reliefe I get is at night when I take advil PM so that I can sleep. I was loosing so much sleep for months that I could hardly focus on anything and make mistakes at work.
I get pain in my front shoulders almost feels like the collar bone and when I push my shoulders back it hurts. I am soooo sick of being in pain. I want to ask for pain meds but i dont want to get addicted and also I dont do well on meds at all.
I been off my lyme meds for 2 or 3 months and I am feeling better except for this spinal pain. I am starting to think that I still have Lyme bacteria and its built up in my spine. I just dont know what else to do and when I will feel normal again. I cant even work out and get back in shape. I did some light pilatis the other morning and was in pain for 3 days with my bones and joints ;( then I get afraid to try again and give up. I can only walk..
Sometimes when i do just walk my shoulders feel heavy and start to hurt I can never win tooo many pains... thank you for listening ;)
Jennie 